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  1. maria

    Jpouch and being intimate

    This may be tmi:) but just wondering. About something, i had a ileostomy And now a jpouch for almost 2 yrs. And was wondering about being intimate with a partner, i have to admit im afraid to because i dont want to mess anything up on the inside... but cant even remember the last time ive been...
  2. maria

    Pain meds bad for ibd?

    Is it just me this happens to when your at an appointment they say don't take tylenol,ibuprofin,asperin, because this is bad for your stomach and causes ulcers and for ones that's already bleeding makes it worse. Then at the end of the appointment you say okay now what about the pain? What are...
  3. maria

    Constant cramping jpouch pain relief

    Hi I've had my jpouch for 8 months and I always have very bad cramping to the point of rolling on my bed back and forth I've taken tylenol and ibuprofin and advil and doesn't even touch the pain. I don't want to take narcotic pain med as I have children but I'm pretty desperate for some relief...
  4. maria

    Pain movement at stoma site with jpouch.

    Ok so I had my ileostomy takedown 3 months ago. I'm feeling like a ball and some movement the stoma site with sore feeling. But when I tough it from the outside I don't really feel a ball just scar tissue also in my jpouch I feel constant cramping at all times. Only way to get rid of it is...
  5. maria

    Manuka honey? remedy

    I'm a 100% sure that if I would have tried manuka honey my colitis/crohns wouldn't have been so bad! You guys have to read about it!! It has to be umf manuka honey.. Has anyone tried it? What was it like for you?
  6. maria

    Just got back from hospital from takedown!

    My experience only. If I would have known I would not have done it! The gas pains are horrible! I looked almost everyday for stories on after takedown and it still didn't prepare me for what I went through.
  7. maria

    Leaking around stoma> fissure?

    HI I was wondering if anyone had this happen to them? I think I have a fistula around my stoma because stool is coming from around it( yes the skin) and then through the stoma into my bag and also out my jpouch too (yes I am going to the bathroom normally). My skin is on fire.. Sometimes I feel...
  8. maria

    Loop Ileostomy Vs End ileostomy?

    Just curious what you all think. Heres What I think LOOP ILEOSTOMY'S SUCK!!! SO much harder to take care of they tend to invert more making it hard to keep a seal now my skin is raw and feels like fire! I just want to cut it out myself sometimes:voodoo:. When I had my end ileostomy was not this...
  9. maria

    Jpouch detaching??

    Im confused Ive been goiung to the bathroom through my jpouch and through my ileostomt. I went to hospital cuz of pain and they say its detaching or as they put it coming undone so I have to have surgery. Whats this mean?? Will this meess up my takedown im scared and alone and in an ambulance...
  10. maria

    A little Bit Of Heaven (Movie)

    Good movie about rectal cancer with Kate Hudson. Can relate a little. First one I've seen about any sort of IBD.:heart:
  11. maria

    Skin around stoma burns!!!!!!!!!

    Omg I'm in so much pain right now each move I make it send shocking pains throughout my body! My skin is inflamed!!!!what can I do..I've taken pain meds and they aren't helping me. I've changed my bag so many times soon I'm gonna run out ..I'm worried. I have a loop ileostomy .i have a red ring...
  12. maria

    Just out of curiosity-~~~~~~

    since I was diagnosed it was Ulcerative colitis. When I was about to get my jpouch the surgeon said I had crohns and I didn't agree and he wouldnt do my surgery. But after getting 4 different drs and another surgeon to talk him into doing it and 6 months later he agreed to do it. He basically...
  13. maria

    Ileostomy leaking into jpouch

    Ok I have a ileostomy and I've been having the urge to go to #2 and I actually go!!!!! It's the exact stuff in my bag that comes from my stoma. Also gas, I pass gas through my anus, This is so weird! Is this normal? It's not mucous either I know the difference. I'm 100 percent its stool coming...
  14. maria

    Jpouch abcsess please help me!

    ok so i got a call from my dr and they wanted me to go to the er and get some test. they did a ct scan and found a abscess and now they want to take me 300 miles to a different hopital by ambulance. they dont know whats going on with me. im scared im gonna lose my jpouch. has anybody had a...
  15. maria

    J-pouch surgery

    This is my experience. I have to say I have been put through H*** this week. Worst pain. I still feel horrible. please pray for me.
  16. maria

    1 week! I'll be having my surgery. J-pouch.

    Well I'm about to FINALLY have my surgery!! I'm so excited and nervous at the same time! I'm so scared!!! Anyone have any j-pouch surgery stories they want to share with me?? Or advice..
  17. maria

    Barium enema with Ileostomy?

    barium enema with Ileostomy? Ok so I'm about to have surgery set for May 11th. The nurse called me today and said the doctor wanted me to do a barium enema for my colon.. I'm not sure why I should have this done since nothing is connected. She said to see if theres any openings and said other...
  18. maria

    Depression?

    Ok so lately I've been depressed. Emotional, No energy, weak, can't sleep, pain, just don't want to leave my house, EVER. I've been through some tramatic things within the last few yrs. Loss of my husband/bestfriend, My illness, and just the dealing with children issues. I'm seriosly thinking I...
  19. maria

    Pain.. pain go away come again another day

    I'm up late and can't sleep because my rectal stump hurts( ha ha sounds funny)! I have no pain medication doctor wont give me any because he feels it won't help me or help that area. I just want some relief. I wish my doctor would help me. Shower doesn't help me. Also I'm bleeding a lot tonight...
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