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    Treating Crohn's with Figure Skating

    Sounds crazy? Well I'm not on any meds. I maintain somewhat stable remission, despite moderate to severe Crohn's, with diet. I started figure skating to reconnect with my body, after feeling so disassociated with the physical world (after 3 years of constant flaring!) It's been an amazing...
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    Crohn's & Leukemia

    Some of you who have read my thread on holistics know that I have been off of medicine for nearly a year now. However I had been treated with 6MP, and subsequently taken off of it for an acute and immediate reaction. I was on it for around three months. My labs showed a reaction that the GI...
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    Symptoms but no symptoms.. help?

    Hey guys! I've been in what I consider to be a refreshing remission for nearly a month now. I've not really been doing anything counter to my health so what I'm wondering is: Could there be active inflammation and a flare going on EVEN if I am not having D, and am pretty regular. I'm asking...
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    Hallucinations and Benadryl

    Hey guys! Just came to mind, any of you experience this too? I get hives when I receive blood so I'm always pre-medicated with IV Benadryl, at a child's dose (as I've been treated at Children's Hospital). It causes hallucinations, paranoia, and basically that feeling before you fall asleep from...
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    Please Help! Entocort/Panic Attacks

    Anyone on or have ever been on Entocort and experienced panic attacks, anxiety, depression - or noted an increase in these symptoms while taking the drug? I have never had mental issues with this disease before but I can tell you that since taking the drug in the past two weeks I've had...
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    Update on the Holistic Route

    Some of you know that I gave up the med rollercoaster over a month ago. Now that this phase has progressed a little further, I thought I'd share my story with this alternative. I was on the typical list of Crohn's meds, and a month ago or so had been heading for the stronger meds with more...
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    Pittsburgh Crohnies

    Hey guys! If you're in Pittsburgh and you want to come out and support, there will be a CCFA Fundraiser at the Mt. Washington Senior Center from 1pm-4pm this Sunday, the 23rd. Guest speakers (including me!), lots of activities for kids and adults, dinner included with 8 dollar door fee. (If...
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    What's Worse?

    In talking to a lot of other Crohn's patients around the forum and about, and in considering my own experiences - I became interested in the commonality: It seems that many describe their feelings at the time of diagnosis as 'relieved'. I would as well for the same reasons; people now know I am...
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    I hope you will help, guys!

    My friend is hosting a CCFA awareness fundraiser and she is compiling a book of interviews with Crohn's patience, and she needs a few more. I told her the people on this forum are so lovely they'd certainly help. You may remain anonymous. THANKS. :) Have you ever heard of Crohn’s Disease...
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    Back! And on Ensure.

    Haven't been on here in a while, had a recent colonosopy/EGD - 6MP cleared the disease except for about 20%! Unforuntately, had to stop all Crohn's meds when two days ago I was rushed to the ER with plummeting blood pressure and skyrocketing heart rate. Diagnosis was 6MP caused severe aenemia...
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    6MP Toxicity

    Well my levels are showing liver toxicity from the 6MP, so my doc lowered the dosage and threw in a new med, Allopurinol, a gout pill. It will help with my kidney stones too. Talked to the doc and wanted to know how concerned she was about 6MP and future fertility, and she replied to my...
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    Ankle Swelling

    Hey guys, I am wondering if anyone else notices severe and painful swelling in the ankle joints and feet while on 6MP? My meds are listed in my signature... I am hoping this isn't an adverse reaction to the 6MP. Feedback?
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    CCFA Fundraiser Day

    Here in my local chapter a girl from my school is hosting a Crohn's fundraiser dinner - and she recently discovered I have it (her father has it and she is showing signs too), and asked me to be a guest speaker! I'm excited to share my story and a lot of the things I've learned from you all...
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    How to combat fatigue

    I know this could belong in the Treatment section, but I also think it's a general symptom that comes with Crohn's, so... PLEASE tell me that this fatigue will get better. I am on 6MP and there is definitely a noticeable difference between fatigue and medication fatigue... and I am not liking...
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    Difference between stricture and fissure

    Hey guys, I would really appreciate it if you could help explain this... On this forum I've been reading a lot about anal fissures and strictures and hemmies, but I've never experienced any of that - so I can't really relate. However around the anal area lately I've been having some tenderness...
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    Back to Pred?

    Well, been having pain for a few weeks now as the steroid dosage drifts down from 40 to now 5mg... but not until TODAY did I have two episodes of D. Had to call the doc and she wants me tested for c.diff, and if negative, she's bumping me back to 40mg of pred. I'm a bit disappointed, I've been...
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    Kidney stones during flares

    Just got back from the hospital, I was rushed by ambulance Monday morning for the WORST gut pain and flank pain I have ever experienced, seriously - I lost conciousness a few times, vomiting quite a bit. They thought the worst with me having such a history with Crohn's, so of course there were...
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    Relapsing

    Now that I've returned to school everything familiar about this past year long flare up is returning, and the meds suddenly aren't enough. The pain brings me right back to August, in the heat of the flare. It's depressing me. When will it end! I just want to feel good. So much going on in my...
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    Voltaren Gel

    Just wondering if your docs let you use this stuff. I have terrible joint pain and my GI says this is fine to use. It is an NSAID but is absorbed through the skin and so a lot of docs allow it for Crohn's patients. I hear a lot do not, however. Unfortunately, it doesn't do much for me! Tylenol...
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    Pred Withdrawal

    Well I've been tapering the Prednisone now for a bit, from 40mg to 25mg. I am on 6MP as well because I'm apparently steroid dependent. Which brings me to my question! Anyone else getting violent shakes after a certain amount of tapering? This week, once I'd been down to 25mg for a few doses, I...
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