• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Is Neck pain crohns related?

    HI all, Brandon (10) is doing fairly well on his Remicade. He is now taking it every 7 weeks. He has a permanent rash now on his back. He gets red cheeks and doesn't like to be in the sun much it makes him feel worse, but his joint pains have become worse, The last two days he hasn't been...
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    Methotrexate in addition to Remicade

    Hi there, Brandon my son, is taking low dose Methotrexate (5mg in a once a week dose) in addition to his Remicaid. His rheumatoligist recommended it to prevent the build up of antibodies agianst the Remicaid. Does anyone else take this? On another note, I just started taking it too for...
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    Gate Crasher

    Hi all, I need to crash this forum. My son is diagnosed with Crohns and has some associated arthritis. I have been having hand, wrist, foot and ankle pain progressively worsening with morning stiffness and swelling for about 7 months. It got to the point where I went to see what was wrong...
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    Is Crohn's related to rheumatoid arthritis?

    My son Brandon has crohns, my grandmother and three uncles have crohns or ulcerative colitis. I have been having hand wrist, ankle and foot pain and stiffness worse in the morning for 6 months and my Dr. suspects Rheumatoid arthritis? Some of the bio drugs can be used to treat both. I just...
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    Trouble getting Medical Records

    I just wondered if anyone else had trouble with Medical records? Firstly, they don't seem to share well even when I sign a release, it took them two months to send the records to the Rheumatologist! Then I sent in requests for records so I can take them to new Doctors e.g. Opthalmologist last...
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    Optic Neuritis and Remicade

    Does anyone have experience with Optic Neuritis and Remicade? Brandon's having vision issues, and headache, and it fits a rare side effect "optic neuritis". I have a call to his GI since 7:30am (no callls back yet). He has his first eye Doc appt friday anyway because he has had dry and...
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    Has anyone tried genetic testing?

    We are still looking for "proof" of CD. The prometheus test was negative, and the colonoscopy and biopsy results have been considered by one Doc as CD and the other as IBD unspecified. Has anyone tried any genetic testing? If so where do you get a test done?
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    My 9 year olds going for 1st infusion this Wednesday

    Hi everyone, Thank goodness for this forum. My 9 year old is going to get Remicaid on Wednesday. I'm a little nervous. He was diagnosed with Crohns at 7 years old and was fine on Asacol and Omeprazole. Then had a flare at Thanksgiving. We had to see a new Doc. He says IBD but won't...
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    Need help with Prometheus test results

    Hi all, I'm pretty new to this so I hope I am posting in the right place. Does anyone know where i can get help interpreting the Prometheus Serology 7 results for my son. I spoke with the GI and she said, it came back inconsistent with IBD, but the colonoscopy's have showed IBD so he does...
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    Should we try Remicade

    Our Dr suggested today we try Remicade for Brandon (9 years old). He has been in a flare of some form of IBD since Thanksgiving, and tried Entocort, Prednisone and still on Asacol Omeprazole and Levsin for pain. Only mild blood markers, and mild biopsy changes but sever pain and frequency of...
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    Need help with my 9 yr old

    HI everyone, My 9 year old son Brandon was diagnosed with CD two years ago, based on history and a colonoscopy. Went on Asacol , and omeprazole and did well for two years. At thanks giving he had a flare up, we ended up with a new GI for insurance reasons. He said he coldn't say for sure it...
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