Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » If you had a chance would you chose a no crohns life?

View Poll Results: If you had a chance would you take back getting sick?
yes 211 83.40%
no 17 6.72%
not sure 25 9.88%
Voters: 253. You may not vote on this poll

08-10-2011, 03:20 AM   #1
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Location: Washington
If you had a chance would you chose a no crohns life?

I was just wondering if you had a chance would you chose to not ever had crohns, or is it something that has changed your life in a postive way?
Diagonsed at 19 had surgery in
Aug 2009 bowel resection and fistula fixed,
now it's IBS for me
currently on: Humira every 2 weeks,
Pentasa 2x day 500mg, Iron, B-12 shot,
hyoscyamine as needed
New med: belladonna-phenobarbital

have been on: Prednisone (which I will never take again), asacol (waste of time for me),
Entocort, sulfasalazine (made me have weird side affects),Remicade (Horriable reaction after 3rd dose)
08-10-2011, 02:31 PM   #2
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I've only been diagnosed for 3 years. So far it has, blutly, shattered so many of my life's dreams. There are still some dreams I can persue. But my MAJOR ones have been shutdown. Point. Blank.
Dx w/ Crohn's Disease May '08
Dx w/ Graves' Disease June '11
Dx w/ Lymphocytic Colitis October '12
10-01-2011, 04:47 PM   #3
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I wish I never got it!!
10-01-2011, 06:04 PM   #4
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While I'd love to say I wish I'd never got Crohn's, especially sitting here with a HUGE open wound on my abdomen due to a major SBR/fistula/abscess surgery, but I can't say I'm sure.

I was diagnosed when I was 8, but had symptoms from when I started walking. All I have know is life with Crohn's. The problem being is that I have a wild streak a mile wide and know I could have been in serious trouble in high school if I didn't have Crohn's to slow me down.

Into my 20's I started partying a bit much and the Crohn's flared to slow me down again. The only major flare up I've had that didn't pull me out of going in the wrong direction is the most recent.

The other thing is that I don't think I'd be with Stacy (my hubby), that we'd have the kids we do or the life we have if it wasn't from the way my life has gone to this point. So Crohn's is a whole catch 22 and a big question of what if?
30+ years of Crohn's Disease and many strong opinions.
Diagnosed - Age 8, 1981
Small Bowel Resections - 6 - had a fistula and 6X8 abscess, as well as some small bowel removed - 9/2/11
New abscess, named Albert! 7/7/12
Prednisone - Way too much & never again!
Cimzia - Started 5/20/11, hoping for the best. Scared that it won't work, like everything else.
Humira/Remicade/Imuran/6MP/Flagyl/ect - Been there, done that & really should get the t-shirt!
10-02-2011, 08:21 AM   #5
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Part of my wish's I'd never got it. And I know that my life would be so much different without It. Yet at the same time.. I would not be the person I am now had it not been for what having crohn's disease and certain other things have put me through, To some extent I'd like to think I'm a better person for It.
My Story
Diagnosed 2008
Currently taking
omeprozol 40mg
codeine x4
ferrous sulphate
folic acid

ileostomy, colostomic mucus fistula stoma. gastostromy after recent surgery

tried, prednisolone, pentasa, azathioprine and infliximab
10-02-2011, 08:40 AM   #6
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I was gonna say no, because I know that if I didnt have my crohns I KNOW I never would of met my wonderful and soulmate husband after a failed marriage. I would of picked another AH... I always do. I also think my daughter is far more compassionate and caring (in her own way) because of my illness..again I have seen monster teens, glad I don't have that. Even though I suffer alot my worst pain is over knock-on-wood.
10-02-2011, 11:54 AM   #7
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I am not so sure...some days I feel like a stronger person to fight such a nasty disease whereas everyone else walks around without trouble of when their colon will hate them next and some days I hate myself and wish I was a person tha never lived by their colon. It's hard to say...
Diagnosis: Confused officially diagnosed in 2010

Bloodwork is indeterminate IBD, biopsies are crohns positive, symptoms and visually it's UC

Current meds-
Prednisone, humira, 6mp, and lialda
awaiting surgical consult

Mom of Little Z
eosinophilic esophagitis 5/2015
10-02-2011, 12:02 PM   #8
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There are a few not quite sures. I guess this means that Crohn's had positive and negative impacts on some people.

This disease has changed me a little by little. Not only physically but the way I view things in life has changed for the better. I'm not taking good opportunities given to me for granted anymore.
21, Long Island, NY
Been on a lot of meds with only short term success
Have added drastic measures to cope with symptoms.

Suffered from severe narrowing of the ileum and ascending colon in the past years. And unknown left-sided colitis for the last 2 years. Severe Crohn's.

