Hi, everyone. Starting in june I got chronic gut pain and a slew of other symptoms. I went to the emergency room three times. 1st time they gave me an ultrasound and found nothing. Second time they did nothing and told me it was all in my head(really pissed me off). Third time I got a ct scan, and they said it was likely crohns. I had distention in my small bowel and possible distention in large bowel. I started a low fiber diet and it seemed to be the only thing to help.
I started to see a nurse practitioner at a gastroenterology office. After telling her my history and symptoms, she thought it was most likely Crohn's. I got a colonoscopy, which came up with nothing. Then I got a ton of blood work, nothing. Just a few days ago I went to get an MRI, thinking this'll finally help. It came up with nothing. I am extremely confused. I even went through the hassle of getting my ct scan pics and reports from before so they could compare the test results.
I already have an extremely limited diet having possible celiac disease(can't eat wheat or things that touched wheat without strong reaction and celiac like symptoms), and being a vegetarian/part vegan. (The NP thought it was probably celiac, too). I was able to get a handle on that diet but the low fiber pushes it over the edge and I know i'm suffering from malnutrition.
The chronic pain has limited my life. I'm a student and am only taking 6 credits right now and searching for a job, but have a really limited selection due to pain and anxiety. I have to eat low fiber so I can keep functioning otherwise the pain would overwhelm me.
I'm wondering if i'm doing something wrong. Am I supposed to get off the low fiber before these tests so that they become more obvious? My NP didn't tell me to do that. Do they only show up when I am intensely sick? I was really bad obviously when visiting the ER and got the CT scan. Are there other tests that work better? Really confused and angry because this is holding back my life and i'm still stuck in the diagnosis stage. Is there any advice people have? Thank you for taking the time to read.
I started to see a nurse practitioner at a gastroenterology office. After telling her my history and symptoms, she thought it was most likely Crohn's. I got a colonoscopy, which came up with nothing. Then I got a ton of blood work, nothing. Just a few days ago I went to get an MRI, thinking this'll finally help. It came up with nothing. I am extremely confused. I even went through the hassle of getting my ct scan pics and reports from before so they could compare the test results.
I already have an extremely limited diet having possible celiac disease(can't eat wheat or things that touched wheat without strong reaction and celiac like symptoms), and being a vegetarian/part vegan. (The NP thought it was probably celiac, too). I was able to get a handle on that diet but the low fiber pushes it over the edge and I know i'm suffering from malnutrition.
The chronic pain has limited my life. I'm a student and am only taking 6 credits right now and searching for a job, but have a really limited selection due to pain and anxiety. I have to eat low fiber so I can keep functioning otherwise the pain would overwhelm me.
I'm wondering if i'm doing something wrong. Am I supposed to get off the low fiber before these tests so that they become more obvious? My NP didn't tell me to do that. Do they only show up when I am intensely sick? I was really bad obviously when visiting the ER and got the CT scan. Are there other tests that work better? Really confused and angry because this is holding back my life and i'm still stuck in the diagnosis stage. Is there any advice people have? Thank you for taking the time to read.