Crohn's Disease Forum » Extra Intestinal Manifestations » Joint pain after 20 yrs with CD!

06-09-2018, 08:12 PM   #1
Lucky One
Join Date: Apr 2016
Location: Burlngton, Ontario
Joint pain after 20 yrs with CD!

Always something new and exciting with this disease! Iím 56, have been in remission for 5 yrs now and last several months have been having very troublesome painful joint pain but no bowel issues at all! It comes and goes but mainly and more constant in hips knees heels and now left elbow. Keeps me awake at night. My GI just sent a referral to a Rhemy, but of course it could be months. Currently taking 12.5 mg methotrexate injections weekly. Not sure what else the Rheumy will prescribe? Anyone else have arthritis issues while disease seems in remission? Iím a bit worried about what meds I can take as Iíve had pancreatitis 8 times from various Crohns meds.
06-10-2018, 12:24 PM   #2
my little penguin
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Join Date: Apr 2012

My Support Groups:
Ds has both
Spondyloarthritis can flare independently of Crohns flares

Ds takes a biologic plus mtx
Normally if mtx by itself is not enough
They add remicade or humira plus mtx

Ds took humira plus mtx for over 5 years
And really helped both

He is currently on Stelara plus mtx

Good luck at the rheumo

Tagging Maya142
DS - -Crohn's -Stelara -mtx
06-10-2018, 07:35 PM   #3
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That definitely sounds like spondyloarthritis. There are several kinds - psoriatic arthritis falls under the SpA umbrella, of course Ankylosing Spondylitis is the classic and more severe form of the disease (in terms of radiographic/x-ray damage) and so does enteropathic arthritis, which is what it is called when IBD is involved.

Spondyloarthritis is also classified by the joints that are involved. Axial SpA affects the spine. Have you had any lower back or butt pain? SI joint arthritis is usually the first sign of axial SpA.

Peripheral SpA affects joints other than the spine. The lower limb joints are commonly affected - the knees, hips, ankles but any joint can be affected.

Another feature of SpA is enthesitis which is inflammation where tendons and ligaments insert into the bone. Heel pain (where the achilles tendon meets the bone) is VERY common - probably the most common type of enthesitis. Elbow pain could also be enthesitis or arthritis (inflammation in the joint).

Common treatments are MTX for peripheral arthritis. You may need a higher dose - you can go all the way up to 25 mg. Sulfasalazine is sometimes used but it is weaker than MTX, so you're probably better off upping MTX.

MTX and Sulfasalazine do not work for SI joint or spinal arthritis, so if you have that (in addition to the peripheral joint pain), then a biologic would be your best bet. To rule out SI joint inflammation, usually an MRI is needed.

The biologics used are Remicade, Humira, Simponi and Cimzia - all anti-TNFs. All four of those would also work for your Crohn's.

If you have just peripheral involvement, then Stelara is also a good choice. It's an IL-23 and IL-12 inhibitor. Stelara failed in a trial for Ankylosing Spondylitis (AS), so it's not the best choice if your SI joints or spine are involved.

For the rheumatologist, can you ask to be placed on a cancellation list? That is what we do. I have two daughters and a husband with AS.

This is a good explanation of the types of arthritis associated with IBD: http://www.crohnscolitisfoundation.o...plications.pdf
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
06-10-2018, 09:36 PM   #4
Lucky One
Join Date: Apr 2016
Location: Burlngton, Ontario
Wow! Thank you so much for so much info!

Crohn's Disease Forum » Extra Intestinal Manifestations » Joint pain after 20 yrs with CD!
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