• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. I

    Really need some advice 😓

    Hello all. I'm a 34y old crohns sufferer. Been on all the pharmaceuticals, have never been in full remission. I deal with it as best I can. When Iv started work/uni...anything, it stops me in my tracks. EVERY TIME!!! I'm a single parent, living in Australia. Iv recently started a bit of physical...
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    Just looking for advice 😊

    Hi all, been a long time since I was on here. I posted a thread under treatment...medical marijuanna, but noticed it dosnt come up as a new post here, guessing it's because it's private. Anyone with any experience or possible or advice, could you please look at the post 'smoking vs oil' and...
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    Healing a fistula naturally-does rectogesic help?

    Hi all, been a while since iv been on here. Iv had fissures and a fistula before, which healed over time. This time though, I have a massive fistula and abscess which burst and started draining about 2 weeks ago. My gp said I have to have it surgically treated, but as there's a few month waiting...
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    B2-b3-b12- after illeostomy

    Just wondering if any of you could tell me, wether you can absorb vit b2 after you have had an illeostomy. I had an illeostomy reversal, but had 70cm of my bowels recsected. 50cm of small bowel, 20cm of large bowel. I have vit b12 injections every three months. I also have humira fortnightly. I...
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    Lots of hair loss- advice please :/

    - so iv posted on a humira post regarding hair loss, but thought people with crohns in general may have some advice, as I just read Bre had hair loss with aza as well- So for months now iv had a LOT of hair loss. To the point I don't have much hair left. Not worried its major for several...
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    Ankle leg swelling on humira-

    After looking online just now at possible causes of my feet and legs swelling the past 3 days, I'm a bit worried. Iv been on humira for a year and a half. I normally never get feet or leg swelling, except a few times with cortisone in hospital. I'm not on pred, only humira. The only possible...
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    Does quitting smoking increase chance of remission???

    Just went to see my gi today. Thankfully my crohns has improved a lot on humira, but he asked if I was still smoking. He told me if I quit, it increases my chance of going into and staying in remission by 100 fold. Its made me think I should try quitting or cutting back, but then a few years ago...
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    Humira hair loss/symptoms

    Iv been loosing a lot of hair lately. Brushing my hair this morning it's like half of my normal handful putting it up into a ponytail. Do many of you have hair loss on humira? Iv been on humira for about a year. Lately its making my candida worse (a lot of headaches), hair loss, and my...
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    Do you have some of these symptoms?

    This is off the humira website. I'm freaking out because iv had shortness of breath and some of the other symptoms at times. Do many of you expiriences this on humira? Iv had a cough for about 2 weeks and though I know cold symptoms alone can be worse on humira, after looking at this heart...
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    Humira- weekly instead of fortnightly??

    Iv read on here that some of you have humira shots every week. At first, humira slowed my diarrhoea a lot- from 20+ a day to average 6. Lately it's been a lot more, and especially the second week, before my next injection is due. Is that just something that happens to all of you, or is that...
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    Onion and garlic in IBD

    After watching a doco on Korean food, where they have an average of 7 bulbs of garlic, per week, per person, I thought it would be a good idea to research wether they have, as high ibd rates, as westerners. Lately I've been looking into garlic and onions in ibd and ibs, as it is supposed to be a...
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    Fodmap ideas, family friendly suggestions

    Ok so in my last thread, I didn't include lactose in the fodmap diet list, though this also isn't allowed, along with many stocks (vegeta- most contain onion or garlic), and cheeses. At first I was very worried about my daughter loosing more weight, and just in general no wheat etc, meaning no...
  13. I

    Pred with humira???

    Just wondering if anyone who's been on humira has had to go on pred, but was able to continue the humira. I think my doc will put me back on pred as I'm flaring more and more, and I'm wondering if its ok to continue the humira at the same time, so long term, after flare settles, it still helps...
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    Fodmap diet anyone?

    Just wondering if anyone on here has tried the fodmap diet, either to treat undiagnosed kids/ ibs, or crohns colitis symptoms? I was researching ibs diets for kids, as my daughters pedi gi, basically said her symptoms are ibs. We go and see him again in 3 weeks and I'm thinking of trying the...
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    Crohns flare.... Advice please

    Hi all :) need some advice :/ My New Years resolution was 1) be more health conscious 2) get fit 3) quit smoking. I figured I'd increase my fruit n veg intake then when I can munch a bit of fruit etc quit smoking. My normal diet for the past few months was sustagen all day, then low residue...
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    Ibs diagnosis common?

    So I've taken my 9yo to the pediatritian, and now we wait 3 months for results. His doing calprotectan, and all the blood tests many of you suggested. He said that by her symptoms though. (Mainly daily pain), he would think its an ibs issue. But then after having that bit of reasurance, there...
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    Natural ways to slow/stop D???

    Just wondering if any of you, have any suggestions on how to stop slow down D. I think I'm flaring a bit, which isn't a problem normally just at home, as I wait to go shopping etc until my gut slows down. I've just taken on a little part time cleaning. Normally if I'm close to a toilet this...
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    Antibiotics question???

    Ok so my daughter had gastro with a high temp for 4 days. Few days ago, her temps went back to normal, my crohns started flaring, and began having upper gut issues as well. Thought it will be fine, being gastro only lasts a few days, but. I feel like I'm flaring more and more. So, I have my next...
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    How common is fever in child's crohns/ibd?

    Jasis had a high temp the last few days. Yesterday she was crying clutching her tummy, and had a really high temp. My sister told me her daughter had the same with gastro- but jas has no diahrrea or vomiting. My mum just says don't stress, but I can't help but think, that fever in crohns is...
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    How do you deal with school teachers?

    Even though my daughter hasn't been diagnosed with crohns or colitis, I've let her teachers know I'm stressed that she may have a bowel disease, as I have crohns. I've let her have a few days off, after which, they asked me if I'm 'not coping' getting her to school in the morning. So I explained...
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