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  1. suschex

    Crohn's Disease and Remicade questions general and specific

    I'm curious how many Remicade infusions different people had before they were in "remission"? I will have my 3rd infusion Friday, March 7th. I was in the hospital on IV steroids, IV Cipro and IV Flagyl for 7 days and then: Prednisone 40mg for 2 weeks Prednisone 20mg for 2 weeks Prednisone 10mg...
  2. suschex

    Bloat/pressure question

    Within minutes of eating anything at all my belly bloats (based on my pregnancies, I end up looking looking 6-9 months pregnant) and feels such pressure and fullness it hurts and feels like it will simply rupture. It also makes me feel very short of breath. What is happening inside? Why...
  3. suschex

    Can 6MP induce remission?

    I have been on Humira since Nov. Colonoscopy on Jan 13 showed complete remission. I had to stop injections for a month due to infection and after several weeks I began to have some symptoms (however, the joint pain side effects resolved) I went back on Humira. After about four weeks the...
  4. suschex

    Did you have to stop Humira due to side effects?

    I am wondering what side effects caused people to stop taking Humira. I began Humira in November. I reached remission around 12 weeks. Then I had to stop injections due to Strep Throat. During the time off I realized I had some negative effects slowly going away. I had not even realized...
  5. suschex

    Remission but at what cost?

    I started Humira 12 weeks ago today. I had never had sacroiliac pain before in my life. Now, since starting the Humira I have it so terribly it is difficult to move about at times. I also have terrible pain in both of my calves for no reason. It is now difficult to get up from a squatting...
  6. suschex

    Humira=Remission!

    I had a colonoscopy on Friday the 13th (too funny!) and my colon looked perfectly clear of any disease. The doctor said I am in remission...it is still hard to believe. Humira did it in 8 weeks....let's just hope it lasts a good, long time now!!! Even though I don't feel the way I did before...
  7. suschex

    I knew it wasn't working :-(

    Diarrhea and bleeding started back up...looks like Humira isn't going to do the trick for me...enough already, just take out my colon (the only area of disease I have ever had) and let me move on with my life!!!! Just needed to vent! So frustrated! :ymad: Thanks Suz :ybatty:
  8. suschex

    Colon (Large Intestine) Only - Anyone?

    I am looking to connect with others on the forum who have Crohn's Disease that only effects their large intestine/colon.. I was dx'd in Oct 2010 with severe, advanced pancolonic disease. This forum has been a life saver educationally and emotionally! I can't imagine the last 3 months if I...
  9. suschex

    Prednisone while starting Humira?

    I was wondering what dose of Prednisone or other steroid you were on when you started Humira? How long did you continue the steroids after starting the Humira?
  10. suschex

    7th injection...fingers crossed!

    I just gave myself my 7th Humira injection and am really needing it to start working for me sometime soon! I know the research shows that in cases such as mine there was not a response until 12 weeks but another 8 weeks feels like a long time :yfrown:
  11. suschex

    D started back- is it the taper or the flare?

    I started feeling poorly about 10 days ago when I got down to 10mg but no D just gradually felt worse each day...fatigue, headaches, lost appetite, nausea, general sense of feeling ill almost like the flu. Anyway, now I am down to 5mg, feeling terrible like I did when this all started and now...
  12. suschex

    Feeling so sad...

    I'm just feeling so sad today. I saw a few old pics from a year ago before all of this Crohn's stuff became a dx'd part of my life. In one I had just finished up a 26.2 mile training run for an upcoming marathon which I never got to run...it wasn't going to be my first but still it was what I...
  13. suschex

    Worried - strep throat not getting better 5 days after treatment

    This is the first time I have been ill (non-Crohn's ill) since starting Humira and I am not sure if I should be worried... Last Friday, I went to my GP sick and it turned out to be Strep Throat. He gave me a shot of Penicillin. Prior to CD and Humira I would have been feeling all better in a...
  14. suschex

    Being a Mom during a flare...

    I love my kids so very much...they are my heart and my happiness! It is just so hard sometimes to devote my days to them being a stay-home-mom when this disease seems to demand all of my attention. Now 9 weeks out from being diagnosed with CD, finding out I am steroid resistant, starting on...
  15. suschex

    Strep Throat and on Humira - bummer!

    I haven't felt well for several days now but with CD flare, pred. taper and newly on Humira (6 doses) it's not like I ever feel very well. :lol2: Well, this morning I finally decided to go see my GP and found out it is strep throat...really?!?!?!?! Ugh...well a nice thick shot of penicillin...
  16. suschex

    How long did it take for Humira to work for you?

    How long did it take for Humira to kick in for you? Was it able to get you CD into remission or just improve your disease? Was Humira used to induce your remission or just to maintain your remission? I have steroid-refractory CD so we are hoping this will induce remission since steroids...
  17. suschex

    Finally Tapering Off Prednisone!!!

    I am so excited! I am finally coming off the 40 mg. Starting tomorrow I will take 20mg for a week 10mg for a week 5mg for a week DONE!!! Does this sound like a typical taper? What should I expect while tapering? So happy to finally be coming off this stupid drug that didn't help anyway...
  18. suschex

    How do they judge/track a Crohn's flare without diarrhea as a symptom?

    I have been told that to track/judge/manage a Crohn's flare the doctor looks at number of bathroom visits per day as well as bloodwork. However, I have no diarrhea and my blood work doesn't show anything at all, ever. I know that my colonoscopy/biopsies 7 weeks ago showed sever Crohn's with...
  19. suschex

    Haven't felt this sick since ER visit that dx'd Crohn's - Any Advice???

    Yesterday marked 6 weeks since my hospital visit/colonoscopy that dx'd Crohn's. I had felt a bit better in the last week or so but feel so badly today I wish I could go back in the hospital for help. Still on 40mg of Pred. Humira should arrive today but can't start until a nurse does the...
  20. suschex

    So excited - Humira will be here Tuesday!!!

    I can hardly wait until my Humira is delivered this Tuesday....with any luck that will put me one day closer to remission and to being off Pred! One little bummer is that the nurse I have to see for the load doses will be out of the office until the following week. I am seriously considering...
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