• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. K

    Need advice from experienced ldn users.

    I started ldn in November and had a bad flare, so now I'm going to get surgery soon. My flare went away on it's own, or with the help of ldn, but I'm not sure which. I'm at the end of my 3 month supply, and I didn't take a dose last night because I was planning to stop taking it. I wanted to...
  2. K

    Should I wait or have surgery?

    Hi everyone, I have a GI appointment tomorrow and I would like some advice on what I'm going to do next. I am in a pretty bad flare right now and my symptoms are back and neck pain and stiffness, right side pain, lots of diarrhea, intestinal seizing when I try to defecate, possibly blood (red)...
  3. K

    Pharmacies near Vancouver B.C.

    My doctor agreed to prescribe me LDN but she said she will send the prescription to a pharmacy when I find one. Does anyone know of a pharmacy or go to a pharmacy around Vancouver B.C. that compounds it properly? If not, does anyone have any advice on how to get it? Thanks.
  4. K

    What's the point of medication?

    I know medications help people, but a lot of people still get flares and symptoms while on medication. I've been off medication for almost a year and my flares and symptoms are less than while I was on the various medications I've tried. Also, I had horrible side effects that have made me have a...
  5. K

    How long did it take you to accept Crohn's as a part of your life?

    I was diagnosed late 2011 and I don't think I've fully accepted what Crohn's means for my future. Every time I get a flare it's devastating to me and it crushes all of the hope I had built up. What I'm wondering is if anyone has fully accepted crohn's as a part of their life, how that came to...
  6. K

    Did cannabutter help my arthritis?

    Hi everyone. I have been dealing with arthritis and recently it has gotten better :) . It started mid july this year and got worse throughout july until I started taking prednisone and it got better during that time. Once I got off prednisone it came back. Three days ago my doctor told me to...
  7. K

    For Anyone Living in British Columbia

    If you live in British Columbia, and have not done this already, I recommend signing up with MyeHealth http://www.myehealth.ca/ . Every test you get done at BC Bio Labs will show up on the website and you can get your results as soon as they come in. I find this to be extremely useful. :)
  8. K

    Medications keep failing. What now?

    Hi, everyone. I've done a lot of research since being diagnosed and usually when I go to my GI appointments I know what the doctor will prescribe. However, I've tried almost all the drug TYPES I've read about and nothing has worked. Now my doctor seems stumped and so am I. I just wanted to see...
  9. K

    Is this the prednisone?

    I'm just wondering if these weird symptoms are caused by tapering prednisone too fast. I took prednisone for 9 days starting at 50 mg (june 29th) for 5 days (till july 3rd) then took 25mg a day for 4 days then stopped(july 7th). I have tapered prednisone by 20 mg a week before without any...
  10. K

    Any thoughts?

    I'm going to explain my symptoms to see if anyone has any experience with this and knows if maybe there is something else going on. I was diagnosed with crohn's disease last year but have had digestion problems for almost 6 years now. I remember at the beginning it started as I would get...
  11. K

    Humira and Blood Tests

    Hi, So I've been on Humira for a month and a week now and I get regular blood tests. I got a blood test today that showed my crp down and almost at zero which means the Humira is stopping the inflammation but I am still getting diarrhea most days and I am feeling fatigued again like when I was...
  12. K

    School? Work? Friends?

    I have had this disease for about 4 or 5 years now and I've only been diagnosed for about 5 months. It started in high school and it really interrupted my schooling but I kept it pretty secret until last year when everything got so bad. I barely see friends except my boyfriend and only at my...
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