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  1. muppet

    Panic attacks - what are they like?

    I'm starting to wonder if my "seizures" aren't just panic attacks. I've posted a few threads about what's going on so if you look on my profile you'll find paragraphs if you're curious, but the upshot is that I've been having these massive head rushes that end in a cold sweat and sometimes...
  2. muppet

    Still having "seizures", not sure what's going on, pretty terrified

    Wikipedia actually lists seizures as an EIM, but I didn't read the citations. The article claims it's present in about 15% of Crohn's patients, so you'd think it would be more commonly reported here if that were really the case? So, once again I was having "partial seizures" yesterday from...
  3. muppet

    Anybody else experience seizures with CD?

    I've been doing some reading recently, and evidently there's a fairly high incidence of epileptic seizures of various types as a documented extra-intestinal effect of Crohn's. Does medication of any type exacerbate it? Are you on anti-convulsants? Been told you should be? There seems to be...
  4. muppet

    Getting docked 3 days' pay right before Christmas

    I used up most of my paid time off this year in January when my daughter Sarah was inpatient in Boston with her Crohn's, so, I'm out. Too bad for me. Hey, I get it, that's how it works. Except, they're already working on trying to reduce their liability in terms of paid time off the team has...
  5. muppet

    So I'm pretty sure a Lialda overdose stopped my heart on Monday

    I think it was via seizure, which I've had before when overdosed on other meds. My GI has repeatedly told me over two decades that Lialda is basically a topical analgesic and is barely absorbed by the body. Well, that may be true but I found and later he also found some rare documented cases of...
  6. muppet

    OK, so, getting to the end of our rope, perspective needed.

    I love giving my two cents around here and offering all sorts of advice (I'm sure you've noticed ;)) but I hate, hate, HATE asking for it. It implies I don't know everything... Sarah is 14 now, and for the past 3 years, following her failed Remicade trial (3 infusions and then a severe serum...
  7. muppet

    Pregnancy, BCP, and Crohn's

    I've heard more than once that some women report that their Crohn's symptoms abate with pregnancy, with the consensus seeming to be that it has something to do with the hormone changes associated with pregnancy. Since BCP, at least in some limited way, "simulate" pregnancy in order to keep the...
  8. muppet

    OT - not even Crohn's related (again)

    When I was a kid, around 8-10, I was on a drug called Quibron TSR for my chronic asthma. Quibron is finicky stuff, containing theophyllin, which nowadays they measure in your system using a blood test. I have no idea if that was being done back in the mid-to-late eighties or not. One...
  9. muppet

    Seems like it's mostly moms in here?

    I'm not trying to start a gender war or anything.. but it seems as though this section is dominated by moms of kids with Crohn's. I mean, I know we have the odd dad out here (I'm an odd dad for sure! :D), but I wonder why it is that we don't have more guys doing the research and pounding the...
  10. muppet

    Updated the blog after almost a year dormant

    I'm not sure who of the regulars on here from when I was actually showing up are still around, but lots of my readers were from here, so here's the link: http://www.sarah-story.com/2012/11/14/what-a-long-strange-year-its-been/ Hope that's OK these days. Hello! Maybe I'll actually be around...
  11. muppet

    Having surprisingly good results from Aloe beverage

    I'm still taking all of my meds (ASA, occasional pred) but I was at the Asian market the other day and saw a drink simply labeled "aloe" in a stylized font in a green 1.5L bottle. It's got 8% aloe puree and aloe gel powder, and a healthy helping of sugar to make things more palatable I guess. It...
  12. muppet

    Anybody else ever been told their peri-anal fistula is inoperable?

    I had an abcess about 8 years ago and it was so bad I went to the ER. Scared and in pain, I had a lapse of judgment and assertiveness and allowed a general surgeon to schedule me for an emergency lancing and packing. Well, that didn't take, and I saw him in his office six more times to have it...
  13. muppet

    Should I go on Remicade, or just stop being lackadaisical about my regimen?

    Lialda works for me. It works well. If I stay on it, I tend to have a flare MAYBE every 2-3 years, which can be controlled with prednisone. Lately, that's not what's been happening. I've been dealing with a suicidal teen daughter, a developmentally delayed 2 year old, passive aggressive...
  14. muppet

    Positive vent!! Not sure where else to put it!!

    Izzy started talking!! Suddenly, spontaneously, just started talking in full sentences. Also smiling, laughing, making full eye contact, and generally being a totally normal toddler with essentially no overt autistic traits! I doubt whether most people on here will still remember my venting...
  15. muppet

    Dear Crohn's Forum, it's been 2 months since my last post....

    After 7 or so years of avoiding it, I'm seriously considering Remicade. I have to admit that my on-again, off-again relationship with Lialda and Prednisone just isn't cutting it (and will never heal my fistula). I got a taste of no fistula last year when it became inactive for 3 months, and I...
  16. muppet

    Wow!! Advice needed!! How do you make Crohn's visual for non-sufferers?

    A local and well liked television show wants to put Sarah on the air and promote her book!! The only issue, though, is that they're asking me what we can do to make the segment "more visual" for the audience. I already sent back a reply with a few lame ideas and tried to explain that Crohn's is...
  17. muppet

    No power no water no heat. Ready to jump off a bridge.

    A tree fell on my car, another on my shed, and another came within 2 inches of crashing through the baby's nursery window. I drove the car out from under the tree and luckily it has little or no damage. My father in law loaned us a generator but gave me TERRIBLE advice about how to hook it...
  18. muppet

    Sarah's joint pains are coming back as her prednisone weans

    She's up on a higher dose of 6MP now and still seems to be doing well on it, but she's also on 10/5mg of Prednisone and in the past, even that tiny amount has kept her from flaring and it's when we reach 0 that all hell breaks loose again. As the prednisone is lowered, her shoulders, back...
  19. muppet

    Food poisoning!! Are you kidding me?!

    Just threw up every drop of the hot chocolate I got from Dunkin Donuts a couple of hours ago as a before bed treat. Now my gut is spasming something fierce. I took a hyoscyamine but no relief. I'm tempted to take another. I had just gotten a flare under control and tapered off prednisone. I'll...
  20. muppet

    Sorry I've flaked out and haven't been around to advise

    I'm not sure whether anybody misses my advice or not but I feel bad not being around just the same. Things are truly chaotic over here. Sarah is doing well on her bumped 6MP but she's bringing home a cold per week and the baby is getting most of them. Izzy slept poorly night before last and...
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