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  1. Splasher

    Not sure what to think

    My recent colonoscopy showed i had a Granuloma, my GI told me this is normally associated with crohns but said i only had one so hasnt changed my diagnosis to crohns from UC. I am really quite confused as everywhere i read says this is definately more definitive of crohns but my GI says the only...
  2. Splasher

    Likely next step

    After my last hope humira isnt working my GI told me this week he feels medically it isnt being controlled and is reffering me to a surgeon, i am quite gutted, humira is the only med i have taken without having awful side effects but it has done nothing to help me. I have pancolitis and have...
  3. Splasher

    Liver issues

    feeling a little worried and looking for some advice, my liver test is showing over 600 and i am not on any pills and it seems to be rising, i was taken off my azathioprine and allapurinol combo after they thought this could be the cause but it's practically doubled in number after being off...
  4. Splasher

    Sensitivity to immune suppressants

    i seem to be sensitive to immune suppresants, is this a common thing? I was taking azathioprine which inflammed my liver, i was then put on an azathioprine and allapurinol combo to combat the side effects of azathioprine and it still inflammed my liver. I was then put on infliximab which i had...
  5. Splasher

    Should i be worried?

    For most of yesterday afternoon i had pain in my left hand side at my kidney, i am just 2 weeks after my 2nd infusion of infliximab and have constant muscle pain, weakness and tiredness. The pain in my kidney area dosent hurt today tho so i am a little confused and i have no problems with urine...
  6. Splasher

    2nd infusion

    Had my 2nd infusion of infliximab a week ago, had an allergic reaction to it 5 mins into starting the infliximab infusion but luckily i was able to restart it after they settled my syptoms. I am still have pain and urgency in the morning even though that went away for a few days with first...
  7. Splasher

    Is this normal?

    I just started infliximab 2 weeks ago, after a few days i felt totally great, was only having 1 bm in morning and it was formed, i don't remember ever feeling that good or awake, total bliss, it has started to slowly creep back though, the bm's getting looser, more frequent and tiredness seeping...
  8. Splasher

    Infliximab or surgery

    After trying Asacol, many courses of prednisilone and a mixture of Azathioprine and Alipurinol my UC keeps returning, following a visit with my GI today he says i have 2 options left have Infliximab or have surgery to remove my colon. I am quite scared and neither seem like a good option and i...
  9. Splasher

    Allopurinol

    Has anyone been on this medication? I have been given this in combo with azathioprine after the aza affected my liver. I had alot of bad stomach pain when i was on the aza so am really nervous about re-taking them. My GI has said the allopurinal will tame the side effects, would appreciate...
  10. Splasher

    Strange pains

    I started azathioprine a few months ago, after being on them around a month i started having these very painful sharp pains in my stomach area that i can only describe it felt like a contraction and made it hard to breath. I didnt have them often maybe about once a week and it lasts around 3-4...
  11. Splasher

    So confused

    I have been experiencing what feels like nerve pain for quite a while now in my hands and feet, it has really flared up to the point where i could barely walk in the past week. I also just found out that my b12 and iron levels were low so have been put on b12 injections and iron tablets, i...
  12. Splasher

    So tired :(

    2 weeks into my new course of pred having flared straight after finishing the last course and i now have low iron and vit b12. I feel totally exhausted and so badly weak, every muscle hurts and my nerves in my hands and feet feel like they are on fire. I am also now just almost a week into being...
  13. Splasher

    Just started pred

    just started pred i have just started pred today 8 5mg pills for a week, i have read all the side effects, can anyone tell me their experiences of this drug. I have to continue with asacol alongside and am hoping the pred helps without me becoming a manic lol, my kids read side effects and keep...
  14. Splasher

    Colonoscopy last week

    Just had a colonoscopy last week, and thankfully without as much pain and they actually managed to do a full check this time. Result was mild inflammation throughout large bowel, i also had it in lower intestine last time. They still say colitis so it seems pretty certain that will be final...
  15. Splasher

    Asacol issue?

    I am on asacol 800mg 1 3x per day, for past few weeks i have been experiencing bad fatigue and alot of pain in my legs and especially my feet, the other night when i tried to go to sleep my whole body felt like it was burning and i had pain all over to an extent i couldnt even let my toes touch...
  16. Splasher

    Typical symptom?

    Over the past week i have this recurring pain that comes from right hand side of tummy quite low and is quite painful and seems to spread up and go across just below belly button but is fine when i sit. Doctor said Ulcerative Colitis. Could this be just gas or something, does anyone else have...
  17. Splasher

    GI's visit

    Just had my GI appoitment today, and he says ulcerative colitis but wants to do another colonoscopy so he can check my large bowel. On previous colonoscopy they couldnt complete it because i was in so much pain and said it was too tight so i must admit i am very frightened to go for a 2nd. What...
  18. Splasher

    Posting using my mums account

    hi im heather and posting on my mums account many of you might have read my mum story about her illness. for many of you this is the worste pain you can get and sadly it pains me aswell. Usually in the mornings i get ready for school and i see my mum taking a very fast trip to the loo. In alot...
  19. Splasher

    Hope it helps

    I am probably teaching my granny how to suck eggs here lol but i figured it may be of some help if not then just tell me to shut up. I find that potassium pills or a bannana helps alot with joint pain if it flairs too badly due to having too many bowel movements. Powerade or gatorade also helps...
  20. Splasher

    Not sure what i have yet

    Hi all i am very unsure what i have. After various blood tests and a colonoscopy i was told i have an inflammation in my small bowel whcih in their words raises the possibility of inflammatory bowel disease. It wasn't possible for them to do a full colonoscopy as my intenstine was very narrow...
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