• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Nell Bell

    I am so confused!!!

    I was diagnosed back in July with crohns following a colonoscopy which showed inflammation in the cecum and iliem (sp), tried a bunch of different meds and now doing remicade. I went back to the doctor today because I was in the hospital a few week ago and they did another colonoscopy this time...
  2. Nell Bell

    FYI ~ Hospital update!!!!! And a big THANK YOU for your guys support

    Update; so I had a colonoscopy today to see exactly what my crohn's has been doing, it's crappy (literally) but they are managing my pain, vomiting and dehydration. All positive things have happened today. The hospital even made me a birthday cake!!! My mother inlaw brought my son up and I was...
  3. Nell Bell

    Spending my 30th in the hospital...

    So of course one can never predict when we will get sick or for how long or how severe. One thing I do know is I do not want to spend my birthday in the hospital, but I am not getting that wish this year!!! I'm sad, angry, in pain and ready to lose my mind! It's more time away from my son, my...
  4. Nell Bell

    Pain in the butt? Literally!

    Does anyone ever have pain (stabbing, tightness, sharp, debilitating) in their rectum? I have been having pain in my butt for at least 6 months and when I first started my remicade it subsided, but not for long (maybe 3 weeks). It's not constant but when it happens it takes my breath away, I...
  5. Nell Bell

    I'm sure it's been asked before...

    I'm due for my 4th infusion on the 31st of this month and still do not have a whole lot of relief... So I guess my question is " how long before I feel results? The only thing that has changed for me is instead of going 20/30 times a day I'm going about 10/15 times a day, I'm still running...
  6. Nell Bell

    So over it!!!!

    I'm so over being as I know most of us are, but every time I see a glimmer of hope it's snuffed out!!! I have tried so many avenues and still no results. I know I still need to give the remicade time to work but my god!!!!!! I'm still going (on a good day) at least 10 times a day no matter if I...
  7. Nell Bell

    How long do you hold out on going to the hospital?

    I'm new to this site but not new to the debilitating nastiness of Crohn's Disease... I wanted to get a little input about how long you should hold out on going to the ER when dealing with a flare up. I have been dealing with this one since July, I'm exhausted and so over this roller coaster! I...
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