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  1. Lisa

    School accommodation

    Is there a form to use when requesting an accommodation for a school age child to be able to go to the bathroom when they need to?
  2. Lisa

    Ended up in the ER ugh

    So, I ended up in the ER today for sudden onset of acute pain upper left quadrant radiating into my left shoulder/arm…. Turns out I have a 50% splenic infarct, secondary to my coil embolization this past Thursday. Let me tell you, hurts like a sob! Now I need to check with my GI to see if I...
  3. Lisa

    Well this stinks….Med reaction?

    So, I had a coil embolism done yesterday for a splenic artery aneurysm. Things went pretty well, stayed at the hospital about an extra hour because I almost passed out after I got up finally. I had taken a tramadol so that might’ve been the case, but my blood pressure had dropped a bit too. This...
  4. Lisa

    MRE this morning…

    Wish me luck! So far at least the contrast I have to drink isn’t too bad….almost fruity? And has a smooth vs thick texture…it’s NeuLumEX- barium sulfate suspension 0.1%.
  5. Lisa

    Continuing to catch up on medical stuff.....

    Had a routine colonoscopy scheduled for yesterday, ended up having that and an upper scope due to some symptoms that has been persistent (nausea, reflux, abdominal pain/bloating) for the last two or so months, along with about 10lbs lost in the last month without trying..... Due to a new...
  6. Lisa

    Medication co-pay assistance information in the US -

    Here is a comprehensive list of all sorts of assistance, co pay assistance programs, out of pocket cost assistance, ostomy supplies and college scholarships. https://www.crohnscolitisfoundation.org/managing-the-cost-of-ibd/patient-financial-assistance?name=&page=0
  7. Lisa

    Nutcracker syndrome - can mimic IBD symptoms!

    A little background, my mother has been having some issues with lower bowel/pelvic pain, along with other (previously) unrelated symptoms of 'something' going on - which she had been to various doctors as well as at least a couple of trips to the ER..... The other day, she had a follow-up...
  8. Lisa

    That time of year again...annual GI visit and upcoming scope....

    Had a really good visit with my GI's office this morning, went over my history (I've been seeing the same PA for office visits for a few years now so she remembers most things).....had blood work results already from my blood draw taken yesterday before my Remicade infusion.....discussed those -...
  9. Lisa

    Shingles

    And not the kind that you put on a roof!!! So, this shingles pain is FOR THE BIRDS!!!!! I got the rash on my torso, right side and wrapped around from midline of my back to my front, with the rash going right underneath my breast.....which makes things 'interesting' as far as getting a bra on...
  10. Lisa

    Shingles while on Remicade

    So I have been diagnosed with shingles. Doctor is checking to see if I can take oral anti viral meds or have to go on iv meds....:ybatty::ybatty::ybatty::ybatty::ybatty::ybatty::mad2::mad2: Anyone have experience they can share????
  11. Lisa

    Right side chest/under arm pain - thoughts on cause?

    Disclaimer - yes, if it isn't better in a day or two, or gets much worse I will be calling my doctor!!! Saturday I started getting what felt like muscle spasms on the right side of my chest, under my arm. The spasms were enough to stop me in my tracks at time and wince...no rhyme or...
  12. Lisa

    Good annual visit with GI.....although time for tests!

    So yesterday was my annual GI check up, and this time I saw one of the Fellows (I think) - someone I had actually seen before on and off over the years and I like her..... This was a good visit, not only did she take her time to go over my history (we found out that the computer system only...
  13. Lisa

    Found this article on Yahoo today...

    And it really is true - how many people let the disease control them, instead of the other way around? I could see myself at a much younger age in the words that were written..... https://www.yahoo.com/beauty/disease-secret-until-close-friend-170000492.html
  14. Lisa

    I should have known better than to turn my back...

    Those of you with animals know you should never become complacent, or do things in a hurry....well....I was (painfully) reminded of that Monday evening when I went to let my horses out..... I did go get x-rays which showed nothing broken, but I'm reserving judgment on anything else until some...
  15. Lisa

    Scope prep day today.....

    That time again.....it's funny, I just found my thread from my last scope which was in early October 2014.....had my period start the day of the prep.... Guess what started yesterday? LOL.....thought I was going to miss it..... Anyway, procedure is scheduled for 1230 tomorrow, late for me, but...
  16. Lisa

    Looks like my husband has shingles!!!

    Oh boy - can't catch a break!!!... Husband has had a headache for the last 5 days - finally went to the doctor day before yesterday to be seen and got some migrane medicine....Monday evening said his face was feeling tingly - more on one side - thought it was maybe a reaction to the medication...
  17. Lisa

    Mysterious bi-lateral arm bruising...

    So last Friday I was sitting at my desk at work and noticed a pain in my left forearm, specific to a 'spot'.....by the end of the day, I had a 'nice' bruise, about 2 inches across......no recollection of hitting myself on anything etc... I also have an almost matching bruise on my RIGHT arm -...
  18. Lisa

    Intermittent eye itching, weird swelling on eyeball?

    Ok, so tonight my eye started itching, and got nice and red and swollen, feeling like something is in it.....now, I am allergic to cats and our new kitten was on my lap. I of course rubbed my eye, which didn't help.....now it feels like there is an eyelash or something in it, but when I look at...
  19. Lisa

    11 Celebrities with Crohn's disease

    Thought I'd post this link so others can see that aside from us in here, there are others out there who have made a very good success of their lives..... http://mymedclinic.info/11-celebrities-with-crohns-disease/ Remember, although we all have struggles, never give up the fight, or the dream....
  20. Lisa

    Been to the toilet too many times today!

    Not sure what the heck triggered it, but I feel like I have taken a prep for a scope! Felt fine this morning, had my coffee....went to work and felt like I had to go...went to the bathroom and all liquid....I mean seriously - I have to work all day, including walking, and due to my lovely loss...
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