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  1. LindaS

    Flaring after years of remission

    Hi everyone. I had been in remission for 4 years. I had a colonoscopy in May that showed no active disease. Wednesday evening, I started to have cramps. By midnight, the cramps were unbearable, so my husband drove me to the ER. The CT showed massive inflammation that was causing a partial...
  2. LindaS

    Anyone had luck on Tysabri

    I've been on mercaptopurine for about 2 years, and while it sort of works, my blood tests haven't been great, causing me to constantly have to change dosages and need weekly blood tests. After the last dosage change, it is barely doing anything, as my diarrhea and cramping is getting worse by...
  3. LindaS

    Lump in tongue and/or hearing issues

    I've had a lump in the muscle part of my tongue for about a month. I saw an ENT 2 weeks ago and go back tomorrow for a follow up. The issue is that because it is in the tongue, a biopsy needs to be done in a hospital setting due to very possible breathing complications. When I saw him 2 weeks...
  4. LindaS

    Cysts

    Does anyone else have a problem with a lot of cysts? I've had them on my hands and feet, my neck and chest. Now I found out that I have them in my sinus cavities as well, causing a lot of pain and pressure. I don't know if it is the Crohn's, the medications or that I'm just prone to them, but...
  5. LindaS

    Annoyed at a Book

    I've been reading a book that until now, I thought was really sweet and enjoyable. It is called Backward Compatible: A Geek Love Story. I got to a part where the two main characters (the two that fall in love) are trying to find a date for the guy's friend. When the guy sees a girl he thinks...
  6. LindaS

    Allopurinol, mercaptopurine and headaches

    About 2 and a half weeks ago, I started taking allopurinol, and decreased my dose of mercpatopurine. For the past 4 days, I have had a non-stop headache. I can't find anything that the two medications combined would cause the headaches, but nothing else has really changed, unless you count the...
  7. LindaS

    Constipation and medications

    I had surgery on my back last week to remove a herniated disc that was pressing on the nerve. My pain in my leg is gone, but the surgery site is still very painful. The orthopedic surgeon prescribed valium (for muscle spasms) and oxycodone for the pain. I've been constipated ever since the...
  8. LindaS

    Bummed- bad test results

    I've been on Mercaptopure (6MP) for quite a while now, and it works pretty well for me. For the past few months, my liver tests haven't been good, and my ALT and AST have been elevated. My most recent test results were so high my doctor is cutting my dosage. This is the exact same scenario...
  9. LindaS

    Existing vs. Living

    Lately, I've felt more that I've merely been existing in my life instead of living it. My Crohn's isn't too bad, but with all the problems in my back and hips, I have been miserable. I rarely go out anymore, as walking is so painful. The only really comfortable thing is lying flat on my back...
  10. LindaS

    My Colonoscopy today

    I had a colonoscopy this morning. The doctor found inflammation at the surgery site, but not too bad. He also found polyps, which is new for me. I guess I'm getting to that age. They had the normal sedation. I asked about the letter I got describing a shortage of it. The nurse said the...
  11. LindaS

    Versed shortage - sedationless colonoscopy?

    I just got a letter today from my GI's office about the shortage of Versed, one of the sedatives used during a colonoscopy. From the letter, I gather they don't have any, and will instead offer either no sedation, or have an anesthesiologist there to give a deeper sedation that normal. Has...
  12. LindaS

    How do you reply to "how are you?"

    I saw an acquaintance this morning I hadn't seen in a while. We had the normal, pleasant conversation "Hi. How are you?" Normally, unless it is my family, I reply with the socially acceptable "Fine. And you?" but this morning I feel really crappy, and I had such a desire to tell her exactly...
  13. LindaS

    Please get me psyched for my colonoscopy

    I am having another colonoscopy next week. I am already starting to have panic attacks over the prospect of the prep. Someone, please help get me psyched for this, so I can get through the next few days. This will be my 11th, so it isn't like I don't know what will happen, but I really don't...
  14. LindaS

    Should I be alarmed by my pain?

    For the past week or so, I've slowly been experiencing a little bit of pain on my right side (in the area I call my "Crohn's spot"). Well, beginning yesterday, the pain started coming more often and more intense. It isn't severe, take my breath away pain, just slowly getting worse now. Around...
  15. LindaS

    Does anyone have cheese to go with my whine?

    I just need to vent and whine a bit. My back is really bad right now. They aren't sure exactly what the problem is, as my MRI shows several possible problems. The doctors are going with degenerative arthritis in L4-L5, but I'm also having pain in my left buttock as well as severe pain in my...
  16. LindaS

    Liver Panel results elevated

    I've been on mercaptopurine for about a year now, and currently take 100mg/day. On Tuesday I had my blood drawn for a CBC and liver panel. The doctor called yesterday with my results (not usually a good thing) and wants a re-test in 3 weeks. My Neutrophils were elevated but the big concern of...
  17. LindaS

    It feels like broken glass

    I had been feeling pretty good recently, until about 2 weeks ago. Now, periodically throughout the day (and sometimes night) I get a sharp pain in my lower right quadrant. It feels like there is broken glass passing through my insides. It goes away fairly quickly, usually in under a minute...
  18. LindaS

    Watery eyes

    Both my eyes hurt and are watery. They aren't particularly red, and they don't really itch, but they hurt. It is as if just the act of seeing things is uncomfortable. There is slightly more "eye goop" than normal, but just a tiny bit more. This has been going on for about 4 or 5 days...
  19. LindaS

    Hidden blood in stool

    With my Crohn's, I typically don't have blood in the stool. However, yesterday I was at urgent care diagnosed with pneumonia (if it isn't one thing, it is another). Anyway, the blood test showed a low platelet count. I had my blood drawn a week and a half ago and my platelet count was at the...
  20. LindaS

    Predisone and tummy problems

    You think I'd know this, being on and off predisone for about 25 years. I stopped budesonide and started predisone last week. I am currently on 40mg/day. I take it on a full stomach. However, it seems for an hour or two after I take the predisone, I am nauseous and my stomach feels like it...
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