Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Switching from Remicade to Stelara

03-10-2019, 08:55 PM   #1
Ricky_V's Avatar
Join Date: Jan 2016
Location: Columbus, Ohio
Switching from Remicade to Stelara

My daughter is in remission on Remicade and Doctor feels it is a good time to move to a more gut targeted biologic. What are others advice and experiences moving to Stelara?

Renee (25) dx 9/15 - Status: Remission 2 years

Current Meds:
Remicade 7.5mg every 6 weeks


Failed Meds:

Gall Bladder removed 4/16


Julia (22) dx 6/08 - Status: Remission 11yrs
Current Meds:
6MP @ 100mg /Day

03-10-2019, 09:29 PM   #2
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awoenker12's Avatar
Join Date: Jun 2018
Location: Chicago, Illinois

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If she is in remission, what is the point of changing biologics? Has she gotten a colonoscopy to show that there is inflammation and other issues? What I would be concerned is that if she is does not have good results from Stelara, she would most likely not be able to go back on Remicade due to antibody formation. If it isn't broke, don't fix it.

As for me personally, I have never been on Stelara. I have been on Remicade and it has worked great for me.
03-11-2019, 10:42 AM   #3
Lisa's Avatar
Join Date: Apr 2010
Location: New York

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I would also want to know why change if it is working???

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
03-11-2019, 05:26 PM   #4
GI Jane
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Join Date: Jan 2017
Location: Yakima, Washington

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I remember when I switched earlier than I thought they should on ?? sorry can't remember they told me sometimes it's better to switch when you're doing ok. When you're in crisis it's so much harder for your body to catch up.

I'm going to start Stelara in about 6 weeks so sorry can't advise on. I was on Remicade and was doing great then about the 6 month mark I got Lupis from it. Rarer side effect from it I guess unfortunately because it was a wonder drug for me.

Take care.
03-19-2019, 11:27 AM   #5
Join Date: Aug 2018
Location: United Kingdom

My Support Groups:
If you are on a biologic and in remission it is strongly discouraged to switch to a different biologic, your doctor should know this.
  • You don't know that stelara will work for your daughter, she may as well stay on remicade if that appears to be working
  • If she switches to stelara, and then it stops working later on, she may not be able to go back to remicade because you form antibodies to it when you stop

Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Switching from Remicade to Stelara
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