• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. Bubbly

    Update on son

    Well thought i would drop in and update on sons progress as its been sometime. He is currently on infliximab every 8 weeks, and at last it is kicking in and working, he has been back at school full time, and enjoying sport and being a normal 14 year old. We have been waiting for him to have a...
  2. Bubbly

    Sore/aching legs.

    Havent been on for a while as things have been calm at last. 14 year old son is back at school full time, he is in Year 10, joining in with games 3 times a week and has a smile on his face, which is a pleasure to see after a difficult year; involving depression, hating school, wanting to self...
  3. Bubbly

    Not sure what is going!

    Havent been around for a while, son seemed to be improving, depression is getting better, and back at school 70% of the time, so we thought everything was at last going in the right direction! Then bam..... He had his 4th infliximab infusion 10 days ago, and initially all seemed well, very...
  4. Bubbly

    Depression

    Hi, havent been on for a while for one reason or another but thought it was time to seek some advice from other parents! !4 year old son, who as per previous post, hates school and wants to leave and be home schooled, currently keeps a diary of his thoughts. When we visited the physcologist the...
  5. Bubbly

    3rd Infusion Complete - Sore Tongue

    C just had his 3rd infusion today, all gone well no problems at all. Picket up a KFC on the way home as a treat and a coke! Blood results are good, white cells coming up nicely 4.2, gained 2kg in 4 weeks and grown 1cm, so all going well. However, tonight he couldnt eat as he complained of a...
  6. Bubbly

    School life!

    14 Year old son returned to school today, first time since february, due to constant pain and extreme tiredness. Currently on infliximab, had 2 and 3rd loading dose is next monday, so far so good, and he is picking up at last. Have been a few problems with bloods, he was on azathioprine but...
  7. Bubbly

    Bad painful night for son!

    Well son had been picking up really well since his 2nd infliximab infusion last Monday, colour in his face once again, arguing, sulking, eating, all the things a 14 year old should be doing, and sleeping well at night, all positives. However yesterday went to grandparents, all of us for Easter...
  8. Bubbly

    Azathioprine

    Any advice would be appreciate, thankyou. Son has just had his 2nd infliximab infusion yesterday, and all gone well. They did bloods as normal and received phone call last night, that hubby took, and been told that the azathioprine is doing to good a good job and his white blood cells are low...
  9. Bubbly

    2nd Infliximab today and gained 1kg in 2 weeks

    Well, son has had his 2nd infusion this morning and all gone well. He is very chilled and relaxed about the whole thing, which i think is a good thing. He has gained 1 kg in 2 weeks, which is good news, and a positive sign, he has been feeling hungry and wanting to eat, as a rule little and...
  10. Bubbly

    Burping!

    Odd one this! Since my son started on Infliximab/Remicade he has done nothing but burp! Its been 9 days since his first infusion, and he just burps constantly, drinking and eating dont trigger it!! He is still currently at home as still in pain and discomfort, and has dizzy spells, appetite...
  11. Bubbly

    Medical Alert items!

    Hi, just wondering if anybody uses any form of ID on their child to notify of medications they are currently on? When my son had is first infliximab shot yesterday he was given a card to carry at all times with him, being 14 think that is going to be tricky to get him to remember to pick it up...
  12. Bubbly

    Start Infliximab on 11th March!!

    Well after doing reasearch we have decided to go the Infliximab route! It is a huge step for us and after reading through the threads it is a big step for everybody on here. The other choice was steroid treatment, but this is short term only, and the side effect where awful for my son. Mostly...
  13. Bubbly

    Infliximab v Steroids??

    Results are back from scopes and mri, major flare up, no suprise, mainly in the areaof small/large bowel, and also colon this time, which is a first. Treatment options are; steroids (pre.... cant remember the full name, or infusion, infalaxib, sorry spelt that wrong, will look it up shortly...
  14. Bubbly

    Tests done - awaiting outcome!

    Well, that seems to have been 3 very long days, lots and lots of waiting around, nearly running out of theatre time, but got there in the end!! Upper endoscopy and colonscopy performed yesterday, which sadly revealed lots of inflamation. Upper endoscopy - normal looking. Colonoscopy - large...
  15. Bubbly

    Picolax - How to get yoiur child to drink it?!

    We have started on the pre procedure process, how to clear out child! Had the seno.. this morning, nothing happened yet, just been battling with son to have first Picolax, had tears, sobs, yelling etc, eventually got it down him, but it was a struggle with lots of gagging going on also! Any...
  16. Bubbly

    Barium - NJ tube or drink!!

    Broke the news to son last night about forthcoming tests to be carried out, scopes said ok, dont mind as i am asleep, mentioned MRI, and the sobs started, dont want the tube up my nose, not having it, followed by, excuse my language but he said "its all a load of bollocks!" i was shocked by...
  17. Bubbly

    Frustrated for 13 year old son!

    Havent been on this forum for ages as things seemed to have settled but how wrong was i! Brief over view of whats been going on; Diagnosed with crohns in October 2011, through scopes, initialy tried liquid diet, which was a nightmare, so after 1 week came off and went on steroids, which seemed...
  18. Bubbly

    Things are looking up!

    Well it has been a while since i have been on the forum, but thought i would just update everybody on here how Callum is doing. All his results from colonoscopy and MRI where as expected if not slightly better than expected, he has a slight thickening caused by scar tissue which causes his...
  19. Bubbly

    Tests done - awaiting results!

    Havent been here for a while so thought i would update you with a progress report; Callum hasnt been to school for a whole term due to sickness episodes, was diagnosed in October with crohns/colitis, treated with 2 doses of steroids, it was only when he was off the steroids that the sickness...
  20. Bubbly

    Awaiting tests!

    Thought i would just make a new post as easier. Callum who is 13, has been suffering with sickness after eating, no particular food, saw consultant last week, and was told it was possibly scar tissue on the section between large bowel and small bowel, that is causing the narrowing so unable to...
Top