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  1. J

    Osteoporosis medications

    Hi - I am a 50 yr old, female with Crohn's. Diagnosed 12 years ago. I was recently diagnosed with osteoporosis (spine T-score -2.7; left hip -2.1; right hip -2.6). I took prednisone for Crohn's disease when first diagnosed. I take calcium supplements, but do not consume much calcium. My Crohn's...
  2. J

    Looking for guidance on what I should be eating before surgery

    Hi all - I have resection surgery scheduled for a month from now to take out part of my small intestine. (Not sure yet how much. At least 10 centimetres is inflamed). I recently had an abscess and was hospitalized. I am on parental nutrition to gain weight and optimize nutrition before surgery...
  3. J

    Do you have a nurse help with packing after surgery? United States

    Hi all - My brother just had his third surgery for a perianal abscess and was sent home with instructions for how to do the packing. He is anxious about the pain and doing the packing properly. My question is, have any of you who are in the United States, had a visiting nurse do the initial...
  4. J

    Prometheus - What has your insurance paid for the test?

    Hi all - If you had the Prometheus Anser IFX test done and health insurance paid for the Prometheus Anser IFX test, can you share with me what amount your health insurance paid? I had the Anser IFX test done. Prometheus charged my health insurance $2,500. Since my health insurance...
  5. J

    Looking for advice about abscess

    Hi all - I'm looking for advice. On Nov 21 I had an MRI performed on me and I was found to have an abscess. Also found to have a "hemorrhagic cyst involving the right ovary. Trace physiologic pelvic fluid." To treat the abscess I was started on oral Levaquin and Flagyl. I finished a three...
  6. J

    Pain - go to ER?

    Hi all - 2 nights ago I had severe abdominal pain - sweating profusely, lying on the floor, weak. In retrospect I should have gone to the ER. Yesterday I woke up and it felt like I had done 100 sit ups. I called my doctor and left a message describing my symptoms. No work back from him...
  7. J

    Choice of Humira vs Remicade - I hate needles!

    Hi all - I recently had an MRI done and my GI doctor strongly suggests that I move up to a biologic - either Humira or Remicade. He seemed to suggest that Remicade may work better because it is an infusion, but that it is very inconvenient (Can't self-dose). I am trying to decide between the...
  8. J

    Upper and pain and burping - flare?

    Hi all - I'm having a really rough week. For the past two weeks I've had pain in my upper abdomin accompanied by burping. The burping relieves the pressure stemporarily. The pain usually doesn't start until the afternoon although today it was on and off throughout the day. I also have two...
  9. J

    Anyone see Dr. James Lewis in Philly?

    Hi all - Do any of you see Dr. Jim Lewis in Philadelphia? I currently see a doctor at Penn and am not thrilled with his bedside manner. I'd like to stay within the same medical system so that I don't have to switch medical files. I saw that Dr. Lewis is on the board of CCFA. I thought he...
  10. J

    Low absolute lymphocytes and monocytes count

    I have been on 6mp for over a year. I was getting blood work done regularly but in the past 4 months haven't gotten any done because my doc didn't request any. Last week I needed a new prescription and he requested I get blood work done. The results show really low absolute lymphoytes and...
  11. J

    Low-Fodmaps diet (similar to Specific Carbohydrate diet)

    low-Fodmaps diet (similar to Specific Carbohydrate diet) I read this article in the Wall Street Journal about a low-Fodmaps diet. The theory behind the diet is that people with IBS have trouble absorbing some carbohydrates in the small intestine. Large molecules of these food then travel to...
  12. J

    Gut Bacteria Sequence and Social Network

    Gut bacteria and probiotics seem to be a major line of thinking in recent Crohn's research. Today I read about MyMicrobes (see below) a program where you can get your gut bacteria sequenced and then participate in a social network to discuss symptoms and remedies. This is too expensive for me...
  13. J

    What does remission feel like?

    Hi all - For those of you who have achieved remission what does it feel like? Do you still have symptoms? If you do have symptoms are they less severe than when you are flaring? I see my GI doctor today and based on my last visit I feel like he may say I am in remission, but I'm not sure I...
  14. J

    Question about blood tests

    Hi all - I could use some help understanding the blood tests my doctor ordered. Specifically I want to know if the inflammation I have has gone down. I know that C Reative Protein and Sedimentation Rate are two ways to measure this, but I don't know if they are being measured. My doctor has...
  15. J

    Abdominal pain dx not as crohns but reflux; now what?

    abdominal pain dx not as crohns but reflux; now what? Hi all - Yesterday I went to see my GI because I had had 4 moderate to severe episodes of upper abdominal pain with vomiting over the past three months (2 times in Dec, 2 times in February). Based on my description of the pain (upper...
  16. J

    Suggestions for treating abdominal pain?

    Hi all - What type of home remedies do you all suggest for abdominal pain? Yesterday I had abdominal pain that built up as the day progressed. I ate yogurt and honey, tea, a small cup of soup and nothing else because I was afraid my stomach would not be able to handle it. By the late...
  17. J

    Wishing I had a parasite

    Hi all - This is my story. Since approximately 2006 I have had 2-3 urgent bm every morning and the bm were a little strange. I chalked it up to a change in hormones (getting older, just had my second child) and maybe my coffee was too strong. The bm urgency didn't interfere with my day...
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