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  1. I

    We have a pill swallower!!! :-d

    The liquid script for Bentyl is still not in at the pharmacy so I went in today (she's having another episode of LLQ spasms) & asked if they could just do a partial fill of just 3 or 4 pills as the liquid should be in tomorrow afternoon. On the hope that maybe somehow she could magically learn...
  2. I

    Egg/sulphur burps?

    My daughter complains of this a lot, esp in conjunction with her LLQ pain flaring, as it is this morning. She tastes it even when she's sneezing, she gets a lot more mild burps that are more like hiccups & tastes it... does anyone else have this as part of their ongoing issues?
  3. I

    Room for one more in here?

    Well, move on over folks.. Rosalyn is an official member of the undiagnosed club for a little while. We thought we'd go in today and discuss treatment options. Turns out, the GI doesn't feel comfortable totally diagnosing her as Crohns yet. There's lots of little circumstantial things, but no...
  4. I

    Stiff/sore muscles over problem area?

    Rosalyn is getting better at describing her pain. She hasn't been feeling well since Friday. Has not been eating well, if at all, having diarrhea, etc. In addition to getting sharp double-her-over flares of pain that last thirty seconds to maybe two minutes in her problem spot, she's also been...
  5. I

    Hmm, having a little flare & no treatment plan yet

    I figured out through food journaling & lots of sleuthing (Dad isn't so good w the food details) that POPCORN was the common denominator in the past three world-ending horrible pain, vomiting & diarrhea episodes, one resulting in hospitalization. We've eliminated popcorn. :) (she snuck a few...
  6. I

    Are your kids just plain nauseous a lot?

    Esp first thing in the morning? Ros often starts out the day with nausea. She pushes through it, just wondering if this is common.
  7. I

    Was almost hopeful I'd join the Undiagnosed Club

    Blargh. First of all, I like this GI less and less. He has the personality of a badger, that's had a stroke. Couldn't go to our followup appt for Prometheus results bc I was in the hospital with campylobacter & the girls were at home sick as heck with it as well. So we asked for a phone...
  8. I

    Doctor won't let herself be fired?

    My brother is on a charity care insurance-type program from UPMC in Pittsburgh, so he is limited to care within the hospital. It has a very large & well-staffed Rheumatology/Autoimmune Clinic. He totally hates his doctor there, has always hated her. She is rude, narrow-minded, condescending &...
  9. I

    Posting for my brother

    Somehow, I think my daughter being diagnosed at 10 with Crohns has helped spur my younger brother back into getting himself well again. YAY! He has been off all medications for both his Crohns & Ankylosing Spondylitis for over a year now, and unlike many Crohns patients, his AS is very severe...
  10. I

    We all just had a taste of bloody diarrhea

    Been gone for a while, because my entire family has been sickened with campylobacter food poisoning! I just spent three days in the hospital with bloody diarrhea so severe, the infectious disease doc first suspected cultures would come back with e coli! Oh, my, gosh. Rosalyn & my other daughter...
  11. I

    Leaving school early again today

    Dizziness & lightheaded again. It seems to be lasting longer when it happens. She was in the nurses office for 20 minutes when the nurse called, and it still hadn't passed even with laying down for that time. Nurse & I chatted for 10 minutes, and I decided to pick her up - she was still feeling...
  12. I

    Dizziness & racing heart?

    Something Rosalyn never experienced before symptoms started regularly was episodes of dizziness & feeling lightheaded. She feels like she needs to "step outside" & maybe take some deep breaths of cooler air. Her heart doesn't pound that I can feel, and she isn't wheezing or anything, and she...
  13. I

    Probable Crohns Mom - bundle of questions & nerves

    :(:(My daughter Rosalyn, 10, began with episodes of vomiting & extremely watery diarrhea (no solid stool at all, just brown water & some undigested food) around Thanksgiving. The episodes happen about once every 5 days to 2 weeks, and only last a day or so. They are accompanied by severe abd...
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