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  1. Roxymusic

    Use of Entyvio and TNF A blocker too

    Have any of you used Entyvio along with a biological such as remicade, Humira or cimzia? There have not been any trials, according to my gastro, and only some anecdotal evidence that a combination can work even better. Clearly, if it did, insurance would be a issue. Both of them would not have...
  2. Roxymusic

    Lack of Cimzia Posts?

    Remicade and Humira must be way more popular and used more since there is all kinds of activity on those forums. However, after my first loading dose - no fatigue or any other symptom. I figured I wouldn't like the injections after the easy Humira injector (I'm supposed to stick that Cimzia...
  3. Roxymusic

    Retirees on Biologics?

    Any body 65+ out there on biologics? Im wondering how the feds are going to treat me once I hit the magic age. I see all the co-pay cards go away from Cimzia, Remicade and Humira. How do 65 year old retired people in the US afford these then on our Midicare/Medicaid programs?
  4. Roxymusic

    Merry Christmas remicaders!

    I started remicade about three years ago and I went from awful to better. Here is wishing all of you an easier time in 2015.
  5. Roxymusic

    Incomplete Grade on my Colonoscopy

    About the only thing amusing about Monday's colonoscopy is my Dr. couldn't get the scope into the small intestine due to the constriction from Crohn's at the joint between colon and small intestine (after several previous surgeries there). So I didn't totally fail (inflammation at two spots) but...
  6. Roxymusic

    Remicade and pneumonia

    Well, my happy experience with remicade has just ended. I was dx'd today with pneumonia - my 7th maintenance dose was to be nov 2nd. I go back to the crohn's dr Tomorrow with more info forthcoming I'm sure. Headache 100 fever for several days Not much of a cough. The dr went into overdrive...
  7. Roxymusic

    Sitting here for maintenance remicade #4

    Im doing great on 5mg, pepcid and decadron since December. Sleepy time in about 20 minutes. Crohns lunch of champions - pretzels and a ensure. Not sure I can get the cap off with an iv in the hand though. Ahhh nice nurse came and opened it. All others here are getting chemo. I do not envy...
  8. Roxymusic

    Just started

    Just started the remicade ifusion. Benadryl,dexadrim, Pepcid given to me first. Smooth sofar.
  9. Roxymusic

    James Garfield's intestinal issues

    I just listened to the us national public radio reading of ch 17 of "president Garfield and the destiny of the republic." Some of us may think our doctors a little less than competent and caring at times - imagine though having doctors feed you raw beef on stale bread to treat yout intestines...
  10. Roxymusic

    Remicade pending

    Well I get my tb test tomorrow, tests for hepatitis and something I have already forgot. At least the scope biopsies last week that showed the inflammation was not pre cancerous. I await the all mighty insurance company.
  11. Roxymusic

    Crohns never sleeps -just like rust

    When I was 16, after every meal I had to loosen the belt, never knew what it was, just discomfort. Then i would go out and play all the sports all the time. Then just before starting college, appendicitis that was diagnosed as regional enteritis by the dr who delivered me. 7" resection. He had...
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