• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Snap

    Anyone with hypoglycemia problems?

    :( Hi everyone! I have been feeling very woozy and extremely fatigued, so had labs done, and non-fasting blood glucose was 54 (normal is 70-100--and the brain starts to get really funky and stressed at 50 and below). Next week I'm having a C-Peptide test (and have to fast for 12 hours which...
  2. Snap

    Weight Issues?

    :Flower: Hello everyone! I'm curious to know if any of you fellow stoma buddies still have a case of the "kinda skinnies." I'm a bit over a year out from surgery, and really have no issues other than dehydration sometimes. I eat whatever and whenever I want--and I am still totally amazed that...
  3. Snap

    Happy Birthday Volci (it was named Blossom--but he's too wild)

    :birthday2: Wow! 1 year tomorrow my stoma was born. How amazing, actually makes me feel weird knowing just how SICK I was 1 year ago tonight as I was bowel prepping AND attending my son's Christmas program at the school. Yikes! Not sure if Celebrate Icon is totally appropriate, but I'm...
  4. Snap

    Does anyone have issues with the rectal scar?

    :bigwave: Hello everyone! Hope all is well. Wow--11 months post ileostomy surgery. Stoma is great--keeping my fingers crossed on that one. I've renamed Blossom the stoma to VOLCI--short for volcano because it's always spewing everywhere! LOL. Just have a few issues with hydration--had an...
  5. Snap

    Fellow Barbie Bums, have a ?

    :arghmatey_ani: Hello everyone--for those of you with sewn up arses. Okay, original surgery was 7 months ago yesterday. Wow. Ileostomy seems to be doing well. It's the butt! I hate to complain, I have no drainage or wound issues. I just underwent a scar revision 3 weeks ago, the surgeon...
  6. Snap

    To My Bum Incision Mates

    :bigwave:Hello everyone! Happy Mothers Day to the Mommies! Okay, I hope that I don't sound like a whiner---and this is not a giant issue since I feel soooo much better since surgery. I am 5 months post op. Wow--how do I word this?! Ummm--where the anus is sewn up feels super tight still. I...
  7. Snap

    I cried!

    :ywow: SOOOO last nite I had that funny feeling that perhaps I had a leak or maybe a sore or I guess I just didn't know what the hell was going on--I just didn't feel right. I'm not the best at changing the wafer and all it entails--but the more you do it blah blah. Okay, after I get...
  8. Snap

    Need help with ouchy peeing!

    :( Hello everyone--I need your expert advice! I am now 3 weeks postop abdominoperineal resection/ovary excision. Blossom seems to be doing really fabulous--even shrinking a bit--and soooo far I've only had one leak. So those of you that have had this surgery (or any other bowel surgery for...
  9. Snap

    Make me relax!

    :eek: Okay--I know what works for one may not be the fix for another. I also know that I'm only 15 days post surgery--but what works as far as ileostomy brands? I have thin, pale, irish girly skin that has been traumatized off and on over the past 12 years with steroids. I came home from the...
  10. Snap

    It has a name!

    :lol2: To My New Family of Friends: Since joining this lovely forum, I have obviously noticed how ya'all have named your stomas. I have been going back and forth and to and fro trying to come up with a suitable name. I thougt I'd let you know because it's funny--and we all need to laugh or at...
  11. Snap

    Gotta butt question!

    :cool: Hello friends! Okay, I'm 11 days post ileostomy/abdominoperineal resection/ovaries chopped out, etc. Um, I went to the surgeon 2 days ago to have the last drain pulled at the bottom of my bum (WHAT A RELIEF---I CANNOT TELL YOU HOW HAPPY I WAS TO HAVE THAT STUPID THING OUT). Anyway...
  12. Snap

    9 days post surgery

    Hello everyone! Got home 2 days ago, which made it exactly 1 week in hospital after abdominoperineal resection. Surgeon had to remove ovaries and tubes as well---they were swollen and ugly. No cancer. I got the last drain removed today from my bum----oh thank you! Abdominal incision looks...
  13. Snap

    Tomorrow is coming!

    :frown:Okay, so I just drank the heinous bowel prep for the very last time--I must say that it feels wonderful saying! I swear I have just drank liquid Draino---my small intestine is going up in flames---so here comes the large intestine. I do no solid foods for 2-3 days--then a ten ounce...
  14. Snap

    Spooked!

    :pale:Hello everyone----yikes 3 days and counting until abdominoperineal resection surgery. I'm trying to get everything organized. My 9 year-old is struggling with the thought of mom being gone for about a week. My 12 year-old is doing a little beter--maturity helps some. I must say that it...
  15. Snap

    Help Finding Samples

    :bigwave:Hello Everyone--11 days and counting until abdominoperineal surgery. Okay, obviously I have no clue what ostomy appliance I will be using, but I wondered if anyone had numbers that I could call ahead of time to obtain free samples? I am not sure of all of the brands available, and what...
  16. Snap

    Gearing up for surgery

    Hello everyone! I'm a newbie. I am 41 years old, married with 2 wonderful boys. I was diagnosed with Crohn's disease in July 2000. It was 80% involved in the large bowel. 11 1/2 years later, I have been in and out of the hospital, have tried 6-mp, been on the dreaded Prednisone...
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