Crohn's Disease Forum » Extra Intestinal Manifestations » Skin » Hidradenitis suppurativa

08-03-2015, 12:07 PM   #1
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darster's Avatar
Join Date: Dec 2012
Location: Connecticut

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Hidradenitis suppurativa

Hi all, TMI rant

I have been having terrible recurrences of this dreaded skin condition since stopping Humira. It occurs on my vagina and is very very painful. Just when I think it is going away, more of the painful lumps form. I am careful to drain them if I can when I shower, and it helps. I used hibiclens to wash and disinfectant the area. Then an antiseptic and pain reliving spray on the area. I may have temporarily conquered it as no new eruptions have surfaced in a week. Do any of you suffer from this? Any other suggestions as to how to maybe prevent them from occurring?
08-03-2015, 12:48 PM   #2
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Join Date: Jul 2013
Location: Ontario

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· Stoma
I'd get these in my groin. Had them drained by the surgeon. Them dressed by the nurse. It took time but it worked.

My only other suggestion is to keep the area shaved. The nurse told me hair agrivates things.

Hope you get some relief. I know how painful it is.
Sending you my support.
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

08-03-2015, 04:23 PM   #3
Lady Organic
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Join Date: Apr 2013
Location: Montréal, Quebec

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please take a look at the fallowing thread:

I have posted there after I watched a medical nutrition team help a severe case of HS, non-responsive to any medication. A low-glycemic food diet could help you.
''UC-like Crohn's'' (2001)
wrists + ankles arthropathies (2013)
on: Humira
Diet: ''IBD-AID'' : organic food only, Vitamin D + B12 shots
Past meds: prednisone 50mg, 5-ASA (pill, rectal), cortifoam, cortenema, Imuran, Purinethol, methotrexate.

Crohn's Disease Forum » Extra Intestinal Manifestations » Skin » Hidradenitis suppurativa
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