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    New no knot seton for comfort

    I just received a new no knot seton - it;s a brilliant idea -instead of a knot its a smooth tube with female to male connection. After a year finally convinced my surgeon to put it in. It;s so uncomfortable with the knot moving up and down there and tearing my fistula skin.
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    Update - 6 month's Filgotinib stage 2 clinical trials

    I am participating in Filgotinib stage 2 clinical trials. My hope was to close complicated rectal fistula - draining seton in for 4 +years. Seton removed the day of trial start. After 3 month's, I developed an abscess in the external opening (it closed up)and had to have draining under...
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    6 month's update on Filgotinib

    I am participating in Filgotinib stage 2 clinical trials. My hope was to close complicated rectal fistula - draining seton in for 4 +years. Seton removed the day of trial start. After 3 month's, I developed an abscess in the external opening (it closed up)and had to have draining under...
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    Video on new fistula treatment research at Mayo clinic

    Video on new treatment of fistula at Mayo clinic: http://medprofvideos.mayoclinic.org/videos/another-promising-application-for-stem-cells-crohn-s-complications
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    Filgotinib clinical Trial phase 2

    Efficacy and Safety of Filgotinib in the Treatment of Perianal Fistulizing Crohn's Disease. ClinicalTrials.gov Identifier: NCT03077412 I will be starting testing to see if I can participate in this study on Nov 1st. Its in a pill form - no shots or infusion. Will be reporting on my progress, or...
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    Temp. Ileostomy to heal fistulas -it worked!

    I had ileostomy for 1 1/2 years -Ileostomy is a stoma constructed by bringing the end or loop of small intestine out onto the surface. My rectum fistula was infected and drain setons and antibiotics no longer worked. At the same time I started Stelara injections and take 100 mg Imuran. All my...
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    Temp. Ileostomy to heal fistulas -it worked!

    I had ileostomy for 1 1/2 years -Ileostomy is a stoma constructed by bringing the end or loop of small intestine out onto the surface. My rectum fistula was infected and drain setons and antibiotics no longer worked. At the same time I started Stelara injections and take 100 mg Imuran. All my...
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    On Stelara after ostomy surgery

    I have a ileostomy to help heal my fistula. Had it done last year in July, my fistula kept getting infected and abscessing all the time, antibiotics did little help even with a seton. I still have the seton in fistula, the stoma did help my infections. I am now on Stelara and feeling better...
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    Experts May Have Finally Found The Cause Of Crohn’s Disease

    Experts May Have Finally Found The Cause Of Crohn’s Disease http://www.huffingtonpost.com/entry/crohns-disease-cause_us_57e40374e4b0e28b2b52a67c
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    Vagus Nerve Stimulation in Crohn's Disease

    Scientists aim to harness power of body’s electrical impulses to treat patients. Early clinical trials with a device that stimulates the vagus nerve, the body’s longest individual nerve which extends from the brain stem to the abdomen. This exerts an anti-inflammatory effect that will help...
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    Here's Why I Embrace the Label 'Disabled'

    Interesting read: I Have a Chronic Illness. Here's Why I Embrace the Label 'Disabled' http://www.huffingtonpost.com/sarah-blahovec/i-have-a-chronic-illnessh_b_8110038.html?utm_hp_ref=women&ir=Women&ncid=fcbklnkushpmg00000046
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    Cimzia and healed scars from earlier surgery

    I am on my second month of Cimzia and do see an improvement. About a month before I started taking it, I had appendix out via 3 small incisions. No complications, all healed up well, but, today I noticed that my healed scars became red, a bit swollen and very itchy. Just the healed scars...
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    Alcohol and Cimzia

    I just started taking Cimzia last week, still on intro dose. Can I have a glass of wine or a beer once in a while? Anyone had a reaction with alcohol and Cimzia? I am sure this had been already talked about – just can’t seems to locate… :ybatty:
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    EnteraGam

    Has anyone used EnteraGam medical food for the management of diarrhea-predominant Crohn's? Did it help you? Did you have any side effects? Tnx
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    Natalizumab -Tysabri

    Has anyone been on Natalizumab -Tysabri? How do you feel? Did it help you? Did you have any side affects? Humira stopped working for me after 2 ½ years- I developed abscess and fistula, testing for antibodies came back positive. I already tried Remicade – had a reaction during the 3d infusion.
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    Interesting research

    http://www.technologyreview.com/featuredstory/426968/the-patient-of-the-future/
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    On SSD and just received my Medicare welcome package

    I am on SSD and just received my Medicare welcome package. I am on my wife’s health insurance from her employer; it’s from Aetna and pays for 80% of medical until the deductable is met, then pays 100%. Prescriptions are also covered, but co pay is a lot – some meds costs me $60 for a month...
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    Processed and non Processed food does matter

    Processed food are bad for you. Now, for the first time ever, you can see how for yourself. Project M2A™:The Fantastic Voyage offers a graphic look at how the gastrointestinal tract (GI) processes 2 meals - Processed and non Processed...
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    Humira and hives

    I have been on Humira for 6 mo. My symptoms improved gradually – First belly pain/cramps went away, then dria. Now I “go” only after each meal, so 3 to 4 times per day. Still have some joint pain, but it is not as severe as before and does not last as long. I have however developed hives this...
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    Dizzy

    dizzy I feel dizzzy, dizzy, dizzy! Pathy rash is so itchy even after short walk with a dog. Have to lay down so tired from it! Called my GI 3 days ego - no call back yet...
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