Crohn's Disease Forum » Your Story » Qu Biologics study


11-14-2018, 11:02 AM   #1
gohabsgo
 
Join Date: Dec 2011
Location: Newwestminster B.C.
Qu Biologics study

Hey everyone. I am new to the group. I wish I could say the same about my crohn's(had for about 30years). I have been ''fortunate'' in that I have had some long stretches of remission without meds(3 years was my best). This past Sept it flared up. I went to tried and trusted pred.(starting at my usual 40m). Always in the past after about 4-5 days my flareup is gone and I do the usual taper. This time MUCH different. It only slowed it down and when I was down to 30m it started to get worse. I was rushed in for an endoscopy. Not a good scene.(believe it or not this was a ''blessing'' in disguise). I had looked into participating in the Qu Biologic study. Turns out the severity of my flare up allowed me to be accepted. I had to jump through allot more hoops(felt like a freakin lab rat),but I am now injecting myself with the treatment. I have given myself 8 injections so far(.10 ml of E.coli every two days in abdomin). I went from a high of 32 washroom ''visits'' down to just 8-10. I am hoping this treatment works. I am also hoping that I can give all of us here a light at the end of the tunnel. The study is for 55 weeks.I will keep everyone posted with my progress.

Tom
11-17-2018, 12:51 PM   #2
lgpcarter
Senior Member
 
Join Date: Jun 2013
Location: Canada

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Been curious about this study. Glad to hear it seems to be working for you. Looking forward to hearing more.
__________________
Diagnosed in with Crohn's in large and small bowel in 2000. Fistulas followed soon after.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014. 3 more setons June 2018.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Humira 2 shots weekly, Entyvio every 4 weeks, Vitamin D 2000 IU

Previously: Remicade, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone, Imuran, Cipro and Flagyl
11-17-2018, 04:01 PM   #3
gohabsgo
 
Join Date: Dec 2011
Location: Newwestminster B.C.
Igpcarter I don't know if you would be accepted because you have had surgery. You also cannot have been on a biologic for 60 days prior too study.
The only med you can be on is pred, (max 20 mgs). You have to be on a sustained dose for 1 month.

I will keep everyone posted on my hopeful progress. I go in for my first examination on the 27th of Nov. Don't know if I am going to be scoped or not.
11-18-2018, 05:07 AM   #4
Crohn2357
Senior Member
 
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Join Date: Aug 2013

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Made you famous:
https://www.healingwell.com/communit...84359#m4084359

https://www.healingwell.com/communit...84374#m4084374

Thanks for sharing your experience. I hope this gets more attention. It will be interesting to see the treatment's effects on your Crohn's.

Last edited by Crohn2357; 11-18-2018 at 08:17 AM.
11-18-2018, 05:33 AM   #5
Guerrero
Senior Member
 
Join Date: May 2017

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Thank you for sharing. Keep us posted
11-18-2018, 09:55 AM   #6
gohabsgo
 
Join Date: Dec 2011
Location: Newwestminster B.C.
For sure I will keep everyone posted\

This is also supposed to be a treatment for MAP. I wouldn't be surprised if I have it because I spent my summers when I was a kid from the age of 7-17 on my Grand parents ranch. We drank and consumed RAW dairy.for about 2&1/2 months every summer. I don't know if there is any type of testing for MAP yet. I could find nothing here in Canada. I will ask my gastro. when I seem him in 2 weeks.
12-27-2018, 05:40 PM   #7
gohabsgo
 
Join Date: Dec 2011
Location: Newwestminster B.C.
After 2 months of the injections here are my numbers
hemaglobin-133 was 130
platelet count-416 was 436
lymphocytes-.08 was .07
Reticulocytes immature/total 22.8 was 18.9
Fecal cal protein-3410 was 6860
CRP-6.1 was 11.0
Neutrophils-7.9 was 10.0

My Gastro is quite happy(for the most part) with the results so far. I am for sure feeling quite allot better. My overall bowel movements have gone for a high of 32 times in 24 hours down to approxx. 5-8 times. My overall pain is gone and my abdominal rigidity is gone. I am hoping my latest blood and stool samples(just given today) will show even more improvement. I will keep everyone posted.
01-01-2019, 08:23 AM   #8
Guerrero
Senior Member
 
Join Date: May 2017

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Interesting improvements.
Wish you the best for this new year gohabsgo!
01-05-2019, 02:58 PM   #9
gohabsgo
 
Join Date: Dec 2011
Location: Newwestminster B.C.
here are my latest results taken Dec-27
Hemaglobin- 131
Platelet-409
Neutrophils-8.3
Reticulocytes immature/total13.9
CRP-2.1
Fecal calProtectin-1520
Lymphocytes -.09
Total bowel movements 4-5 times a day. Blood 95% gone.

I go for my scope sometime in Feb. I hope by that time it's completely gone.
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