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  1. S

    Restarting Humira Today & A Bit Nervous

    The shipment of my starter kit of who knows how many agonzing injections should be delivered today. (Well, I'm being a bit dramatic.) I was previously on humira for 1 or 2 years, then had a surgery and have not restarted it until now given the inflammation found in whats left of my ileum...
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    Anyone re-start Humira after being off of it?

    Hi I'm about to start humira again. I was on it for about 1 year, stopped it 1.5 years ago, and am about to start it again. I think I recall reading that there can be problems going back on it, so I'd like to hear if anyone here has done so. Thanks!
  3. S

    Colonoscpy report - how bad is it?

    colonoscpy report - how bad is it? had a rt side hemicolectomy last year. just got home from followup colonscopy - which reads "inflammation in the ileum. It was edematous, erosive, erythematous and moderately severe." I take it this is not good - what do all these terms mean?
  4. S

    1-yr post resection colonoscopy tomorrow!

    Hi Just posting as I'm home bored with no one to talk to about it. But I"m getting a colonoscopy tomorrow I'm a bit nervous. I had a resection maybe 16 months ago, 12 months ago they did a followup colonoscopy saw some inflammation returning. I haven't been taking meds for some time now...
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    Can crohns pain be felt back where your right kidney is?

    Let me try this post again - the pain eminates from the flank, so I can reach my hand around to by side/back and that is where I'll feel the pain, though deep. the whole flank can start to hurt. I get that this is where your kidney is, but, I don't think its that far from where I had the ic...
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    Anyone have pain like this?

    So I'm one year post-op (ileocecal resection). I am getting occasional pains a bit more now that used to. It feels like it is deep inside, but more towards the back - so when it comes on I would put my hand just above my hip, right side (like a pregnant women holding her back), where there...
  7. S

    Sudden new symptoms day before vacation - help!

    So I am literally leaving tomorrow for my first real vacation in like 6 years. And i woke up with sudden nausea all day, threw up once, D, and I cannot really walk around without feeling more nauseous so I'm stuck on the couch feeling gross. And I feel so thirsty. Stomach lots of gurgeling...
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    What Qualifies as a "B12 Deficiency" Suggesting Treatment?

    My B12 is 246, on a scale of 211 to 911. So I read that as low. Should I seek treatment? Should I ask for shots or do oral supplements work? (I did have my terminal ileum removed last year.) Love to hear people's experience on this and whether it worked. And wheher it made you feel better...
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    Too many pills! (Vent, & Question on b12)

    I take so many pills, it takes a lot of time and energy (a rather limited resource) out of my day to stay on top of it all. I'm single and busy at work and have too little time and can't seem to get anywhere in my personal life and can't help but feel like why would someone want to be with me...
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    Self-taporing off entocort - any advice?

    I'm going to immeidately start weaning myself off entocort. I've concluded that, despite its sucess, it has caused my hair loss and has other side effects that are known to be from steriods. So, even though research does not reveal this to be a result of the entocort, it makes sense to me that...
  11. S

    Can Entocort Cause Hairloss?

    Anyone know? isn't it a steriod and can't it get in your system and do what steriods can do?
  12. S

    Questran anyone? Trying to decide on further treatment.

    So, one year post-resection, i've been managing with entocort for the past few months after having worsening symptoms. I have kind of continued to suffer with recurrent D, seems like its bile, burns, urgently etc... gross. I guess you can understand on this site though. It comes and goes. I'm...
  13. S

    Okay Chose Entocort, Refused Humira, for now

    So I just started entocort, I was in need of going back on something and then hit a flare this weekend which is slowly improving. I was told to go back on humira, but I am just scared of starting humira thinking that I'll be on it like forever and fearing some weird infection or something...
  14. S

    Help with this flare!

    help with this flare! i'm 8 months post hemicolectomy, recent mri shows returning inflammation. three nights ago i started the most severe bout of D I have ever had, and it is still going, really watery and urgent and frequnt and now yellow and burning. I got on some entocort so at least that...
  15. S

    Ascites?

    MRi showed "small ascites"... I've never heard of that coming from crohn's. Anyone else have that? What does it mean?
  16. S

    Cimzia versus Humira?

    Any thoughts on the differences between these two drugs, cimzia and humira? I've been advised to choose one. I've previously been on humira. Shouldn't I just go back to humira? what is this cimzia?
  17. S

    MRI shows return of inflammation following surgery

    Well I cannot say i'm surprised, I mean frankly I didn't need an MRI to tell me that cause how everything feels lately. But thats what it shows. I haven't seen the radiologist report yet but doc said he "took a look" at the MRI and it does indeed show "worsening inflammation." thats...
  18. S

    Getting MRI Tomorrow - Nervous

    first mri post hemicolectomy, tomorrow. so I'm nervous if they are to find new disease, I kind of think they will as I've had new pain in that area among other things. Though maybe it will be minor. Well just thought I'd share with someone.
  19. S

    How frequent do you get scanned? (CT/MR Enterography?)

    Just curious. Do you have physicians who order MRIs with any regularity to track your disease? I have had like 4 MRIs in the past 6 years or so. And I just received an order for another one - I'm post-op so I like to take a looksie but I know these are expensive on insurance...
  20. S

    Is Humira a long term maintenance drug? i've heard mixed

    is Humira a long term maintenance drug? i've heard mixed So i had been on humira until my hemicolectomy 8 months ago and have tried to remain medicine free since the surgery. But now i'm anemica and iron saturationw way low. and yes i have D and by the way - its foamy that's weird right? sorry...
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