• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. TwinkleToes

    GI Doc of 4yrs Randomly "Retires" - Need Reccomendations/Support

    Hi All - Looking for some support/recommendations. FYI - I'm in Orlando, FL. Right before NYE I got a call from my GI's office saying she had to go on an unexpected leave. They said she'd be back at the end February. When I asked if she was okay, they said physically yes, mentally they weren't...
  2. TwinkleToes

    Dr. says I'm not a good candidate for surgery?

    Hi everyone! Well, I had my colonoscopy this morning. My Doctor came back and said I'm only a little better than last year, but that I still have a lot of active inflammation. My Dad asked her if I would ever be a candidate for surgery and she said no, because my Crohns Colitis is spread all...
  3. TwinkleToes

    Used to never bleed after injection...

    So, I've been on Humira since August 2013. Never had any issues with it. It actually never hurt either. For some reason though, my past two injections have bled a lot and hurt more than normal. I haven't changed anything in regards to my routine or technique, but especially after tonight it's...
  4. TwinkleToes

    Traveling to Mexico - Immunizations?

    Hi All - I'm traveling to Cancun/Playa Del Carmen/Possibly Cozumel Mexico in March for work. While we'll be in a good area for most of the trip (Playa Del Carmen) it is advised that I get a Hepatitis A & B immunizations, as well as Rabies and Typhoid. I just want to make sure i'm covered...
  5. TwinkleToes

    Pain after Peeing/Pooping on Prednisone & Antibiotics

    Hi All - Last week I was in the hospital for severe abdominal pain. To make a long story short, my GI thinks I may have picked up a virus and she also said there was severe flaring of my terminal ileum. So, along with going back on Prednisone (PS - It's 3am here and I'm wide awake and starving...
  6. TwinkleToes

    Will I Ever Lose This Weight? Working out 5 days a week!

    Hi everyone So back in June I finally got off of prednisone after being on it For two months. I gained 20 pounds which I was fine with because I was severely underweight when I was sick. I am now on humira, however, I am going on a cruise in two weeks. I am trying to drop some weight before...
  7. TwinkleToes

    Pain During Intimacy

    Hi all, I'm hoping some lady friends on here can let me know if they have been experiencing the same problem as me. I wanted to know if Humira has caused you any pain whatsoever during intercourse. I have been dealing with some, especially after tonight. It was really bad to where I was curled...
  8. TwinkleToes

    Start Humira or Wait?

    Hi Everyone – I’m hoping I can get some advice from everyone on here. I’m pretty sure I have my mind made up, but could definitely use some suggestions. I’m currently on Pentasa for my symptoms. My symptoms, however, have been coming back probably once a week or so. My Doctor and I agreed...
  9. TwinkleToes

    Pain to left of bellybutton and blood...

    So, two weeks ago I had the full monty (colonoscopy and endoscopy) done. I was told that I have a partial obstruction, and my Crohn's had progressed to a moderate/severe case. My doctor put me on 40mg of Prednisone and 4000mg of Pentasa, and i've noticed a significant change in how I feel...
  10. TwinkleToes

    Really jittery & Can't Sleep

    Hi All - My Doctor did an endoscopy and colonoscopy on me yesterday, and my mild crohn's is now moderate to severe. I'm on two pills of Pentasa, 500mg each, 4x a day, and 40mg of Prednisone. I have taken prednisone in the past, so I have experience with it. But, one of the lovely side effects...
  11. TwinkleToes

    Change in Diagnosis

    Hi All - So, two years ago I was diagnosed with a mild form of Crohn's disease. Since then, I have not been on meds and have been living my life with some interruptions. Over the past 5 months, things have gotten progressively worse, and I finally found a great GI Doctor who decided to take...
  12. TwinkleToes

    Blood in Stool - Help!

    Hi All - So, last night my Mom made this big pot of turkey chili. It had red beans in it, and even though I know beans aren't really tolerated by crohnies, I still had some. Well, all day today I have had a lot of cramping and bloating in my lower abdomen (below my belly button). I just went...
  13. TwinkleToes

    Not a Negative Vent...More of an, "I accept this" rant.

    Hi All - It seems like it was just yesterday that I received my Crohn's Diagnosis. It was in January of 2011. I actually took it quite well, despite it being a chronic illness. I also took it well because my Doctor thought I had HPV, which instead turned out to be fistulas. Since my...
  14. TwinkleToes

    Holy Going Overboard, Batman!

    Hi All! So, here's my story. For the past three weeks, I haven't been sleeping well. I've been taking on a lot of extra projects at work, and I wake up in the middle of the night (usually around 2:30 or 3:00am) and don't fall back asleep. It happens 2-3 times a week, and only during the...
  15. TwinkleToes

    Constantly feeling like the Goodyear blimp.

    Hey All - So, lately I've been Extremely bloated - to the point where it is very uncomfortable. Just wanted to know if anyone has tried Gas-X or anything along those lines, and if that stuff works. This is starting to become a real pain!
  16. TwinkleToes

    Can't Keep Weight On...

    Hi All - So, for the past few months, I've noticed that every attempt that I've taken to try and put on weight has failed. I'm 5'8 and currently at 134.5 as of this morning. As for my history, I recently had my gallbladder out three months ago, and recently saw my GI who prescribed Pentasa...
  17. TwinkleToes

    Chills but no fever?

    Hi All - So, for the past week or so it feels like I have been fighting something. Everyone at work has been sick, and i'm doing my best to avoid getting sick (since 99% of the time when someone here is sick, i'm bound to get whatever they have). I got my flu shot last Tuesday, but that...
  18. TwinkleToes

    How often do you get sick?

    So, i'm not sure if it's just me, but it just seems like I get sick a lot more than anyone I know. I really feel like i'm getting sore throats, colds, coughs, etc. moreso than my co-workers and friends. Is this because of Crohn's? I would like to think so...:sign0085:
  19. TwinkleToes

    Gallbladder is gone...now what?

    Hi All - About a month ago, I had my gallbladder taken out due to a very low HIDA scan. I had a really hard time processing fatty foods, and was getting sick frequently. Originally, I kept defaulting to "Well, it's just my Crohn's..." but I have a mild case (mainly in my colon). So, since...
  20. TwinkleToes

    WTH, Crohns?

    Hey All - So, I was diagnosed back in January of 2011 with Crohn's primarily in the anal/rectal region. I was working out constantly, taking care of myself, and eating well. So, I my Doctor never put me on meds because he said it was mild enough to where I didn't need them. Fast forward...
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