Crohn's Disease Forum » Support Forum » Undiagnosed Club » Welcome to the Undiagnosed Club

07-23-2011, 11:58 AM   #1
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Welcome to the Undiagnosed Club

Due to the popularity of the main "Undiagnosed Club" thread, we've decided to create a subforum for those of you who are as of yet not diagnosed. Feel free to start your own threads with questions and personal updates. Cat-a-Tonic, the founder of the Undiagnosed Club, will be the Forum Monitor here.

If you have a thread elsewhere on the forum that you would prefer be in this subforum, please let me know and I'll move it for you
It's good to be back
07-23-2011, 01:22 PM   #2
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Allieinwonder has also accepted a position as a Forum Monitor in here Thank you allieinwonder!

*edit* We need a dance emoticon.

*edit2* Fixed
07-23-2011, 01:49 PM   #3
allieinwonder's Avatar
Join Date: Oct 2010

My Support Groups:
Ha ha no problem! That dancing banana is awesome. :P

I think this is a great idea!
DXed with Behcets disease December 7th, 2012. Behcets disease is a rare autoimmune disease of the blood vessels that can mimic Crohns.

DXed with Polycystic Ovarian Syndrome (PCOS) November 20th, 2017.

Do you love blankets to keep you comfy as much as I do? Fellow spoonies get a 20% discount on my handmade afghans! Contact me for a coupon code!
07-23-2011, 02:58 PM   #4
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
And I'm pleased to note that StarGirrrrl has also accepted our offer to become a Forum Monitor of this forum. WOO!
07-23-2011, 09:24 PM   #5
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Join Date: Sep 2010

My Support Groups:
Thanks The dancing banana totally rocks!
2006. Tummy issues (more IBD than IBS).
2009 joint pain/worsening tummy issues.
CRP 20-36 2006-now. C3/C4 inflammation markers huge,
2014 IDA & low B12.

June 2014 admitted to Hospital 3 nights as emergency transfused 2 units of blood. Dangerous case of anaemia.
Caught by pure chance!
Cause currently unknown but suspected CD.

Waiting on blood & stool results from January.

Hoping to stop anaemia treatment soon & lower B12 daily dose!
07-23-2011, 09:41 PM   #6
Super Moderator
Cat-a-Tonic's Avatar
Join Date: May 2010
Location: Madison, Wisconsin

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Yeah! I just got home from a day trip out of town and saw this. Thanks David so much for making this new subforum for us! And also thanks for making Star and Allie and I forum monitors, I promise I'll try not to go mad with power. (I once had a job where I had to supervise some employees who were previously my equals and they made me promise not to go mad with power - I compromised and went just a little bit mad.) Ha ha. In all seriousness, this rocks! I feel I must express my excitement by also using the dancing banana.

: dance:

Woo hoo!
08-17-2011, 01:56 AM   #7
Join Date: Apr 2011
Location: United Kingdom

My Support Groups:
Big big thanks to David and whoever else was involved in the setting up of this sub forum. If only the hospitals would listen and be as proactive as the people on here: the sub forum might not need to exist!

Joking aside, huge thanks, tis most appreciated!
01-12-2012, 05:37 PM   #8
New Member
Join Date: Jan 2012
Location: Washington
Hi Everyone,

I have never posted or blogged before so this is new for me. First off just finding out that I might have Crohns has me freaking out. So I wanted to thank you all for giving me a place to learn more. I have already had 3 surgerys and Doctors are leaning more towards this disease. I know I have alot of tests ahead of me. Just trying to gather myself.
01-22-2012, 10:50 PM   #9
Senior Member
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Join Date: Jan 2012
Location: Kaysville, Utah

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I do not have crohns or colitis, but as the spouse of someone who does have crohns, plus I have a lot of serious medical issues myself, I know how scary it is to confront something of this magnitude. I just wanted to say, take it one day at a time and one issue at a time. You will get through the initial shock (or at least be able to handle it better), and the answers will come. Sometimes the not knowing is the hardest part. Surround yourself with those that love you, hang on to that, and you will make it.
Wife of DougUte
06-26-2013, 07:36 AM   #10
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Join Date: Sep 2012
Location: Belfast, Ireland

My Support Groups:
Hi everyone
As you all know some of my story I have just got a letter from my GI saying I have elevated levels of calprotectin does this mean I have a diagnosis!? Does this mean its IBD not IBS!!??
08-22-2013, 12:20 PM   #11
Join Date: Aug 2013
Hi everyone,

I just want to run my situation by you, and can you let me know if Crohn's is a possibility? I have heard about someone in a similar situation as me who was diagnosed with Crohn's, so I want to make sure I don't sound crazy when I ask for tests.

For over 3 years now I've been having unexplained issues with my skin in the form of painful abscesses. They range from the size of the tip of a pen, to half of a golf ball, and have been everywhere on my body from my upper thigh to my eyelid. I've had a ton of tests done for bacteria, and I think it's safe to assume now that it's not a bacterial thing (15 rounds of antibiotics later). I currently have 3 of them on my stomach.

Since getting these abscesses, I've also been having problems with my bowels. It seems sporadic though in terms of intensity. At least a couple times a week I have abdominal cramping which can lead to an extremely inconvenient yet necessary bathroom session. This happens frequently, but only about 3 times have I almost vomited from it.

Since 2010 I've also noticed blood in my stool, not very much though, about 3-4 times a year.

Any sort of insight would help! Feeling kind of desperate here, and getting tired of the having more scars popping up on my body... Yes, I'm being vain right now.

Thank you so much.


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