03-03-2014, 06:34 PM   #1
This member has been approved by an Administrator to post this message.
Join Date: Mar 2014
Study Participation: Uncertainty in Medical Decision Making

Thanks to Jennifer Hope, lead Administrator, for permission to post.

I am conducting a study about how patients, caregivers, and healthcare providers handle uncertainty when they make medical decisions (UHD CPHS #26-14). Please consider participating.

PATIENTS & CAREGIVERS: https://www.surveymonkey.com/s/7CP235G

HEALTHCARE PROVIDERS: https://www.surveymonkey.com/s/7J7X2P9

The questionnaire gives the option to volunteer or withhold whatever details you see fit. You are not required to provide any details that you do not feel comfortable or permitted to share. Your participation will help improve models for making more effective healthcare decision products.

The questionnaire should take no more than 20 minutes. It asks questions for inclusion into the study, about demographics, and about how people handle making medical decisions in the face of uncertainty. None of your answers will be linked to any personal or identifying information.

If you have any questions, feel free to contact me at [email protected] or 713-222-5315

The research has been reviewed according to University of Houston-Downtown Committee for the Protection of Human Subjects procedures governing your participation in this research.

Many thanks,

Aimee Roundtree, Ph.D.
Associate Professor and Director
Master of Science in Technical Communication
University of Houston-Downtown
One Main Street, 1045-South
Houston, TX 77002
[email protected]
03-04-2014, 03:11 AM   #2
Jennifer's Avatar
Personally I enjoyed the questions and it was fairly simple. It would be awesome if everyone helped out so hopefully the whole process of getting proper treatment/care and having a better understanding about the treatment can be improved for all of us.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
03-04-2014, 02:26 PM   #3
Join Date: Oct 2012

My Support Groups:
I found it really hard to provide anything useful. The questions were very vague and general, and I've had what feels like an infinite number of what could be defined as medical decisions to make, with such variations from one to the next that it was pretty hard to come up with answers that reflected my medical decision making accurately. Sorry I couldn't be more helpful.
03-04-2014, 02:59 PM   #4
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

My Support Groups:
I agree it was vague and not sure how helpful I could be. Hope you have a productive study.

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