Crohn's Disease Forum » Extra Intestinal Manifestations » Sore Mouth and Tongue/Burning Lips


04-25-2019, 11:26 PM   #1
Lucky_allthings
 
Join Date: Dec 2017
Location: Seattle, Washington
Sore Mouth and Tongue/Burning Lips

Hi All,

Iíve been on remicade for a number of years but my body is now
Building up antibodies andniíll likely need to switch. All manner of side effects, and most recently Iíve been getting sore mouth and burning tongue/lips. I notice I have some small white dot
On the inside of my lip wall too. Anyone else suffered from this?
04-30-2019, 11:44 PM   #2
Lady Organic
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Join Date: Apr 2013
Location: Montrťal, Quebec

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Hi and welcome to the forum
I have never experienced this, but I'd definitely take a picture (in case it disappears) and show it to the gastroenterologist. Maybe its a CD manifestation.
__________________
''UC-like Crohn's'' (2001)
wrists + ankles arthropathies (2013)
on: Humira
Diet: ''IBD-AID'' : http://www.nutritionj.com/content/13/1/5+ organic food only, Vitamin D + B12 shots
Past meds: prednisone 50mg, 5-ASA (pill, rectal), cortifoam, cortenema, Imuran, Purinethol, methotrexate.
05-01-2019, 06:52 PM   #3
Lorac
 
Join Date: May 2019
Location: Berea, Kentucky
I frequently get sores in my mouth and have a sore tongue when I am having a flare. I also have similar symptoms when my B-12 level gets too low. I donít think it is related to Remicade. I, too, developed antibodies. I spent a week in the hospital recovering from my reaction to it and had lupus-like issues for over a year from it. The mouth sores, however, were present both before and after the Remicade.
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Crohn's Disease Forum » Extra Intestinal Manifestations » Sore Mouth and Tongue/Burning Lips
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