Crohn's Disease Forum » Treatment » Remicade/Infliximab » Remicade / Renflexis Cough


07-18-2018, 07:24 PM   #1
kiltubrid
 
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Join Date: Jun 2011
Location: Madison, WI, USA

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Remicade / Renflexis Cough

Has anyone had any luck with a remedy for the infamous Remicade cough? Or is it something you just have to live with as an unpleasant side effect?

Otherwise Remicade has worked really well for me and I donít really want to switch to something else that is less effective with both Crohnís and RA. I switched recently to the biosimilar version, Renflexis, and still have the cough. If anything, itís gotten worse.

Iíve talked to my doctors multiple times about the cough. Since they can never hear anything in my lungs, they donít ever seem concerned, but honestly, it sounds like Iím going to cough up a lung when I get going on a coughing jag.
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Diagnosed with Crohn's Disease Oct 1982; Enteropathic Arthritis Nov 1985; Ankylosing Spondylitis June 2015
Taking 150mg Azathioprine; Remicade
Been there, done that: Renflexis; Sulfasalzine, Pentasa, Asacol, Prednisone, Budesonide, Cimzia, and more colonoscopies than I can count
07-19-2018, 09:55 AM   #2
Lisa
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I've never heard of the 'Remicade cough'...??..... what type of a cough is it?
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30 plus years and counting with UC/Crohn's!
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While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
08-16-2018, 12:36 PM   #3
December's flower
 
Join Date: Mar 2018
My pneumologist suggests if there are any respiratory issues while on immunosuppressants or biologics like coughing which persist for more than a week along with other symptoms like low grade fever to be alarmed and contact him for a physical examination and possibly a thorax X ray
10-22-2018, 08:54 PM   #4
stefs3boys
 
Join Date: Oct 2018
I started on Remicade on 10/1 and had my 2nd infusion on 10/18. I am also on MTX injections which I started on 9/16 and take weekly. I have developed Interstitial Lung Disease (the pulmonologist also called it Remicade Toxicity today) which is affecting my lungs. Dry cough and severe shortness of breath. It wasn't caught on a chest x-ray, but was definitely present in the CT scan on 10/19. Please don't wait...get it checked out. It truly can't hurt to have a good look around!
01-02-2019, 01:41 PM   #5
kiltubrid
 
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I've never heard of the 'Remicade cough'...??..... what type of a cough is it?
it's a dry, hacking cough that makes it sound like you have a really bad cold. I have found Hall's sugar free lemon cough drops help.

I was off Remicade for six months and the cough went away. Back on it now, and the cough is back.
01-02-2019, 01:43 PM   #6
kiltubrid
 
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My pneumologist suggests if there are any respiratory issues while on immunosuppressants or biologics like coughing which persist for more than a week along with other symptoms like low grade fever to be alarmed and contact him for a physical examination and possibly a thorax X ray
My doctors are not at all concerned. They listen to my lungs and there is nothing there. I've even been to a pulmonary specialist, had chest X-rays, and they can't find anything. But they hear the cough itself and are surprised there's nothing in my lungs when they listen. It has them scratching their heads a bit.
01-03-2019, 08:17 PM   #7
cyndenator
 
Join Date: Apr 2017
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dry coughs can also be due to acid reflux. I take pantaprazole I have been told by an ENT after two rounds of anti-biotics resulting in continued dry cough that it might be acid reflux.

I am currently taking humira and budesonide but found to have increased antibodies to the humira so will be switched to remicade infusions.
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