Crohn's Disease Forum » Support Forum » Undiagnosed Club » So many tests but bleeding continues


01-23-2019, 05:04 AM   #1
liana
 
Join Date: Jan 2019
So many tests but bleeding continues

Hi all, fair warning that this might be a bit long (and TMI!) so bear with me

Just a bit of background: I had suffered from stomach issues in the past and have been scoped twice (one in 2016 due to occult blood in stool and a second one in 2017 because of stomach pain and to make sure nothing was missed) both were clear and biopsies showed no signs of inflammation. The only thing that came up with an internal hemorrhoid.

Lately, I have been having an increase of blood with bowel movements. I am currently a freshman at a university and donít have access to a regular doctor (we do have a student health center on campus but they are very limited in terms of tests they can order and for issues that are more than just a common cough or cold). I went to see my PCP during break and she did an anoscopy which showed that the hemorrhoid was there but it wasnít bleeding though it looked a bit raw. I was referred to a new GI who put me on rectal suppositories. However, I have been using them since around the end of December and they havenít been helping. It seems that every time I pass a slightly larger stool I get a lot of blood in the toilet bowl and on the toilet paper (I do also get blood with smaller bms but itís not as much). Sometimes even hours after I pass the bm blood will still come up on the toilet paper if I happen to wipe there after urinating. I want to believe itís just the hemorrhoid but Iíve had it for a long time and itís never bled this much and itís not getting better even with the suppositories. I also have pain on the left side of my abdomen.

So far the tests Iíve had done are: 2 colonoscopies, an MRI, an MRE, an abdominal ultrasound, meckel scan, stool calprotectin, and more blood tests than I can count. Iím just not sure what to do at this point because Iíve had so much testing done but I still continue to bleed.

Last edited by liana; 01-23-2019 at 12:37 PM.
01-23-2019, 12:01 PM   #2
Scipio
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The fact that the blood tends to appear after larger than usual bowel movements suggests that we are talking about mechanical damage instead of, or perhaps in addition to, the hemorrhoid or an undetected area of inflammation.

It sounds like you have had pretty extensive testing and no inflammation has been found, which is good news. This leaves the hemorrhoid as perhaps the main suspect.

How are your blood hemoglobin tests? Are you losing enough blood to result in anemia?
01-23-2019, 12:18 PM   #3
liana
 
Join Date: Jan 2019
The fact that the blood tends to appear after larger than usual bowel movements suggests that we are talking about mechanical damage instead of, or perhaps in addition to, the hemorrhoid or an undetected area of inflammation.

It sounds like you have had pretty extensive testing and no inflammation has been found, which is good news. This leaves the hemorrhoid as perhaps the main suspect.

How are your blood hemoglobin tests? Are you losing enough blood to result in anemia?
I have been slightly anemic since August 2016 (before my first colonoscopy) and my hemoglobin goes up and down but has never dipped below 11
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