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  1. slightlysilly

    Adding to the List of Things to Bring for Surgery!

    I just got out of the hospital last night. I had an ileocolectomy. I was obsessed with what to bring beforehand and now I bring you my list of things that made me happy! 1. Pajamas! I brought two pairs of button down flannel pajamas. When I woke up on day two a nurse came in with a pail...
  2. slightlysilly

    Hosptial Stay List of MUST HAVES?

    I was looking for a thread on this, and I couldn't find one, and if there is one that I'm missing, please post it for me in the reply thread. I'm trying to make my hospital as comfortable and fun as I can... what are some of the MUST HAVE things I need for my hospital stay? (It is supposed to...
  3. slightlysilly

    Ileocolectomy Hospital Stay Length

    To those who have had an Ileocolectomy (not emergency). How long was your hospital stay? My surgeon is saying three days with the most optomistic being the day after surgery. But I can't find anyone online or otherwise, who got out of the hospital before five days. Anyone!?
  4. slightlysilly

    Question For Those Who Had Bowel Resection Complications...

    I'm looking at having a resection done probably in the fall. I am on Humira now, but my labs keep coming back with high levels of inflamation. My doctor will do a colonoscopy in a month (after I try another antibiotic and get off of entocort) but he said he would really like for me to have a...
  5. slightlysilly

    Joint Pain Cured by Remicade?

    Hi everyone! I haven't been here in a million years... I hit remission back in October and have been doing well... until the Monday before last. I started having wild nasty joint pain... I took two tramadols, two tylenol pms and an ambien every night just to get a little sleep. I could...
  6. slightlysilly

    This Eating to Stay Alive Thing Is A Scam!!!

    I am so done with food!! I've been drinking Ensures as much as I can but the minute I put some normal food in my mouth, there's problems... I'm thinking I can just live the rest of life on just liquids and not have to take a freaking Vicodin when I want to have... like... lunch... Ok, vent...
  7. slightlysilly

    Going the Ensure Only Route?

    Food in general has been a problem for me lately. Any kind of food except liquid seems to go right by two pretty painful spots but liquid seems to go through pretty well. I got clearance from my doctor that I can do a modified liquid only type of diet. I can't seem to put food through me that...
  8. slightlysilly

    Side Effect Question...

    Can someone look at the list of drugs below and tell me which one is making my hair fall out? Thanks much!
  9. slightlysilly

    Update on the Prednisone Taper...

    So so so sorry I am not able to get on the board for much more than a moment or two to check... I have a bit of time now, and wanted to let people know of the situation I find myself in due to a "too fast" prednisone taper. I started tapering off 5mg at a time down from 20mg each week... So...
  10. slightlysilly

    Crohn's Disease and Celiac Disease

    Does anyone have both? I had an upper endoscopy done today and there were folds and scallops indicative of celiac disease. Im going to have a celiac work up done along with some gallbladder tests. Another cool thing is im going to get that small camera endoscopy thing that you swallow like a...
  11. slightlysilly

    Dependent on tramadol for pain relief

    ...without pain meds... I was just curious as to how much pain I was actually in... I just took a tramadol and two tylenols and I'm happy in about 45 minutes... I won't ever ever ever ever do that again.... relieved but a little sad that I'm dependent. :grumpy:
  12. slightlysilly

    Low cortisol levels?

    low cortisol levels? I called my GI on Wednesday because I had some cold symptoms and MIND NUMBING fatigue. I mean I spent a week as a total dope. They told me to make an appointment with my GP. So I went to see my GP yesterday. I told her about ending prednisone on monday. She ordered...
  13. slightlysilly

    When To Call The Doctor...

    Here's the situation... I had my last 5mgs of prednisone yesterday... so no prednisone today... for the list of meds I'm currently on.. see below.. Today I feel like my feet are made of cement blocks... I am having trouble staying awake (like falling asleep at the desk trouble)... I "think"...
  14. slightlysilly

    Weaning off Prednisone...

    My GI is having me wean off prednisone 5mg per week until i'm done. I am now down to 5mg per day and today and yesterday have been interesting... i'm winded doing the simplest of activates and just jumbly with thoughts. I get out of breath very easily. My stomach is hurting especially after...
  15. slightlysilly

    Trouble with LOSING weight?

    Am I the only overweight crohn's patient on the planet? I am right around 50lbs overweight. I've always been a big girl, but the weight from having my son (7 years ago) just never came off. I was diagnosed in November. This past appt, I asked my GI doctor about the weight and he just...
  16. slightlysilly

    Prednisone decrease question...

    I was on 20mg of pred for about 2 months while I got situated with Remicade. I had my third remicade treatment last Monday and lowered the dosage of prednisone to 15mg the next day. Remicade made me crazy tired on Monday and this past week, I haven't been feeling all that wonderful... draggy...
  17. slightlysilly

    I'm New and My Story...

    I'M REINTRODUCING MYSELF AFTER A LONG ABSENCE! I HOPE TO BE MORE ACTIVE ON THIS BOARD FROM HERE ON OUT! Hi Everyone! My name is Maura and I was diagnosed with CD on 11/03/2011. =Oddly enough, in a quest to find a clever name for a blog I wanted to start...I googled Crohn's disease and...
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