11-20-2018, 01:35 PM   #1
Join Date: Jun 2017
Location: Deland, Florida

15 year old just started Stelara when Remicade was no longer working fully. Had first dose 4 weeks ago. Sed rate is finally normal but once again still losing blood somewhere since Ferritin continues to deplete even after large amount of iron infusions. Any thoughts? Thank you
11-20-2018, 03:38 PM   #2
my little penguin
Forum Monitor
Join Date: Apr 2012

My Support Groups:
Stelara requires a bridge therapy (steriods) until it kicks in
Stelara is extremely slow acting
Takes minimum of 6 months to work
For some close to a year
Ds needed 90 mg every 4 weeks for his to work
It took closer to 8 months from the first infusion

He has been on Stelara over a year now
DS - -Crohn's -Stelara -mtx
11-20-2018, 06:29 PM   #3
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Maya142's Avatar
Give it time - she's had inflammation for quite a while now, right? So it will take a while to heal and Stelara is known to be slower than other biologics. 4 weeks is very early in - I know how hard it is as a parent, but you have to be patient.
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
11-29-2018, 07:07 AM   #4
Catherine's Avatar
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
Ferritin can also be a marker inflammation. Has hemoglobin level increased at all?
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)

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