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  1. J

    What is crohns colitis ?? and pseudo obstructions

    not separately mind I've been told I may have crohns colitis now I'm so confused !!!! I have to have another colonoscopy urgently ha that will be next year sometime ! my stool crp is 391 my bloods ok at the mo I'm told I may be having pseudo obstructions , ok so this is not what I expected ...
  2. J

    Anyone taking beta blockers ( propanol )

    Hi I've been having problems with my heart racing constantly , even though I'm on sooooo much medication it should be non existent lol So my gp yesterday put me on beta blockers called propanol 40mg to take once a day or twice a day if that doesn't help . She said it won't affect my other meds...
  3. J

    Sleeping pills ?

    Hi all So I'm still in a rough flare but the pred is doing it's job I think , I've felt soooo much better on pred energy an depression wise but the pain a D still remain , along with now oral thrush ,bad back and I can't sleep lol So the doc gave me tamazepam for 10 days they were great but I...
  4. J

    Feeling almost 100% on pred , gutting it won't last .

    Hey all So I've been back on prednisone 3 weeks at 60 mg going down 10mg per week from saturday coming . I've felt awesome on pred as I did last time but that was only 40mg . I know as I reduce my problems start coming back twice as bad :( but for now I feel great ! I'm still having pain and...
  5. J

    Looking for a crohns friend in south wales Cwmbran area x

    Hey all Well I've had a really bad 2 weeks :( Ended up in a an e last week by ambulance with a bad flair up , I escaped a day later an they forgot to prescribe my steroids so I left it WHOOPSIE lol I've ended up at the doctors mon tues an yesterday in agony begging for help but no gp would...
  6. J

    On top of crohns , I go an have a full on seizure in the middle of asda !!! Help

    So shopping on sat was lovely !! Last shop was asda an I was feeling kinda clammy/cold sweat type of thing but fine . The next thing I know I wake up on the floor surrounded by ppl helping me and paramedics !!! Not forgetting my husband an kids !!!! I was so scared an can't remember a thing...
  7. J

    Do us crohnies have issues with paracetamol/Tylenol ?

    No I'm not talking about NSAID just general paracetamol , I seem to have bad pains an D when I take them !! Any1 else ?
  8. J

    Partial bowel obstruction or just crohns related ?

    Hey all I'm having alot of cramping pain around my belly button area I do usually get pain around this area anyway . I've actually been quite bad the last week or 2 not being able to keep food down because it really hurts then I had bad diarrhoea which is also normal for me but since I'm on...
  9. J

    Is it selfish to not want to be here anymore ?

    The title says it all ! Its not like me to feel like this , but I feel everyone and everything would be easier without me . I spoil everything , I'm constantly ill , if I end up in hospital I'm told I only went for a holiday ! Are you having a laugh ! My new gi was awesome , but I know in time...
  10. J

    Finally saw my new gi today! Questions about fecal calprotectin?

    Well it took long enough (6 months) ! But I saw my new gi today and he was amazing !!! I'm sooooo glad I switched ! He explained everything to me properly for a change and is sending me for an MRI to check for more strictures and to see what to do with them . Also I've got another stool sample...
  11. J

    Not copeing very well , I don't know where to turn .

    I still feel awful , I had a 3 unit blood transfusion last week an still I don't seem to be any better . I feel so ill for some reason , I've got bad abdominal pain bad diarrhoea , pain all over my joints and my muscles keep cramping an getting stuck ( really painful but only for 30 seconds or...
  12. J

    Had blood transfusion an saw my new gi . Yes!!!!!

    Well I'm out of the hospital :) I had 3 units of blood (3 bags) an feel soooo much better for it ! It hasn't helped my flare but has given me much needed energy to cope with it . I seriously thought I was gonna drop dead before any 1 realised how ill I was lol So I saw an on call gi an he...
  13. J

    Sent straight to hospital for a blood transfusion :(

    Well I had my bloods done thurs , coz I'd been rough for the past few weeks an the gp said I was pale. I got a call this morning saying my bloods were back I need to see the gp today ! So I went down by 9:30 am an hey presto got landed in hospital needing a blood transfusion . I need 3 units of...
  14. J

    Gp visit today :(

    So went to my gp today for a check on my cervix to see why I have abnormal bleeding ...... She found some problems areas an this is where the bleeding is likely to be coming from ,so not the steroids like I thought :(. Im being sent for laser treatment to remove the problem areas plus obviously...
  15. J

    Is bypassing the intestine the only answer?

    Back on the subject of diarrhoea!! This is a big problem for me , an has been my main symptom for 8 yrs . Lately though I live by the loo ! I say lately I actually mean the last 2 years ! I've tried every pill an powder going an find the only thing that slows it down is opiate based meds (...
  16. J

    Feeling like s*** again !!

    I'm so fed up : ( I'm still in a flare ! I'm on 25 mg pred an 9 mg budesonide so I should b feeling better but no. I've managed to add to that ... Thrush both ends plus ulcers in my mouth an been continuously bleeding ( period) since September !!! Awaiting tests for this now . And now I have...
  17. J

    Sat in my hotel room at 3 am . Guess what bad belly !!!!

    Oh well I'm a bit p****d off! Were in London for a friends wedding blessing / 1 year anniversary , an I had a couple of vodkas an cokes , I'm not even tipsy , had a really good time , ate well an had a dance lol Now it's 3 am an I'm led in bed in pain with the dreaded D!!! I knew I was...
  18. J

    In hospital again, help!

    As u can see by my title yep I'm in hospital again!!!! For some reason I just can't cope with crohns ! They've admitted me I've been here since yesterday afternoon , admitted through out of hrs gp again . They've put me on iv hydrocortisone 50mg 4x a day plus all my usual meds ( see below)...
  19. J

    May have a new gi fingers crossed x

    Well I finally bit the bullet and asked for areferal to a new gi!! He has offered for me to be reffered to him but for some reason no one had bothered to do it ! I saw my gp an explained the situation with my gi an how I'm getting no where an that I can't live like this etc and she has written...
  20. J

    Update and changed meds

    I still haven't been well since last Monday and eventually spoke to my gi secretary on fri told to up steroids ( budesonide ) and start pentasa. Still bad all weekend etc Held of from gp till today when enough was enough sat at home crying in pain and exhausted was getting me nowhere ...
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