Previous on: Pentasa, Asacol, Colazal, Canasa, Prednisone, Remicade, Azathioprine, 6mp, Entocort, Humira

Current meds: LDN(2.25mg) w/ Beck's Protocol, DMSO
10-02-2011, 12:25 PM   #9
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I think that if I could have had the experience and then have become completely well, that would have been the best.

However, because of the treatment path that I have chosen, I have learned an incredible amount about the culture of food in North America. As well, I have 'met' incredible people on the forum who deal with their horrendous difficulties with an amazing grace. I think that because of these experiences I have more compassion for others and myself, and I have more gratitude for the ordinary experiences of daily life. (And my sense of smell has heightened because of my limited diet-- did you know that intensely inhaling the scent of fresh corn on the cob is almost like eating it?!)
Diagnosed with IBD Sept. 2010
Enteral Nutrition induced remission in August 2011
Maintaining remission on Full Elimination Diet
10-02-2011, 01:00 PM   #10
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Anything Crohn's has taught me about life, I could have learned anyway. So yeah, I wish I'd never had it. I cannot see any benefit to having a lifelong incurable disease.
** Remicade since Sept. 2011
10-02-2011, 02:09 PM   #11
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I am quite surprised at the number of "not sure" responses. For me, it's an emphatic "yes, take it back!". Anything at all positive that has come from this disease has been FAR FAR FAR outweighed by the negative.
10-02-2011, 02:18 PM   #12
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I tend to think these questions shouldn't be given brain space. It is not worth considering - it it like looking back. It is best to put our energy into being postitive. I hope for acceptance that's all.

Kaz xxx

Crohn's diagnosed 2010
Ileostomy 2011.
Completion Proctectomy 2012
10-02-2011, 09:44 PM   #13
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I seem to be the only one to say "no". I wouldn't take back my Crohn's. It's made me more caring towards other people and it's made me go for things that I have been putting off. Like, finishing school, and going for a career in the healthcare profession.
10-02-2011, 10:14 PM   #14
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You know... Everyone gets sick. I hate waking up everyday with the problems I face because of this disease. I was devastated recently to realize I could never sign up for Navy JAG because the disease, no matter how well controlled, is an automatic disqualifier. I've been hurt by my family's inability to understand my illness or the fact that there's no cure. And I've lost relationships that were important to me because people couldn't handle my disease. And don't forget the humiliation and occasional loss of dignity. But am I alone? Really? Of course not. Illness happens. Today, I went to an AIDS awareness 5K. There is a community - a large community - of people who suffer from some disease that has no cure, whether it be diabetes, AIDS, Crohns, or what have you. Now.. Crohns disease would not have been my choice had I time to study it or the ability to choose. But in a weird way, I'm thankful for it. It's probably the most human experience I've ever had. I enjoy life more because of my disease. I've had to rebuild myself from nothing, and because I've been at the bottom, I really know how to enjoy being on top! My disease has made me fearless in a way. I want to experience everything life has to offer, and my determination has taught me to never settle and to fight harder than everyone else. I love more, I laugh more, and I feel more. I'm happy that I learned to be compassionate and to care more about the people around me. I think I have a greater sense if life because of my illness. It has grounded me in a way that I didn't think possible. So.. I'm not happy that I have crohns, but I am happy that I became the person that I am because of Crohns. I think there is a silver lining here?
10-03-2011, 02:22 AM   #15
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I lived without Crohns for 35 years. I am asthmatic so I had an idea of living with a chronic condition. But Crohns? NO I would take it back in a second. Yes I know the drill, there are people who live with Aids, diabetes, multiple sclerosis etc etc etc. Still I think those people would also take back their illnes in a second if they could. And that is also the case for me. I fight the disease but I dont like it. I was good and caring and happy and I appreciated the good things in life pre-crohns too. Crohns added on the bad days of my life and not the good ones. I made me more carefull only in the part of locating bathrooms. Beeing Greek I grew up in a culture that envolves food. Hearty, well cooked, comfort, gourmet food. I can cook and I can bake but I cannot eat any more. Even worse EVERYONE around me asks me "are you allowed to eat that?" everytime I get a bite of anything.

I cannot chaperone for my kids field trips anymore, I cannot go hiking with the boy scouts anymore, I cannot go camping anymore. My husband is afraid to have sex with me in case he hurts me. Everyday I wake up thinking if I am going to flare, or puke, or ruin my pants with diarrhea. I see pity in peoples eyes and I HATE pity.

I still have an active life, working, studying, taking care of my family. But the bad days are usually more than the good ones.
10-03-2011, 03:09 AM   #16
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I had UC rather than Crohn's and now have an ileostomy. And life is great.

