11-10-2016, 05:19 AM   #1
J_Matrix's Avatar
Join Date: Oct 2011
Location: Ipswich, United Kingdom
Negative Surgeon?


I am suffering from a stricture, located at the join created when I had my original surgery for crohn's back in the day.

I have had several colonoscopy dilations, without success and now my only option is surgery. The stricture is only 1 inch long and it between my large and small bowel.

I saw the surgeon yesterday who has been allocated to me and he seemed to spend more time telling me what could go wrong and the possible terrible outcomes that I may suffer, that it has put the fear of god into me.

I realize that you have to be told the risks, but honestly I really felt he wanted me to say, 'I think I will leave it, thanks'

Is this something that others have experienced?
11-10-2016, 07:45 PM   #2
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
J am sorry. I would suggest maybe looking for another surgeon.
11-11-2016, 04:35 PM   #3
Senior Member
Join Date: Aug 2012
Location: Cheshire, England, United Kingdom

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I would also suggest another surgeon - my experience was the opposite, it was the GI who was "doom and gloom" and it was my surgeon who was very positive and confident. He made me feel like I was in safe and caring hands.

2nd Generation affected

Symptoms since 08/2006 (age 17)

Emergency open bowel resection after perforation in 12/2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

Perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum)
Coeliac disease (age 26)

50mg azathioprine (down from 75mg after my WBC dropped)
Gluten-free diet

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