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  1. J

    Ostomy supplies with extra large cut size?

    This year my Crohn's has decided to start developing fistulas, and now I have several draining fistulas in the area around my ileostomy that I am dealing with. They are too close to use separate pouches to get drainage from them, but too far apart to fit in most bags. I just got a sample of...
  2. J

    PEG tube contents turning blue/green?

    I've had a PEG tube for a little over 2 years. I just had mine replaced last week due to a hole developing. The new one is working fine, but yesterday when I woke up I noticed that the contents of the PEG tube had changed from clear to a blue/green color. The same thing happened this morning...
  3. J

    Syringe won't stay in tube while flushing

    This just started happening either today or yesterday. Basically, when flushing my peg tube, the syringe won't stay in. I have to hold both it and my peg tube to prevent it from coming out, all while trying to flush. Needless to say it's a two hand job. For some reason, something is causing it...
  4. J

    White spot on stoma

    I noticed, maybe a week ago as I was changing my bag, that there's a small white patch on my stoma. It's 0.5 cm to 1 cm diameter, and it's almost at the very tip of the stoma, where output comes out, just a little bit below that point. I noticed it taking off the pouch to put the new one on...
  5. J

    Leaking but can't find from where...

    I've had this problem a few times over the past few weeks or so. Basically, I believe this only happens when my bag is pretty full, I notice a stain that is on my shirt right over the stoma area. Go to the bathroom, empty the bag, look for where it's leaking. The seal is fine, the bag (I have a...
  6. J

    Airport full body scans

    Has anyone had one of these since having a stoma? I just flew out to Florida with my parents today (yay!!!) and had my first experience with the new scanners. Wouldn't you know it, they picked up "stuff" in my belly area. The guy was nice about it, asked what I had going on there. I said...
  7. J

    Not eating equals a lot of gas?

    I haven't been feeling the best lately. Lots of nausea, lack of appetite, and then when I get hungry I feel nauseous when I eat. :( I've noticed more gas since I've been eating less. Not just a little, but a lot. It seems like (I noticed this before, when I would first eat breakfast) that...
  8. J

    No rectal stump poop?

    Hello! So since my surgery late January, I've not really had any real bowel movements. The month after surgery I had a couple very small, very runny BMs. I've tried a few times since then but can't get anything out. I feel like I have to go but can't get anything. Should I be worried? Thought...
  9. J

    Output coming out through the side?

    Hi, my ileostomy is still pretty new, just under 2 months. I'm trying out different samples, and put on a new one yesterday. Within a few hours, a little to the right of the stoma some stool had gotten just under the seal, and a few hours later a little to the left as well. I just thought I...
  10. J

    Colectomy with ileostomy

    Hello! I am scheduled to have surgery on January 26, with a total colectomy and ileostomy. My whole rectum has problems, but the surgeon does not want to remove the whole thing. First, he says removing the whole thing would require pelvic surgery in addition to the abdominal surgery, so he wants...
  11. J

    NG tube

    Hello, I started an NG tube for overnight feedings to prevent further weight loss, and get more nutrition and gain some weight instead. I started two weeks ago, and spent two nights in the hospital. First insertion was the nurse, second was me, and I have been removing in the morning and...
  12. J

    Charity Website (requires almost no effort, and no money from you!!!)

    My mom read about this website in the newspaper recently, Good Search. There are a few things to this website. First is their search engine, which uses Yahoo, each search you make gets $0.01 donated to charity. Second, they have restaurants that donate a percent (I believe it varies by...
  13. J

    Scope biopsy results?

    So I just got lab results on my hospital's website, thought it was the one checking for the J. C. Virus for the Tysabri, but apparently it's scope biopsy results lol. It's dated 5/27/11, and from my old doctor's office, and my scope at the new office wasn't til July, so I guess they examined old...
  14. J

    Scope results

    So I had both a colonoscopy and upper endoscopy, both with biopsy, today. Prep yesterday wasn't too bad, my drink tasted fine (Miralax and Gatorade), but the combo of lots of liquid plus bad nausea lately made it hard to get the last part down. Started bathroom breaks an hour after taking my...
  15. J

    MRI tomorrow

    Have an MRI of the small intestine and bone density text (DEXA scan) tomorrow. Just wondering how quickly they get results from the MRI? The DEXA scan too I guess lol thanks!
  16. J

    Reaction after 9 months?

    I've been taking Humira since September, every other week. Added 25 mg Methotrexate once a week in January, which I stopped in April. 2 weeks ago did 2 Humira shots and started doing it weekly, and also started Methotrexate up, but only at 7.5 mg once a week. I do my shots on Tuesdays, and...
  17. J

    Travelling

    In a few weeks I'm going from Ohio to Myrtle Beach for vacation :) Not sure the travel time, estimating 10 hours or so? The little travel pack that came with the Humira is used for a "few hours," so this is definitely too long. How would you recommend travelling? Also, should I bring my sharps...
  18. J

    Sings of a blockage?

    So I think I have a blockage, not sure though... Ok so first off I have really bad constipation, which I take Miralax and Colace daily for, which makes my poop mush. This is the only way I can poop. If I don't take them, I can go over a week without pooping. Still get the urge and push as hard...
  19. J

    Difficulty passing gas...

    Does anyone else experience this? This past month or two I have gotten really bad gas: lots of it, painful while working its way out, very loud, and very stinky. So very hard to pass in public lol. In the past few weeks, though, it went from really easy to pass to nearly impossible to pass. I...
  20. J

    Enemas

    sure are fun! After doing steroid suppositories for 2 weeks, I have now moved on to steroid enemas! It wasn't very painful, just kinda weird. Close to 2 hours and still got it in! Go me! Lol now let's just hope it works and inflammation goes away so my constipation gets better!
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