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  1. M

    Who's got a port?

    I was only diagnosed in 2011 and then given a 4 week stay in hospital, three weeks in the ICU. Right from the start, my veins couldn't handle a cannula for more than 20 hours or so. They would just fail, and I would have to get a new one. Given a cannula is usually good for three days or so...
  2. M

    Crohns disease in the outback??

    So, all my aussie afflicteds......Im considering moving back to the outback. The Pilbara to be exact. Used to live there many years ago, and some discussion is happening as to whether moving back there. But that was well before I knew I had Crohns Disease. Anyone got Crohns in the outback...
  3. M

    Went to hospital, came out worse. What the??

    So Ive been in hospital for ten days. Presented at the ER under gastro's advice with large amounts of bloody stools and pain. To clarify, there was more blood than stool. Slight fever. That was a thursday. Start up with the iv steroids and get me an iron infusion on the friday. Friday...
  4. M

    6mp not as scary as i thought it would be

    so ive been on my 6mp now for five days and no dramas anywhere. This is a major relief. I dont know if its doing me any good yet, getting my first lot of bloods in two days, so will find out if its doing me any bad, but so far no problems. Since im only on 50 to start with im hopin when i up...
  5. M

    Please help with these questions

    so stupid me decided it was a top idea to research this new medication I startd taking today and all ive found is a lot of confusion. So Im on purinethol. Thats 6mp right? So i hear about nausea, how long after you take each tablet is the nausea likely to kick in? Im trying to work out...
  6. M

    I hope I havent got what he's got....

    So spending a lot of time at the clinic lately, as is this one other guy Ive noticed. Hes always there same as me. He might even be there more than me, who knows. anyhoo........I really hope he is on soemthing different to me, because Ive been watching him go downhill for months now. The...
  7. M

    I tried to cry my way out of it, but 6mp is now for me.

    After a gruelling day with the doctors, which produced many tears on my behalf, and plenty of tissue offering and hand holding on their behalf Im now a 6mp taker. Im so sad. I reallllly didnt want to take this step. I know its not the end of the world, but it feels like it is. Feel free to...
  8. M

    Why do I keep getting fevers?

    So for the last 6 months or so ive been getting a lot of little fevers. And sweating like you wouldnt belive. I had a scope a couple of weeks ago, and they said there was plenty of inflammation, so Im guessing that means Im flaring. And now im on steroids. The sweating and fevers started...
  9. M

    Tapering off the roids...bummer! *see what I did there?*

    So Im on the tapering. Ive dropped ten mg of my mighty steroids and Im not having fun anymore. To be fair, it is also that particular time of the month *oh, warning to the fella's now might be a good time to look away* And of course everything is worse at that particular time isnt it ladies...
  10. M

    Prednisone the miracle drug

    So ive been onto a course of steroids due to a flare after two years of pretty much no drama. God its awesome isnt it? Wasnt even in my system 24 hours and I was on top of the world. yeah, I know side effects, no good long term, kill ya or cure ya, all that crap. But its just so awesome when...
  11. M

    Tramadol and Celebrex side effects?

    So ive been to ye old chemist shop today and come home with a veritable bag of medications. Thank the lord for the PBS, you aussies know what Im saying here. Ive never had Celebrex, or Tramadol, so I was wondering if anyone could give me any personal experience of side effects. Obviously I...
  12. M

    Cold and Flu tablets?

    Im suffering from a form of death, Im positive im going to die. Its not the flu because Ive had the flu vaccination, so its a cold. But its the worst cold ever. Im sure its killing me, one can die from an over production of snot right? Anyhoo, Im going to check with the doctor of course, but...
  13. M

    Hate it when the Doctor is right and Im wrong

    So Im flaring, yay for me. Doctor said I gotta take a steroid course and if that doesnt work out well for me then its azathorpine, or however its spelt, i didnt pay attention because I had my own grand plans. My grand plan was to just up my usual sulfasalazine from 4000mg a day, to 8000mg a...
  14. M

    CRP numbers up, apparently??

    Can anyone help me out with some info on this please? I know that crp numbers are sposed to be low, like under ten or something, and any raising of that number means what exactly?? I havent paid much attention to it over the years because Im generally pretty healthy. Does a higher crp number...
  15. M

    Results from scope in today...wish me luck

    So I had my scope two weeks ago and Im off to get the results today. Im a little bit panicky because my crohns has progressed from only my transverse, ascending and sigmoid colons into my ileum too now. Im guessing theres going to be a change of medication. Oh and one always feels a little...
  16. M

    Nizoral for Crohns? What is it???

    Ive seen Nizoral come up in a few peoples list of medications, and Im wondering what it is and what it is used for........................
  17. M

    Whats the difference between Crohns and Crohns Colitis

    Ive seen this come up a few times in different threads and thought I would ask. I was originally diganosed with Crohns Colitis, which I thought was the same as Crohns. Sometimes when my dr is talking to me he says, thats because of the crohns, other times he says thats because of the colitis...
  18. M

    What are the Crohns NO NO NO NO's??

    Before I was diagnosed my gp sent me off to get some immodium for the d's. Apparently immodium is a no no no for crohns. And then I was taking ibuprofen for all the pain, apparently thats a no no no as well. Now Ive got a urinary infection which Im taking some ural for. Its just my luck that...
  19. M

    Screw You World

    Yeah, I aint much in the mood today, but I am in some kind of a mood. A not real good one. So stay out of my way world, you are in for it. Ok, so I drank alcohol today, only a couple of breezers and a wine or two, but thats not the point. I coupled that with some decent strong black coffee...
  20. M

    Dropped 5mg of pred today and i feel bad

    dropped 5mg of pred today and i feel bad Its like the life has been sucked out of me. Im soooooooooo tired. Is that normal? Ive been on 40mg since I was diagnosed 12 days ago. Today was my first 5mg drop. Im also on 3000mg of sulfasalazine. Ps...I also had a cigarette today, which was...
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