Did you have any other treatment prior to Remicade? The surgeons here in my country wouldn't operate on it at all. Seen many surgeons who says if it isn't causing any serious issues, there's nothing to do.I had mine for at least 2-3 years, once I went on Remicade (when my daughter was @6 months old) the fistulas resolved.
I’m curious to know what was recommended and what you decided. From most everything I’ve read, the current practice is for long term biologics, and that coming off may be bad, or potentially worsen symptoms. Also worth noting, that once off for a while, you likely cannot ever go back to that biologic, as antibodies will have developed.Hi @Lisa. Sorry, didn't see this earlier. I have decided to go the biologics route and will be meeting with my GI in 2 weeks. All 3 fistulas still leak green liquid after 2 years. I hope to have the ordeal behind me once i start on remicade.
Did your fistulas ever come back or did it fully heal? Are you still on Remicade as I am thinking of using it for a while after fistula closes (I will be paying out of pocket) hence cannot afford it for too long