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  1. Crohn's Mom

    Pentasa and Liver Issues ?

    Austin had his first appointment with his new GI this morning. Things went well and he was very thorough taking a history. He ordered a series of blood and urine and stool tests, and also he is to have a Pill Cam on Tuesday. I have access to his blood/urine results online already and I find...
  2. Crohn's Mom

    Duodenum Inflammation

    Hi all.. So here I find myself sitting in a hospital room, getting settled in to spend the night once again; except this time, it's not with Gabrielle, it's with my middle son Austin (he's 18). He called me yesterday and said his stomach was hurting really bad, but when I started asking...
  3. Crohn's Mom

    Procedure for PillCam Small Bowel Endoscopy

    Since JJ is having his Pill Cam test today, I thought I would share here what the procedure was with others who may be wondering. I'm going to type it up straight from the instruction sheet we were given. Patient Instructions for PillCam Small Bowel Capsule Endoscopy with the Sensor Belt Day...
  4. Crohn's Mom

    Long, continuing threads or Short and to the point ?

    I am curious as to how everyone feels about what's best for posting here; Do you prefer someone to have a long and continuous thread (even if it covers several different topics ) ? Or do you prefer a short, one question with answers to that particular question only; and then move on to posting...
  5. Crohn's Mom

    Imuran and allergic reaction

    Hi all :) Gab has informed me today that she has been very itchy, and still sweating. Then this afternoon she broke out in a rash on her back, that quickly spread to her arms and neck. She was at work when it happened, So she was able to quickly buy some Benadryl to help. Then she informed...
  6. Crohn's Mom

    Is there any link between IBD and Hernias?

    Hi all :) My brother also has CD so I am asking this for him. He has, through the last 10+ years, had surgeries to deal with 4 different hernias. Now he is going for a surgical consult this week because they believe he has two more. So, I am wondering, is there any link between IBD and...
  7. Crohn's Mom

    What foods do your kids crave when sick?

    Gab is home and resting up, but the only things she wants to eat, and can seem to tolerate, and is craving, is ice cream and cupcakes. This is like deja-vu for us, because 3 1/2 years ago when she was so sick, that's all she would crave and eat too. It's the one thing all the doctors (and...
  8. Crohn's Mom

    What time of day do you take your Imuran?

    I'm wondering if its ok to take Imuran in the evening before bed, instead of the morning ? My daughter just started Imuran a few days ago, 125 mg, and it has worsened her fatigue. If you take it at night does it lesson it's effectiveness? She's exhausted within an hour of taking it in the...
  9. Crohn's Mom

    Do you need a hug ?

    Get your hug here ! We care for you all ! :ghug::ghug::ghug: Ok, so I've noticed lately that our dear Parents section seems to be flooded with children that are in a flare, having tests, etc. Some seem severe, some less. Regardless, all of our children are suffering at one time or another and...
  10. Crohn's Mom

    Chest pain ?

    I'm wondering from anyone who may have experience with this... What can/would cause chest pain with Crohn's ? Is it possible that it could be a stricture ? Or blockage ? My daughter is complaining of bloating, and "feeling like something is stuck" for the last few days, and low grade fever; and...
  11. Crohn's Mom

    Experimenting with Gluten Free diet

    We are going Gluten free as an experiment on JJ's health :) He has agreed to a minimum of 3 weeks to one month trial. I explained to him that even tho his previous biopsies said "no celiac" that it doesn't mean that he doesn't have a Gluten intolerance. That, and his blood tests showed...
  12. Crohn's Mom

    IBD Workout Routine Video (Silly)

    sunshine that is hysterical !! LOL I love how your puppy is running behind you on the "bathroom sprint" :ylol: Thanks for the good laugh! I love your positiveness ! :thumleft:
  13. Crohn's Mom

    Inspiration for parent and child :)

    inspiration for parent and child :) I just wanted to share (with the permission of my dear daughter) a bit of inspiration for you wonderful, caring and worried parents here. I know all to well the feeling of not knowing; the "what ifs", "will they?", "can they?" etc. I know the feeling of...
  14. Crohn's Mom

    Crohn's & Colitis Awareness Week!

    :dance::dance::dance:
  15. Crohn's Mom

    TNF ~ new reports ??

    I received this link in an email from Drugs.com today. Is it saying/suggesting that the reported cases of T-Cell Lymphoma in adolescents is increasing now ?? I'm hoping it doesn't and I am just confused...
  16. Crohn's Mom

    Crazy things we do to eat the foods we love!

    I was thinking today as I was dissecting my dinner...What kinds of strange, weird, crazy things will/do you do to the foods you want to eat..but really shouldn't ? I'll start by sharing how I ate my (yummy) Fried fish sandwich and Onion Rings for dinner this evening. :lol: (we went to a...
  17. Crohn's Mom

    MoviPrep

    Does anyone know a reason why you're only supposed to drink a little bit at a time, every fifteen minutes with this stuff?? I'd rather just chug it all and get it over with, but I don't want to screw things up and have to do it over again if I did. Anyone have experience with this stuff? (it's...
  18. Crohn's Mom

    Worried about Gab's surgery !

    worried about Gab's surgery ! I received a call from the nurse at Gab's surgeons office this evening. First, she called last week to tell me that all surgeries have been set back one day due to some insurance thing...who knows. Her surgery is now scheduled for December 13th (Tuesday.) I asked...
  19. Crohn's Mom

    Worried about Gab's surgery !

    worried about Gab's surgery ! I received a call from the nurse at Gab's surgeons office this evening. First, she called last week to tell me that all surgeries have been set back one day due to some insurance thing...who knows. Her surgery is now scheduled for December 13th (Tuesday.) I asked...
  20. Crohn's Mom

    Dr Oz Show

    Just saw a preview for tomorrows show and he's supposed to talk/touch base? on Crohn's . Titled "Are your Pee and Poo killing you?" Hmmm...I have wondered if he would ever talk about IBD on there...or he may have already and i just missed it?
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