• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Kela80

    Stools after sub total collectomy

    Was wondering if anyone who had had their large colon removed has normal stools , ie not loose? If so did it take a while , what meds you taking? What foods you avoid ?
  2. Kela80

    Budesonide (entocort) - stomach pain while travelling overseas

    Hi I'm currently travelling overseas and my doc gave me budesonide in case if my symptoms got worse. I was going to toilet very often and was seeing more blood in my stools. I started with 9mg in morning yesterday morning and by late afternoon I had bloating and stomach pain. Woke up this...
  3. Kela80

    Antibiotics make Crohn's better

    Hi there. Does anyone else have symptoms that improve when they take antibiotics? I have no large colon so normally runny stools but a few Days after starting antibiotics they seem to improve considerably. Does anyone know why this would be the Case. Has anyone else taken antibiotics long term ?
  4. Kela80

    Reversal of Ileostomy Complete

    Hi all, i had my stoma reversed 29th May after 18 months. The surgery went well, i started fluids 24 hours after and my bowels woke up pretty quickly which was great. was on endone for pain relief but worked out it was slowing the bowel and causing me to get bloated and destended so changed to...
  5. Kela80

    Reversal 10 days and Loop Ilesotomy

    Hi Guys, Today is my 1 year stomaversary and stage 1 of reversal scheduled for 5th December. I will be changing from an end ileo to a loop ileo. My questions is - does the shape change from round to oval? is it harder to use the dermacol seal if you can at all? do you get more leaks? does any...
  6. Kela80

    Anxious abou Reversal

    Hi Guys so its coming up to a year since i had my sub total colectomy and ilesostomy and after being very ill for quite some time life has been great. i am the healthiest i have ever been and much hapier. I have changed my life around from always being busy, driven, non social and making a...
  7. Kela80

    Ileostomy Reversal - Two Stages? How Long is Recovery?

    Hi it coming up to 11 months now that i have had my ileostomy where i removed 80cm of the large bowel. i met with my surgeon a couple of weeks ago who is willing to do the reversal in 2 stages because he is very happy that i have gained weight and my general health is very good. He wants to do...
  8. Kela80

    Reaction to Infliximab on 5th Infusion

    Hi I recently had my 5th infusion of inflixmab and about half way through started getting itch and a rash developing all over my body. On my previous infusion i had it done over 1 hour and i was fine compared to the 3 hrs it would normally take on my first 3 infusions. The infusion was stopped...
  9. Kela80

    Remicade and increased LFTs

    Hey Just wondering if anyone on this forum has had elevated liver function tests from starting remicade? If so how many times the normal where they (ast and alt) and how long after did the side effects present themselves. Thanks in advance.
  10. Kela80

    Tucking in

    Hi Just wondering if most people tuck their bag in or leave it out and cover with a long t shirt like I do. I get worried if I tuck it in it will reduce the amount the bag can hold and it will fill up quicker? Also I have a waist band which helps the bag feel secure but have not worn it much...
  11. Kela80

    31yr male - severe crohns 11 yrs - subtotal colectomy

    Hi I've been on this forum reading all the insightful posts in helping me get through what has been a really difficult 2 yrs. I've had crohns for 11 yrs. I also have psc (primary sclerosis cholangitis) which is narrowing of the bile ducts and can be associated with crohns. In my journey I've...
  12. Kela80

    Emptying

    Hi all I had a subtotal colectomy approx 4 weeks ago and ended up with an ileostomy. I'm coping ok apart from the fact I need to empty it 10-15 times a day. I lost about 12 kg and was down to 61.5kg (I'm 6'2) and after 12 days I'm 66kg. I'm not sure if it's outputting so much because I'm eating...
  13. Kela80

    Odours

    Hi I'm new to the forum. I'm a 31yr old male and have had crohns for 11yrs. I also have psc (primary schlerosis cholangitis) and pancreatic deficiency. Having crohns is bad enough in terms of having to use the toilet so often, these days my gas and bowel motions smell really bad that I'm...
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