Crohn's Disease Forum » General IBD Discussion » What were your symptoms at diagnosis?


12-04-2018, 04:22 PM   #1
Ldncrad
 
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What were your symptoms at diagnosis?

Did you have classic symptoms? Did you have blood in your stool? Getting diagnosed isnít easy!!! I appreciate the feedback!
12-04-2018, 05:25 PM   #2
Scipio
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I had mild to moderate pain in the lower right abdomen for years prior to diagnosis. The thing that really triggered the search that turned up the Crohn's was an attack of severe anemia. I never had any diarrhea to speak of.

I went along with mild ileal Crohn's for 6 years and then had an attack of pericarditis, which turned out to be an extra-intestinal manifestation of Crohn's. The symptom of that was primarily shortness of breath. I had surgery to remove the pericardium and was put on Stelara to battle the Crohn's, which appears to be working. So right now I have no symptoms.

Pain and anemia are common in Crohn's, but taken together my collection of symptoms, while not unheard of, were not very typical most Crohn's patients.
12-04-2018, 07:36 PM   #3
awoenker12
 
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For me, I had a sharp pain in my lower right abdomen that would happen occasionally. I would have loose stools close to diarrhea with blood in it. I never ran to the bathroom 20 times a day, but it was more frequent than normal like 2-3 times a day. I did not feel like eating much as I was not hungry at all. My blood work showed that I was also anemic.
12-05-2018, 02:02 PM   #4
The Real MC
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Abdominal pain, inflammation, diminished appetite. Another telltale is your abdomen hurting as you drive your car over even the slightest bumps.
12-05-2018, 05:51 PM   #5
Scipio
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Abdominal pain, inflammation, diminished appetite. Another telltale is your abdomen hurting as you drive your car over even the slightest bumps.
Wearing pants or a belt that were even the slightest bit tight over the abdomen also hurt.
12-09-2018, 05:40 PM   #6
Jabee
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Severe anemia was the first sign, when the inflammation was confined to my duodenum. When it spread farther down into the jejunum and Ileum it was pain and inability to eat or drink resulting in rapid weight loss and hospitalization. The pain was really severe with my last hospitalization so for me thatís the first thing I pay attention to. Never any diarrhea; I am usually constipated.
01-13-2019, 06:18 PM   #7
EvieBaby
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Did you have classic symptoms? Did you have blood in your stool? Getting diagnosed isnít easy!!! I appreciate the feedback!
I had been having a large amount of bowel movements, bleeding, terrible stomach cramps and generally felt unwell. I kept going back to the Doctor but getting nowhere until one day I saw a student doctor who did several checks on me, saw how pale and dehydrated I was and felt I should be sent off to hospital. I can never remember his name but I will always be grateful to him to taking the extra time to listen to me properly.
01-13-2019, 11:22 PM   #8
Lady Organic
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symptoms can really differ from patients depending on disease location. In my case, rectum and sigmoid colon were sick at diagnosis. I had easy classic symptoms to recognize for any doctor: mucus and blood increasing in quantity and frequency of bowel movements over just a few weeks/months. I got diagnosed very rapidly. The first general doctor I saw knew right away it was most likely IBD.
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''UC-like Crohn's'' (2001)
wrists + ankles arthropathies (2013)
on: 50mg 6-MP (Purinethol)+ B12 shots


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pred 50mg, 5-ASA (pill, rectal), cortifoam, Imuran, Purinethol, methotrexate.
01-15-2019, 09:17 AM   #9
Tim641
 
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I had extremely bad lower right abdominal pain to the point where I'd be sick. I lost a lot of weight because I had a very low appetite and my hair started to fall out a lot. I was always rushing to the toilet every 30mins and would have loose stool sometimes with blood. After doing a blood test all they found was that I was anaemic and I was put on iron tablets. It wasn't until after a year where I was admitted and they did a colonoscopy which confirmed I had Crohn's disease.


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