E is home from the hospital and doing really well. Her doctors weren't sure exactly what was wrong for the first couple of days, but it turned out that she had a bowel obstruction at the point of her stricture. The obstruction cleared on its own after 48 hours of IV fluids (and pain and nausea meds) and nothing by mouth. Once the blockage cleared she felt immediately better.
We had gotten too confident about the foods that she could eat, and will now be much more careful.
So now it's not clear how much plain-old Crohn's inflammation is going on. Evidently the inflammation and fluid that showed on the ct scan could have just been a result of the obstruction. She still has scopes coming up in a couple of weeks, and we'll know more after that.
On the positive side, E did amazingly during the entire ED and hospital stay. Medical procedures are always hard for her, and she doesn't like to talk to doctors, so she can be a difficult patient. She was calm and mature throughout this stay, and she talked to all her doctors and nurses like an adult. It made me feel much better about her ability to manage her Crohn's on her own as she gets older. The other great thing was that her own doctor was the attending peds GI at the hospital this week, which was such a fortunate coincidence.
We had gotten too confident about the foods that she could eat, and will now be much more careful.
So now it's not clear how much plain-old Crohn's inflammation is going on. Evidently the inflammation and fluid that showed on the ct scan could have just been a result of the obstruction. She still has scopes coming up in a couple of weeks, and we'll know more after that.
On the positive side, E did amazingly during the entire ED and hospital stay. Medical procedures are always hard for her, and she doesn't like to talk to doctors, so she can be a difficult patient. She was calm and mature throughout this stay, and she talked to all her doctors and nurses like an adult. It made me feel much better about her ability to manage her Crohn's on her own as she gets older. The other great thing was that her own doctor was the attending peds GI at the hospital this week, which was such a fortunate coincidence.