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  1. Cosmojo

    High level of symptoms and remission

    I have a couple of complicating conditions with my Crohn's, such as Hashimoto's and Cluster headaches, and arthralgia. How high is your remission baseline? I am still having D multiple times a day, lack of appetite, and abdominal pain. They are suggesting if the MRE shows nothing that this is...
  2. Cosmojo

    Crohns with negative colonoscopy

    So I've been sick for a few months now and just got the results of my colonoscopy and almost negative. A ct a few weeks ago showed some colon inflammation and I have an mre soon. I have D, vomiting, severe gut pain, and some joint pain and mild fevers , compounded with severe exhaustion. I have...
  3. Cosmojo

    Just miserable

    Upper and lower scope in the morning, but I'm struggling because I'm so bloated I look 8 months pregnant, have been unable to stomach much for the past few days. Nervous I'm gonna throw up the prep, having trouble with a bowel movement....I'm under suspecion of major colon stricuring. My GP is...
  4. Cosmojo

    Diverticulitis-what is standard?

    Hey so I'm in the middle of some sort of epic flare, a CT scan about 3 weeks showed some bad diverticulitis and generally inflamed colon, but as the flare progresses I'm noticing the effects of the diverticulitis, like my colon is hoarding things.... I took Pentasa a year ago, and it has those...
  5. Cosmojo

    A Success story

    Today I told my research adviser about my condition and he said that when I get my new work laptop (which he had already ordered for me) that I should just have IT set up remote connect so that I can just work from home and in bed whenever I need to! :) He said I should "do whatever I need to...
  6. Cosmojo

    Cimzia after Humira and Remicade

    After talking with new doctor about potential options she mentioned Cimzia but said its not a great option because Humira didn't really work for me, and Remicade worked for a few years and then I got major side effects like joint pain, gluten intolerance, fibromyalgia. Has anyone has success...
  7. Cosmojo

    Getting the full workup

    Hey guys, some of you have seen me posting about not feeling good recently so I thought I would just update here, plus it gives me a chance to vent on all that is going on. I'm struggling with terrible cramping pain, lack of appetite, uncontrollable D. I ended up in the ER last week because I...
  8. Cosmojo

    Most effective test

    In your personal experience what test (CT, scope, pill camera, MRE, ect) has shown your disease most completely? I was in the ER today because my doctor can't get me in and really wanted to rule out a bad stricture, the official report says no acute inflammation in terminal ileum but some in...
  9. Cosmojo

    Anal leakage

    This isn't embarrassing at all...but I basically always needing to use the bathroom at this point, the time in between is just how long I can hold it. This has lead to some anal leaking. I'm not sure if I'm getting leaking from the frequency of the bathroom visits or if there is an actual...
  10. Cosmojo

    Doing something stupid

    I've been posting a lot on here in the past few days, I've fallen into this massive flare up and can hardly eat, super weak, fevers, the whole deal. The really bad things is tomorrow afternoon I fly to LA because I have a week long consultant work at JPL (jet propulsion lab) to do. Basically one...
  11. Cosmojo

    One side of belly swelling

    I've been having really bad pain on my lower right side, it comes and goes, and after I eat it is terrible!!! I've noticed that the right side of my belly is larger than the left, its also warm to the touch. I don't think its a blockage because I am still using the bathroom- anyone have...
  12. Cosmojo

    Flares suck

    Lets be real, flares stink- everything about them. I'm gonna list the reasons, please feel free to add your personal reasons why you hate them 1. you need to see a doctor but somehow you always hear "he is booked through the end of the month"- and secretly you think some terrible thing about...
  13. Cosmojo

    How often do you get scoped?

    I've had to move around a lot recently due to major life things, but I've had 2 GI's who basically never care about my terrible blood work and symptoms, the first thing they want to do is a colonoscopy, and I don't do well with those TERRIBLE cramping and barfing every single time. If I say no...
  14. Cosmojo

    IBD and IBS?

    so all my tests (MRE, colono) show mild inflammation, but my symptoms are far worse than we would expect from such low levels of activity. Although my lab levels are terrible. My most recent GI who isn't a true IBD specialist thinks I have IBS and IBD, which I kind of think is just a cop out. I...
  15. Cosmojo

    Getting around insurance

    My insurance situation is currently extremely complicated. The list of providers for GI in my area is small, and one of the large clinics when I called to schedule an appointment they actually turn down my insurance (I'm working on solving it) but until then there is no IBD specialist in my area...
  16. Cosmojo

    When you just can't miss work

    So I'm at a work conference, in the middle of no where, very cool conference but I'm in the middle of a horrible flair. I can't just sit in bed the entire time because I'm expected and need to be at certain sessions ect. not to TMI ya'll but I can't be away from bathroom for more than 20 mins...
  17. Cosmojo

    Pentasa poo TMI

    This is probably way to much information but I'm on 4grams of Pentasa daily, and there seem to little bead type things in my poo, and on the TP. is this the meds just going through my system?
  18. Cosmojo

    Liver troubles

    Recently when I was in the hospital and labs seemed to indicate my liver is having a hard time "keeping up" doctors said with the amount of meds they were giving me it wasn't rare to see my liver having a hard time keeping up. Now that I'm home I just woke up screaming in pain in upper right...
  19. Cosmojo

    Pentasa dose

    What dose of pentasa are you on? My doc perscribed 4000 mg a day for a the first few days then 2000 mg a day, the pharmacy is refusing to give it to me because they say its too high for someone my age/weight. What dose are you on?
  20. Cosmojo

    In hosptial, lonely

    Hey, I got admitted to the hospital 2 days ago when I was finally able to get my doctor to hear me out on how nasty I felt, and I was hesistant to go in, simply because I didn't really know what he was going to do for me. After lots of labs, and a colono, and an MRE that was done a few days...
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