• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    [Submitted] Parents with young IBD patients

    We have a very active Parents forum at crohnsforum. For young patients, who might not yet be able to express some of the complex symptoms or disease manifestations an older patient might be able to, could you suggest some particularly helpful observations that parents might keep in mind for the...
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    Coordinated Patient Care and the Surgical Management of Inflammatory Bowel Disease

    When it comes to treating Inflammatory Bowel Disease, the way a patient’s clinicians work together can lead to more effective care, according to Walter A. Koltun, M.D., Chief, Professor of Surgery and Peter and Marsha Carlino Chair in IBD, Penn State Hershey Medical Center, Hershey...
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    Long-Term SCD Success

    Long story short: I'm looking for some interesting discussion here, but mostly, I'm looking for a few endorsements from people who have had long-term success with the Specific Carbohydrate Diet. The rest of the story: I'm the kind of guy who's willing to put lots of effort into my diet. On a...
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    IBD Quality of Life

    "Quality of life" is a very subjective term and, for the purposes of this poll is open to as much interpretation as you like. For those of you who have IBD, would you consider your "Quality of life" Above Average, Average, or Below Average?
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    Prednisone to Entocort

    I've recently tapered from prednisone and started 9mg of Entocort in its place. For others who have done this in the past, did you notice a period of time when your body adjusts to the Entocort or it kicks in and does is thing? Boy, I hope. :(
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    Does prednisone lose its uummph?

    Just wondering if you find that pred doesn't help as much as it has helped you in the past? I have usually get the nervous energy, run in circles kind of reaction, but this time, I still have pain and I actually slept through the first night for the first time ever. thanks.
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    Pain Poll

    Do you believe that you have already experienced at some point in your life your "worst pains" associated with IBD, or do you believe that you have yet to experience them?
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    Flares and Depression

    For those of you who have IBD and depression, do you notice a depression cycle in conjunction with flares? Do you think it's perhaps brought on being sick, or maybe vitamin deficiencies from your flare? Thanks for your thoughts.
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    A Sponsor's Advice for a New IBD Patient

    I had a few things I was planning for the upcoming newsletter that didn't really come together as planned, so I hope we can pull together as a community here and do our own thing instead. The end goal I envisioned was a simple and useful guide for new IBD patients; something that can be taken...
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    Chutes and Ladders

    Ever play the board game Chutes and Ladders? It's a kids' game where you try to clime a series of ladders to be the first to the top of the game board, however, there are certain landings that have slides that set you back to a previous part of the board. When I first got diagnosed, I was all...
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    Poll: crohnsforum patients and your doctors

    I haven't been able to get a response that diesanduhr made in the "What Does crohnsforum Mean To You?" thread out of my mind. I'm interested to see what people's thoughts are. Do you think that the health professionals you see would benefit from the kind of "patient talk" that is prevalent...
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    What Does crohnsforum Mean To You?

    We're patients, parents, spouses, family members, and friends. We're healthy, ill, have questions, have answers, are confident in this, or frightened of that. We have long-time members and brand new ones joining us everyday. We talk diet, injections, symptoms, prescriptions, deficiencies...
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    Do you call your GI every time you flare?

    Do you call your GI every time you flare? I'm stuck somewhere between completely miserable and not wanting to go back on pred. One of those extremes will eventually win out, I suppose, but I was just curious whether others go to the doctor every flare or not?
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    The Motivating Factor

    I thought it might be good motivation for us all to see some of the hurdles we've overcome recently, whether small or monumental. I played drum set for a local school musical pit orchestra every night this week. Each session is between two and three hours and I really missed playing. I had a...
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    Anyone Read "The China Study"?

    So, I got a copy of "The China Study," by T Colin Campbell as a gift and recently read it. Without giving too much away, I was really enthralled with the book for a while, until I got through the auto-immune disease chapter, which I found doesn't line up with with other things I've read, here...
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    Seton - How Long?

    A question for those of you who have had a cutting seton... how long did you have it? How successful was it? I wasn't able to turn much up on the subject. Thanks.
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    Chemisty Experiment-Type Foods

    Now that I'm feeling better, I'm going to make a better effort to eat more home cooked food. I think I eat better, less-processed, kinds of things on average than many already, but I think I'm going to continue trying to cut out as much of the chemistry experiment-type foods as I can. Where I...
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    Do you feel guilty?

    I don't feel guilty that I'm sick or have a disease, but I often feel guilty about how my illness affects others. In fact, I push myself hard everyday to try to avoid that guilt. Sometimes I affect people's schedules or planned menu, sometimes I have to take time off work, sometimes I crash with...
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    Gardening with Crohn's

    Checking out all these recipes and reading more and more about chemicals, preservatives, and other food label junk, has further solidified my thoughts about starting up a garden this Spring. Anyone here have a garden with some good ideas for things that are easy-to-grow, but maybe friendly with...
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    Does your body "know" what you should eat?

    Especially for those of you who have a good understanding of the foods that work and don't work for you, I am curious if you also have strong feelings about certain foods on certain days? I flared a little more than a month ago and immediately returned to the low residue / low fiber diet I know...
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