• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. J

    Allergic to Lialda?

    I've been taking lialda for a while and I am doing really well on it. I started with 4 a day and I'm now taking 3 a day. Yesterday I woke up with my eyes somewhat swollen, this morning it's my eyes and mouth. I have changed nothing recently and cannot find any external cause for the swelling...
  2. J

    I'm feeling better!

    I've been taking lialda for a while now, and at my last appointment the dr added loper....something! I'm horrible at remembering the names of these medications! Anyway, it's an anti diarrheal (yep, spelled that wrong I'm sure!) and told me I could take up to four a day, but to take them as...
  3. J

    Can someone with an IBD donate a kidney?

    I know it probably isn't recommended, but it's very important to me to find the answer. My brother has an auto immune disease that is kidney related and his kidney function is currently at 10%. It has been slowly falling over the past year. He has dialysis 3 times a week, but needs a transplant...
  4. J

    Not real sure where I stand!

    I've had bowel problems for a long time. I recently found a new GI who took me seriously and had several tests, including a colonoscopy. I saw his physicians assistant after the colonoscopy and she said I have microscopic colitis and started me on entocort, which did nothing after several weeks...
  5. J

    Lialda, take all 4 at once?

    Just picked up lialda this evening and the instructions on the bottle are take four pills a day with food. Does it matter if they are all at once or is two in the morning and two at night ok?
  6. J

    Worried about our 10 year old, keep us in your thoughts

    I've been noticing over the past 3 or 4 days that his appetite has really dropped. He's always been thin, but usually will eat everything in sight and says the words I'm hungry every 20-30 minutes. He's 5'2" and weighs 88 pounds. He will be 11 this month. In the past few days he's only eaten...
  7. J

    Called today about entocort not helping

    Called today and talked to the nurse, who in turned talked to the physicians assistant. I've had one bm on entocort that was a little more formed, but it was days ago and it seems to be a fluke. I'm to wean off the entocort over the next two weeks and start lialda today. I don't know what...
  8. J

    Entocort and getting worse?

    entocort and getting worse? I've only been on entocort for a week, but honestly, my symptoms are getting somewhat worse. I do seem to have more energy, but they took me off the amytriptyline which seemed to be causing a lot of fatigue. Now foods that were safe for me before are sending me...
  9. J

    Colonoscopy biopsies weren't normal after all

    I saw the physician's assistant today, and apparently the nurse that called with the biopsy results couldn't read or something! She said the results did show inflammation in the colon. I don't remember what part of the colon, I just remember thinking finally, something points toward an answer...
  10. J

    Colonscopy biopsies came back......

    colonscopy biopsies came back...... normal, of course. The nurse says I need to eat better and exercise more and I'll feel better. Yeah, eat what?! Everything hurts. Soups are my friends, solid food hurts and I have to run to the bathroom in pain after eating it. Exercise, I used to do...
  11. J

    Had my colonoscopy today

    had my colonoscopy today The dr talked to hubby after, so I'm not 100% sure what was said. He did say there was no inflammation, but he did remove some things for biopsy. I'm going to assume polyps. I had one removed during a previous colonscopy just over a year ago. He put me on...
  12. J

    Colonoscopy by previous gi is worthless

    I get to have another colonoscopy next week. Went to my current dr today and he finally got the records from my previous gi. He had done a colonoscopy, took a few biopsies, and looked at the terminal ilium. He did not bother to biopsy the terminal ilium! Yep, a patient who doesn't absorb b12 or...
  13. J

    Question about ct scan report

    question about ct scan report I had a CT scan with contrast and barium enema done in the er on Sunday night/Monday morning. They had me drink the contrast over an hour, then wait an hour. Right before the CT scan they gave me a barium enema. I just picked up the report and disk and the report...
  14. J

    Trying to stay positive but losing it

    I don't go back to the dr again till the 1st, and I'm losing the ability to stay positive about everything, or anything. I usually have a good sense of humor about things, but I'm losing it. This week has been bad, and not just with running to the bathroom. I have zero energy. Just getting to...
  15. J

    I've been doing a lot of research and wondering if anyone else has heard of these

    Let me start off by saying I research things, that's part of how I deal with things. I only use reliable sources, such as mayo clinic, cleveland clinic, etc, along with a few things from pubmed. I do my best to ignore a lot of things that I can't find a few resources for, unless it's a large...
  16. J

    What do you do when all results have been normal?

    So far I've had a colonoscopy just over a year ago, I've had bloodwork for ibd, celiac, and crohns, stool tests, and an endoscopy. All that has come back normal, including all the biopsies. The only think that has ever come back not normal are b12 (don't remember the levels) and vitiman d (it...
  17. J

    Dr office called with egd results

    And they said everything is normal except the inflammation in my stomach, so they want me to take prilosec for heartburn. Yep, that's my problem, heartburn. They will call when the blood work results come in. Never mind that I don't have heartburn and my pain is much lower than the stomach. I...
  18. J

    Had my egd yesterday

    Ugh. I wish the sedative worked the way it was supposed to. They had to give me 2 doses to sedate me in the beginning and I became very alert in the middle and was trying to pull the scope out and tell them it hurt. They must have given me another dose because I don't remember anything between...
  19. J

    My pain was much different last night, has anyone else had this happen?

    I almost went to the er. My pain has been on the left side lower for several weeks, the scale ranges from a 3 to a 7. Last night my right side starts hurting out of nowhere. It's still there, but down from an 8 to a 4. Its pretty much a straight line from my belly button all the way over to my...
  20. J

    List of tests for this week, does it sound right?

    The first gi dr I went to didn't even tell me which tests he was doing, just sent the orders to the lab himself so I have no clue what was done. My new dr sent me my list today and I'm hoping someone who has more experience with the tests can tell me if it sounds like what should be done. Here's...
Top