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  1. H

    Anyone having trouble with Convatec Combihesive?

    So have been using it (moldable) for a few years - was great till now. But in past few months, bag often comes loose from the base - has happened to me 6 times now - several in public :-( Anyone else encountered this? I wonder if a fault in a manufacturing batch.
  2. H

    Stoma prolapse anyone?

    Any updates from anyone dealing or dealt with a stoma prolapse (ileostomy?) Seems different surgeons have different techniques how to fix this. I am looking for a method that works. Thanks all.
  3. H

    Swallowed Capsules coming out in bag?

    I notice that capsules I swallow come out whole. It seems it only happens to some of the vegetarian caps. Pharmacist I asks explains that they are supposed to open only in neutral environment, and that usually happens at end of the ileum. Anyone else notice this?
  4. H

    Stoma Appliance Belt?

    Do all of you wear the stoma belts that clip on the bag? If so, do you wear it at night too? Do you find it helps or is essential? Thanks hopeful
  5. H

    New Article about Interesting Crohn's Treatment

    New Article about Interesting Crohn's Treatment - IVIG - Intravenous Immunoglobulin This is a new review article on immunoglobulins for treating Crohn's. Has anyone here ever tried it? http://www.sciencedirect.com/science/article/pii/S1568997212000961
  6. H

    Tingling in Hands, Legs, Feet, Mouth

    A few months after my ileostomy surgery I got an attack of tingling (pins/needles) in handsm legs, face etc - felt dreadful for a few hours. Then it passed. Since then I have had such "attacks" every couple of months, but now have had it the second time in one month. My B12 levels are ok. Anyone...
  7. H

    Bags Blow Outs at Night?

    How many of us have experienced blow-outs at night? If so, how does it affect our sleep? I have experienced several over the past few months, and I am afraid to sleep too long - so I drink a few cups of water each time I wake to empty the bag to make sure I don't oversleep.
  8. H

    Hair Removal on back end

    My back end is sewn up. A sinus tract has developed. Hair keeps on growing in there and clogging it up. Anyone have any tips for EFFECTIVE permanent hair removal down there? Thanks all. hopeful
  9. H

    Eakin Seals Anyone?

    Anyone experienced with using the Eakin seals? I am trying them. I am having a very difficult time applying them and molding them around my stoma. Convatec's video makes it look so easy. But they are working on a plastic model, not a human body. Should fingers be moistened? Any tips? Thanks...
  10. H

    Ileostomates - Stoma Length?

    I am trying to figure out how much I will gain from stoma revision surgery. So, a few questions for fellow ileostomates: How far out does your stoma extend (approximately)? How often do you need to change your appliance? (and which appliance do you use) Thanks everyone Hopeful
  11. H

    Elevated uric acid and ileostomy?

    Sorry - double post
  12. H

    Anyonone had Stoma Revision Surgery?

    Has anyone had stoma revision surgery done to make the stoma protrude more? (I don't mean where the stoma is placed at a different site). If so, was it done with local or general anasthetic? How long was the hospitalization? I am having a difficult time with mine and two stoma nurses have...
  13. H

    Hollister Question

    I am using Hollister Conform 2 Flexwear Skin Barrier (with border) for an ileostomy. Two issues come up. 1. The edges stick fine when put on, but tend to partially peel off when showering. How can one contemplate swimming when it doesn't even stay stuck in the shower? 2. after one day of...
  14. H

    Ileostomy and elevated Uric Acid?

    Anyone experienced elevated uric acid levels? I am about 6 weeks post surgery, and uric acid is climbing all the time. I have read that it happens in about 15% of ileostomy cases - any idea what to do about it from a dietary perspective?? Thanks everyone, hopeful
  15. H

    Cognitive Therapy for Crohn's - Which is Best?

    Being that Crohn's has long been considered a psychosomatic disease or a diseases with psychosomatic elements, different cognitive therapies should be helpful. What have you found to be the best cognitive treatment method? Personally I have found hypnosis to be very helpful, but I know there...
  16. H

    Granuloma next to stoma

    Anyone have any experience with a granuloma forming adjacent to the stoma? I seem to have one in the area where the stitches are. Its only on one side, but it is quite painful. I have read that they are treated with silver nitrate sticks. Anyone have any experience? Thanks
  17. H

    Ileostomy - how to slow down output?

    Well, its just 17 days post surgery. But i am having to empty bag every 1 - 2 hours at night, and plenty in the day. Very liquidy. Imodium doesn't do too much. Any tips? Is this normal at the beginning? Does it begin slowing down? I have been eating some rice porridge today in the hope of...
  18. H

    Post Ileostomy Surgery - Help Please

    Had the surgery on July 29th - 10 days ago. Taken out all of colon, rectum, and part of the ileum. Was send home on Thursday. Quite depressed right now. Some of the staples got infected - small abscesses formed - painful. I have a dreadful pain under my ribcage - below my right rib in the...
  19. H

    Post Ileostomy Surgery - Questions

    I just had a total colectomy with permanent ileostomy on Wednesday - 4 days ago. Backside sewed closed. The bowels began moving yesterday. Lots of colicky pain, trapped gas etc. Can anyone guide me on how long this gas pain lasts, best meds for it, and what best to do in terms of food? Thanks...
  20. H

    Berberine - Anyone used it?

    Prefer to know if it was berberine sulfate or berberine chloride rather than the plants like goldenseal or oregon grape ruit which are not pure berberine. Did it help you? or did it harm you? Thanks! hopeful
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