• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. K

    For the Ladies (Menstrual)

    Before i had my colon removed my periods were getting heavier, but weren't that bad. I'm 34 years old by the way. Anyhow, after my colon was removed a year ago, my periods are very heavy for three days and I have bad cramps. I can't even make it through the night without bleeding through my...
  2. K

    Telling people for the first time

    I was wondering what everyone experienced whent they first told people that they were getting an ileostomy. Who did you tell? What was their reaction? Who in your life knows about it after you had surgery? Before my surgery, I told my husband (of course) children, parents, and two best friends...
  3. K

    The Itch

    I'm sure this topic is in here somewhere, but I figure I'll bring it up anyway. This summer, I have been sweating more. I use Holister. The cloth is much nicer to my skin than other products. The skin around the ring has been getting very itchy when I sweat. I've been using my powder and...
  4. K

    Less aware of the ileostomy

    It's been 5 months since I got my temporary ileostomy, and I must say that I am becoming less aware of the darn thing everyday. I get scoped at the end of August to see if I am ready to have it reversed. My doctor told me that many people put this off, because they are too busy living their...
  5. K

    Scoped for reversal

    I had a scope done yesterday to see if my rectum is healed enough for a ileostomy take down surgery. It has been 3 months since my colectomy surgery. My doc said that my rectum is ALOT better than before, but still has mild inflamation. He thinks that in 3 more months it will be healed and ready...
  6. K

    Underwear etc......

    Now that the swelling is starting to go down in my abdomen, I'm starting to look for clothes that work well with my ileostomy. I can wear some of the jeans I wore before, but some are too tight because my stomach is still sensitive. I bought "boy cut" short style underwear and they work great to...
  7. K

    Maybe UC instead of Crohn's? What?

    I have had Crohn's disease for 14 years. I was told I had Crohn's when I was diagnosed 12 years ago. So, today I went to my follow up appointment with my surgeon. (I had a total colectomy with a temporary ileostomy on Feb. 15 2011.) From my history and the pathology report done on my colon, my...
  8. K

    New Ileostomy

    I just got my Ileostomy on Feb. 15th. It is supposed to be temporary. Maybe 6 months. There is always that chance it could be permanent, so I think my emotions are up and down with that idea. Especially when I have a messy accident. Then I cry and say to myself that I can't believe I have to...
  9. K

    Meds don't work, so surgery. Then what?

    So, I exhaused all of my medication options and have to have my large intestine removed now. My pre-surgery colonoscopy showed that now my rectum and ileum is inflamed, so now I have to have a temporary ileostomy. My question is, when (not if) my crohn's comes back, lets say it comes back in my...
  10. K

    Ileostomy and returning to work

    Hello, I'm new to this forum, but I have had Crohn's for 14 years. I'm facing my first surgery in two weeks. They are going to remove my large intestine and hook up my small intestine to my rectum. I just had a colonoscopy that showed some inflamation in my rectum, so I'm afraid I will have to...
  11. K

    Hi

    I am 33 years old and a married mother of two boys who are 14 and 11. I was officially diagnosed with Crohn's disease in 2000, (It was in my small and large intestine)but I have had it since 1996 after the birth of my first son.(was not properly diagnosed in 96) In 2000 I was put on prednisone...
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