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  1. Scifimom

    And I am finally officially flaring...

    And I want to kill my doctor (again). I have been losing weight since Summer (I lost 15 kilos so far, thats 30 pounds for the non-europeans). I was complaining for pain, blood, feelings that I dont "empty" when I poop, night visits to the toilet, 10-15 bathrrom trips daily. But my blood work was...
  2. Scifimom

    Help me help a friend

    Hello peeps, A friend of mine recently got a stoma. She is not a crohnie and does not have Colitis. She had polyps all over her large intestine. Out it went and she now has a stoma. Thing is she is always shore. Her stoma hurts, the adhesive of the bag hurts, her tummy hurts. So help. Any...
  3. Scifimom

    GI Vent (Doing Nothing?????)

    So today I had a GI appt. The convo went like this GI: How are you? Me: Eh not so good. I have huge burps with rotten egg taste, My right side hurts, I am tired, I have headaches and I am bleeding at least twice a week when I go to the bathroom. Its been almost three years since my surgery and...
  4. Scifimom

    I am bleeding, what the...

    Its the fourth time in the last three months, I go to the toilet and I am bleeding. No pain (just the normal Crohns pain) No more D than usual (7-10 times a day). The blood is bright red and quite alot, enough to make the water red. First time it happened mid September I think. I went to my GI...
  5. Scifimom

    Losing weight

    I really need to lose weight, I look like a baby whale, again. After losing 18 kilos in 2009 (first flare-surgery-hospital etc) I have gained 13 back. I am borderline Obese. I almost didnt make it last time I had surgery, I am afraid that if I need another I will die. The problem is, I cannot...
  6. Scifimom

    Funny Story, Dh and needles

    My dh broke his leg last week. Part of the treatment is having 30 heparine injections in 30 days to avoid blood clots. He got the first at the hospital. The next day I bought the rest and took one of the injections out of the box. It was a tiny needle with just 0.2ml of liquid. I am having...
  7. Scifimom

    Effing headaches (need advice)

    Since I started Humira I am having headaches and migranes. They are not connected to my shots, I get them randomly up to 3-4 times a week. They are stronger when I am tired and they usually start early in the morning and go on for the rest of the day. Sometimes its so bad I cannot even stand the...
  8. Scifimom

    Question about a stenosis

    I have a stenosis in my small bowel about 7 cm long. There is mentioned in my surgery paper, in the ct scan, in the MRI etc. Last year the Gi said that its something I will have to fight, cooperate with him, take my meds etc etc. He also said that it will probably cause another flare in the...
  9. Scifimom

    I got a second opinion... (and a third... and a forth) (sigh)

    I saw an immunologist two weeks ago, along with a new GI in a University - research hospital. They both said that my Crohns is rated as severe (not moderate to severe... just severe) they both suggested Remicade ASAP. The GI heard my concerns and said that if I want to he can keep me in drug...
  10. Scifimom

    Can immunologists help with Crohn's Disease

    In Greece there is an immunologist who is concidered the best in the country and among the top 5 in Europe. He works at the University hospital of a city about two hours outside Thessaloniki (where I live). He is very busy, very difficult to find, but he is also a client of the company I work...
  11. Scifimom

    I am scared...

    I had my second colonoscopy yesterday and well I am flaring. I had surgery last year but they did not remove everything, they left a spot in my small intestine which made me flare. The GI offered me the Remicade treatment flat out. Thing is I am SCARED of remicade. I know that many of you are...
  12. Scifimom

    Scifimom Hello

    Hi I am scifimom and I am Greek I live in the vice capital of Greece Thessaloniki and I am 36 years old. I am married and have two chldren one girl who is 10 y.o. and one girls who is 7 y.o. In July 2009 I went to the ER with what I thought was my appendix. The dctor confirmed and the scheduled...
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