crohnsinct
Well-known member
Clearly I can't give up the dream. After watching this, I am thinking we moved T too quickly.
https://www.youtube.com/embed/6EbHUYy5ePg
https://www.youtube.com/embed/6EbHUYy5ePg
Clearly I can't give up the dream. After watching this, I am thinking we moved T too quickly.
https://www.youtube.com/embed/6EbHUYy5ePg
Honestly, we haven't scoped. His inflammatory numbers have gone down a great deal, almost normal. We keep dismissing a scope because of finances but I know we need to have that done soon. I am only looking at growth, bathroom habits, lab numbers, color, energy, etc. I wish I could say that his scope looks great but I can't. Sorry.That's great Charleigh! Love to hear these success stories. When was his last scope and did it confirm the elusive mucosal healing?
I'm still trying to understand so much about this disease. How many people with crohns overall get to endoscopic healing and stay there? How many people who use the best drugs (remicade? Humira?) get there and how does that compare to say diets, EEN and no treatment - and how many patients are actually tested often enough to know? Do some patients know about microscopic inflammation bc they get lots of scopes and mres beyond labs etc, but others don't know they have it bc they don't get all the big tests often? How often does inflammation without symptoms lead to bigger issues? Heck how many people walking around who've never thought about an IBD bc they feel great, never had issues, actually would find something if they did a biopsy or Mre?Charleigh: I totally understand. We are in quite the hole with two girls scoped this year, an mre, meds and lab tests not covered. It is a difficult position to be in but I think your GI will push the issue if it comes to a very necessary point.
I am always looking for that endoscopic evidence though because that is what our doc says is the desired endpoint and unfortunately my oldest on Remicade feels great, is growing, gaining like gang busters has normal labs yet inflammation found in biopsies at scope. Grrr. She is still good though and doc hasn't made any adjustments yet so you could be on to something.