I feel like I am a better and stronger person for it, and my life would almost certainly have gone down a different route. But would I get rid of it if I could, yes I would. I wouldn't hesitate.
UC diagnosed 2003. Sub total Colectomy resulting in ileostomy July 2007. Proctectomy February 2008. Late 2008...finally back in business!
Wish You Were Here
10-03-2011, 09:46 AM   #17
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I really hate life with crohns!!!!!! there was so much i so naturally wanted to do, like join the army, and continue being captain of all the sports teams. this life with crohns takes all that away from me. and even if i do get out people are always asking me if i'm okay cos i look ill. yes, being out, or even in, is just one hard slog. i just want to get better!!!!!
10-03-2011, 12:02 PM   #18
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since getting crohn's at the start of 2011 it has caused me to cancel a 'once in a lifetime' trip to China and on a bad day I find myself wishing to be ANYONE else, I hate it so much but if I never got it I probably would have never found out about gastroenterologists and that's what I want to be now, also I feel proud for not letting it get me down all the time. But definitely I would choose not to have it over having it.
10-06-2011, 12:41 PM   #19
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I would definitely choose a no Crohns life. I have been underweight my over 40+ years. Although only recently diagnosed with Crohns, been dealing with symptoms for as long as I can remember. Caused me to cancel out of countless excursions, trips, events etc. and some that I went on were stressful from being worried of an unwanted event to occur. I would love to eat some of the foods I now avoid. Family had a big juicy/greasy pizza last night and I could just watch... . Enough self pity though. I now appreciate so many little things that maybe I wouldn't have if not for Crohns so there is a bit of a silver lining. However, given a choice....the choice is clear.
10-06-2011, 01:55 PM   #20
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I have had plenty of hardships and life shaping experiences. I don't need this awful illness to make me who I am. There are some positives that have come from it, but not nearly enough to make it worthwhile.
10-06-2011, 11:23 PM   #21
Slim Johnson
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This is a rhetorical question right???

Before I got sick, I was working, making a comfortable middle class living, I spent ten years snowboarding regularly (taught for 5 1/2 years) skateboarding, BMX, motorcycling, camping, hiking, Lots of sex, no stress, no pooping myself in public/bed/private.

Why would anyone want to have this HORRID illness? It has stolen so much from me, in only 5 years! I say to Hell with CD!
Don't assume my posts are about you. But if you are affected, that must mean you are guilty of something.
10-06-2011, 11:39 PM   #22
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Could I pick who got it instead of me??? You see I have this AH of an ex-husband.........hehehehe
10-07-2011, 12:02 AM   #23
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Could I pick who got it instead of me??? You see I have this AH of an ex-husband.........hehehehe
HAHAHAHA! I can think of a few people I'd give it to, at least for a few days.
10-07-2011, 03:39 AM   #24
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Hate it, hate it, hate it, I was diagnosed in 1987 and have never been 100 percent since, it try not to let it but it does rule parts of your life !!!
10-07-2011, 11:53 PM   #25
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I would take a no chron's life very gladly with both hands and never look back thanks! Definitly an experience I could well do without.

I'm a nurse so any experience with the health system, dealing with doctors, having investigations, taking medication etc certaily does make you more empathetic towards what your patients are going thru, but to be honest I was just as good a nurse then as I am now. In fact I was probably better then because I was giving my patients my full attention instead of running for the loo and feeling so bloody tired and sore ALL THE TIME!
10-08-2011, 04:22 AM   #26
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Definitely a no crohns life for me as well. Its seriously naused my life up, a career in the RN ruined etc.
I hate the bloody thing TBH.
1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection
2012 Laproscopic Laperotomy & Resection
2013 diagnosed with a Fistula
Been on Azathioprine Pred & Methotrexate, Humira & Inflectra.

Currently on:
Pentasa 4gm daily
Daily Multi Vitamins
3mthly B12 Jabs
10-08-2011, 08:56 AM   #27
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I hate this stinkin disease but I do know I'm very lucky to be alive and can live w/ it. But I do wish I never got sick!!
10-09-2011, 04:06 AM   #28
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to be honest who if s/he had the say would choose to have a disease.
on my part the disease was only a nuisance to me, nothin good came out of it. i stopped rugby last year because of my anemia ( which was a result of the inflammation causing low serum iron) and this year it caused a lot of frustration in my boxing and body building regiment.
so i'd say no disease would definitely be my answer.
Diagnosed 05/11
Treatment Imuran ( 200mg/daily dose)
10-10-2011, 10:29 PM   #29
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I'm not sure either, I was severely overweight before I was diagnosed, and hadn't there been Crohn's to interfere, I doubt I would have learned nearly as much about myself and health in general than I know now. Sure, so far the downsides seem bad; but it isn't all grey. I haven't been diagnosed for nearly as long as some of you though, and I have no idea whats to come. Not to mention that in my case, I can go through a few years without even noticing I have such a disease.
10-10-2011, 11:34 PM   #30
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That is very true, zilla. It's all relative, isn't it? This disease certainly affects us all in different ways with varying degrees of severity. I'm sure the answer to this question may simply depend on where you are in life.

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