• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Earthsoul

    Diagnosed but undiagnosed.

    I was diagnosed in my 20's with ulcerative colitis. All was fine for years. Then I had my son nearly 7 years ago. Since then I have struggled with vomiting and pain when I eat. I have lost 30kg. I am having to have nasogastric feeding which has stopped the weight loss. I haven't gained anything...
  2. Earthsoul

    Deeply confused and feel alone

    I have a biopsy positive diagnosis of IBD, it was in my caecum but not my rectum so my doctors said it was Crohn's disease as it was skip lesions. When I had my son 6 years ago I started to get pain and vomiting, and it has got worse and worse. I have had tests, my last CT showed thickening of...
  3. Earthsoul

    Appendicostomy v Ileostomy

    I have a choice to make, I need surgery as my ascending/ transverse colon have stopped peristaltic movements which means I keep getting blockages. The choices I have are an Appendicostomy (a malone ACE) or an ileostomy. Now I have a fair knowledge on ileostomies, and I have rung a friend who is...
  4. Earthsoul

    Supporting my son to understand my disease

    I want to help my 5 year old son to understand why is mummy is sick so often so I am going to get together (with his assistance) a crohns awareness scrapbook. Does anyone else have any ideas on helping him understand but also cope with his emotions around having a poorly mum!
  5. Earthsoul

    My struggle with IBD

    I was diagnosed with ulcerative colitis when I was 20 - thing is I wasn't told, apparently the consultant tried to call me back but as my life was somewhat chaotic I never received the letters! So I never got to discuss why they believed it to be ulcerative colitis, whether biopsies diagnosed it...
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