• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. S

    Conflict of Interest???

    How can CCFA (Crohn's and Colitis Foundation of America) join with Nestle on IBS disease research. This is so reminiscent of the tobacco industry and the sugar industry dictating policy through "research" they funded. Nestle makes a plethora of awful products that have contributed to the...
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    Long term remission vs Cure

    I was diagnosed with Crohn's a few years ago after having symptoms for 30 years. My main symptoms were chronic diarrhea and occasionally urgency with cramping. I had a bowel resection (9 cm) with no other thickening, strictures, or damage found. I was not put on any medication as the...
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    My one year anniversary

    On November 19, 2011 I had a small bowel resection and takedown of a fistula. To celebrate my complete recovery, on I walked the 500 mile Camino de Santiago pilgrimage across Spain. I started walking on September 23 from St Jean Pied de Port in France, crossed the Pyrenees the first day, and...
  4. S

    How I Celebrated My One Year Anniversary

    On November 19, 2011 I had a small bowel resection and takedown of a fistula. To celebrate my complete recovery (no meds!) I walked the 500 mile Camino de Santiago pilgrimage. I started walking on September 23 from St Jean Pied de Port in France, crossed the Pyrenees the first day, and arrived...
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    • Replies: 2
    • Forum: Surgery
  5. S

    Six month post-op colonoscopy

    Had a bowel resection and takedown of a fistula in November and had my 6 month post op colonoscopy. Doc said everything looked great!! No signs of inflammation. Yay, I get to continue with no medication. Thrilled
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    My newest goal...and it's a big one!

    I am planning on walking the 500 mile pilgrimage called the Camino de Santiago. I will start in western France and walk the entire distance across Spain to Santiago. I'll try to do it in 30 days which means a little over 16 miles a day, every day. I'll have to carry a backpack with only...
  7. S

    First run yesterday...

    On Nov 21 I had an open bowel resection and takedown of a fistula. Spent 5-6 days in the hospital in Seattle. Returned home to Honolulu 11 days later after a followup with my surgeon. I have quickly worked back to full activities. Yesterday I decided to go on a short, but hilly 2 miler...
  8. S

    I'm all better

    One month post small bowel resection and fistula repair and I feel completely healed. Actually, I could have said this at least a week ago. I returned to work twelve days after surgery (four hour shifts) but now am working as much as I can because I like my job and feel great. I've been...
    • scl
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    • Replies: 8
    • Forum: Surgery
  9. S

    Back to work!

    Thirteen days post-op open bowel resection. Stopped by my work today (small clothing and jewelry boutique) to say hello to my coworkers. There was so much merchandise to check in that I decided to stay for three hours to help out. Fun. I'm on the schedule for this weekend, working 4 hour...
    • scl
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    • Replies: 4
    • Forum: Surgery
  10. S

    Back on my island!

    Three weeks ago I traveled from Honolulu to Seattle for a GI consultation and surgery to remove a fibrotic stricture and repair a ileosigmoid fistula. My recovery went well, most likely due to the skill of my surgeon, post-op care in the hospital, and particularly mom's tender loving care...
    • scl
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    • Replies: 7
    • Forum: Surgery
  11. S

    Transverse incision for resection

    Tell me about your open bowel resection incision My doctor utilizes a transverse incision for open bowel resections. My incision is to the right and below my belly button and is about 4-5 inches long. He said it might have been shorter except for the location of my fistula. Also, I have no...
    • scl
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    • Replies: 0
    • Forum: Surgery
  12. S

    Glossary of terminology

    I was diagnosed with Crohn's in July 2011 and have found this forum very helpful. There are terms people use that I am unfamiliar with. One user wrote about an MR Enterography, another developed a seton. There are many more that i have run across. Is there a glossary of IBD related terms?
  13. S

    Out of hospital!

    Had a bowel resection and fistula renpair last Thursday. Every inch of my bowel was hand examined and my surgeon said I am Crohn's free at this time. I will be going off the Remicade and will have a colonoscopy in 6 months, and yearly from then on. Biggest issue while hospitalized was a...
    • scl
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    • Replies: 3
    • Forum: Surgery
  14. S

    Prep Day - what to expect

    I am having my first colonoscopy with prep tomorrow afternoon. The one and only colonoscopy was done while admitted with a blockage and I wouldn't have tolerated the prep. I am staying about 1-1.5 hours away from the hospital at my 80 year old mother's house and am worried about driving so...
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    Really confused about surgery

    I am a Crohn's anomaly. I've suffered from chronic diarrhea for 30 years and in July was admitted to the hospital with an intestinal blockage and fistula. Diagnosed with Crohn's. Started on Remicade. I've never had daily pain and still don't, but I have had several episodes of blockage with...
    • scl
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    • Replies: 28
    • Forum: Surgery
  16. S

    Can this be true?

    I was recently diagnosed with CD after 30 years of symptoms. Spent 6 days in the hospital due to severe abdominal pain and vomiting. Tests revealed widespread inflammation, a stricture, and a fistula between my small intestine and distal end of my colon. I was pretty shocked. Started on the...
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    How to tell if it is working...

    I was just diagnosed with Crohn's after suffering with diarrhea for 30 years. Last week I experienced severe abdominal pain and went to the hospital with an obstruction caused by stricture, and a fistula. I've never had fatigue, weight loss, skin or joint issues, etc. I know for others...
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    How long to heal a fistula?

    I was just diagnosed with Crohn's after suffering with diarrhea for 30 years. Other than that, I've really had no other symptoms, tons of energy, etc. However, last week I had severe abdominal pain and went to the ER with a small bowel obstruction. Further tests found the fistula. Admitted...
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    Diagnosed after 30 years

    I am a 53-year-old woman who was just diagnosed after going to the ER with intense abdominal pain and vomiting. CT showed an intestinal obstruction. Further tests show a fistula between the bowel and colon, and lots of inflammation throughout. I've had symptoms for 30 years, but have...
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